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3Aim: Informal caregivers share common experiences in providing care to someone with health and/or social needs, but at the same time their experiences differ across diverse backgrounds such as gender, age, culture, as these aspects of diversity co-shape these experiences. This scoping review aims to explore how aspects of diversity, across their intersections, are currently incorporated in informal care research and discusses how an intersectional perspective can further develop our understanding of informal care. Methods: A scoping review was performed to map relevant caregiving literature from an intersectionality perspective. Key terms ‘informal care’ and ‘intersectionality’ were used for a search in four databases resulting in the inclusion of 28 articles. All 28 studies were analysed based on a scoping review created intersectionality informed coding scheme. Results: Aspects of diversity are largely understudied in informal care research, in particular across their intersections and from a critical perspective. This intersectional informed analysis revealed that when studying diverse caregiving experiences the use of intersections of dimensions of diversity provides a nuanced understanding of these experiences. Conclusions: Adopting an intersectional perspective ensures that not only different categories or social identities of caregivers are included in future studies, but the mutual relationships between these categories embedded in their specific context are actually studied.
DOCUMENT
In Dutch policy and at the societal level, informal caregivers are ideally seen as essential team members when creating, together with professionals, co-ordinated support plans for the persons for whom they care. However, collaboration between professionals and informal caregivers is not always effective. This can be explained by the observation that caregivers and professionals have diverse backgrounds and frames of reference regarding providing care. This thematic synthesis sought to examine and understand
how professionals experience collaboration with informal caregivers to strengthen the care triad. PubMed, Medline, PsycINFO, Embase, Cochrane/Central and CINAHL were searched systematically until May 2015, using specific key words and inclusion criteria. Twenty-two articles were used for thematic synthesis. Seven themes revealed different reflections by professionals illustrating the complex, multi-faceted and dynamic interface
of professionals and informal care. Working in collaboration with informal caregivers requires professionals to adopt a different way of functioning. Specific attention should be paid to the informal caregiver, where the focus now is mainly on the client for whom they care. This is difficult to attain due to different restrictions experienced by professionals on policy and individual levels. Specific guidelines and training for the professionals are necessary in the light of the current policy changes in the Netherlands,
where an increased emphasis is placed on informal care structures.
DOCUMENT
The Social Support Act came into effect on 1 January 2007. The purpose of the new legislation is to enable citizens who are dependent on the support of the Municipality and those living around them to be able to live independently for as long as possible. Organizing informal care is one of the main targets of this policy. In the realization of this act several assumptions about informal care giving were implied. In this paper three of them are examined. The first assumption is that neighbourly cohesion will lead to exchanging neighbourly support. On the other hand it is assumed that a lack of neighbourly cohesion impedes neighbourly support. The second assumption is that there is an imminent shortfall in the supply of informal care. The third assumption is that healthy people (are expected to) help the vulnerable and that they have to be stimulated to do so. The findings are based on qualitative in-depth interviews, conducted in a small Dutch neighbourhood in Eindhoven, called Drents Dorp. It is argued that all three assumptions need revision in order that informal care policy can be more effective. This study shows that the relationship between neighbourhood cohesion and informal care is not clear cut. Neighbourliness is individualized, but this doesn't mean that neighbours don't support each other: they do, but on an individual one-to-one basis. Furthermore, the most vulnerable inhabitants are not reached by social interventions aimed at enhancing social cohesion. The assumed shortfall in the supply of informal care turns out to be a shortage in the demand of informal care. Due to their fear of dependency and pursuit of autonomy and independence, people hesitate to ask for support. This is far more an impediment for informal care than the alleged shortfall in supply. The assumption that the strong will support the vulnerable also needs adjustment. At least an important part of the exchange of support takes place between vulnerable people mutually.
DOCUMENT
A growing number of informal caregivers of older adults combine caregiving with a paid job, raising the question of whether they will be able to meet the increasing demand for informal care. The aims of our study are twofold: first, to describe the development of a model providing insight into the factors that play a role in the availability and provision of informal care by working caregivers of older adults, and second, to investigate which societal developments will impact the factors in the model, and thus the future availability of informal care by workers. A mixed-methods approach was applied to integrate evidence from academic and grey literature, with insights from experts through a Group Model Building exercise and a Delphi study. The resulting Working Informal Caregiver (WIC) model presents a range of individual, social and environmental factors that are related to working caregivers’ ability and their willingness to engage in informal care. Experts foresee that future informal care will be impacted most by the increasing participation of women in the workforce, while changing household structures may diminish opportunities to share care tasks within their households or families. The WIC model can be used to gain better insight into the availability of informal care by workers, now and in the future.
DOCUMENT
Informal caregivers of frail elderly people often perform a substantial number of care tasks over a prolonged period of time [1]. By definition, informal care is nonprofessional and unpaid and is provided by family members, partners or close friends [2]. Frail elderly people suffer from age-related problems in different domains of daily functioning, such as physical, psychological, and social problems [3].
DOCUMENT
Informal caregivers of the frail elderly often experience the demands placed on them as a heavy burden and a threat to their quality of life. Informal care refers to the unprofessional and unpaid assistance provided by partners, family or close friends. Frail elderly people suffer from age-related problems in different domains of daily functioning, such as physical, psychological and social domains, and are at risk of severe problems in the future, such as falls, hospitalization, disability and death. As a result of the myriad of continuously changing problems and the chronic nature of frailty, providing informal care to these patients often entails increasingly intensive care tasks over a prolonged period of time.
DOCUMENT
To develop a reflection method for community nurses and certified nursing assistants to support the implementation of the Dutch Informal Care guideline in daily care.
MULTIFILE
Challenges in keeping healthcare affordable make informal care increasingly important. It is essential to understand the context in which people provide informal care and gain insight into their wishes with regard to the division of care responsibilities. A total of 37 interviews and eight focus groups were conducted to investigate how Dutch carers’ care attitudes are shaped. Results show that carers’ intersecting social positions, such as gender, migration background, socio-economic status and stage of life, largely influence their care attitudes. Carers want to provide care but experience challenges in doing so. They request a government that takes the lead and facilitates cooperation with professionals.
DOCUMENT
Aims: This study explored what informal caregivers of ethnic minority (EM) persons with dementia in the Netherlands perceive as culturally accessible health care and nurses' perceptions of how cultural competence can be improved to facilitate access to health care for EM persons with dementia and their informal caregivers. Design: Qualitative description research with semi-structured individual interviews and focus group discussions (FGDs). Methods: Semi-structured interviews with 15 nurses and 6 informal caregivers provided input for two FGDs with nurses about the need to strengthen their cultural competence to improve access to health care for EM persons with dementia and their informal caregivers. Interview data were collected between September 2020 and April 2021 in the Netherlands. Focus group discussion data were collected between June and September 2021 in the Netherlands. Results: Nurses and informal caregivers experienced difficulty building and maintaining a relationship. Contrary to informal caregivers' experiences, nurses felt a shared cultural background with the persons with dementia and informal caregiver is necessary. Although nurses acknowledged the importance of cultural knowledge, cultural skills, in particular, were mentioned as needing improvement. Examples are mapping involved family members and their roles, asking the right questions and letting go of personal judgements. Nurses frequently mentioned stereotypical thinking and seeing ‘the other’ as different, and collaboration with(in) family proved difficult for informal caregivers and nurses. Conclusion: Strengthening cultural skills will contribute to facilitating better access to cultural appropriate health care for EM persons with dementia and their informal caregivers.
DOCUMENT
BACKGROUND: In The Netherlands, one out of six Dutch employees has informal care tasks; in the hospital and healthcare sector, this ratio is one out of four workers. Informal carers experience problems with the combination of work and informal care. In particular, they have problems with the burden of responsibility, a lack of independence and their health. These problems can reveal themselves in a variety of mental and physical symptoms that can result in absenteeism, reduction or loss of (work) participation, reduction of income, and even social isolation. OBJECTIVE: The aim of the study was to describe the factors that informal carers who are employed in healthcare organizations identify as affecting their quality of life, labour participation and health. METHODS: We conducted an exploratory study in 2013-2014 that included desk research and a qualitative study. Sixteen semi-structured interviews were conducted with healthcare employees who combine work and informal care. Data were analyzed with Atlas-TI. RESULTS: We identified five themes: 1. Fear and responsibility; 2. Sense that one's own needs are not being met; 3. Work as an escape from home; 4. Health: a lack of balance; and 5. The role of colleagues and managers: giving support and understanding. CONCLUSIONS: Respondents combine work and informal care because they have no other solution. The top three reasons for working are: income, escape from home and satisfaction. The biggest problems informal carers experience are a lack of time and energy. They are all tired and are often or always exhausted at the end of the day. They give up activities for themselves, their social networks become smaller and they have less interest in social activities. Their managers are usually aware of the situation, but informal care is not a topic of informal conversation or in performance appraisals. Respondents solve their problems with colleagues and expect little from the organization.
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