This paper argues online privacy controls are based on a transactional model of privacy, leading to a collective myth of consensual data practices. It proposes an alternative based on the notion of privacy coordination as an alternative vision and realizing this vision as a grand challenge in Ethical UX
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Following the rationale of the current EU legal framework protecting personal data, children are entitled to the same privacy and data protection rights as adults. However, the child, because of his physical and mental immaturity, needs special safeguards and care, including appropriate legal protection. In the online environment, children are less likely to make any checks or judgments before entering personal information. Therefore, this paper presents an analysis of the extent to which EU regulation can ensure children’s online privacy and data protection.
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Smart speakers are heralded to make everyday life more convenient in households around the world. These voice-activated devices have become part of intimate domestic contexts in which users interact with platforms.This chapter presents a dualstudy investigating the privacy perceptions of smart speaker users and non-users. Data collected in in-depth interviews and focus groups with Dutch users and non-users show that they make sense of privacy risks through imagined sociotechnical affordances. Imagined affordances emerge with the interplay between user expectations, technologies, and designer intentions. Affordances like controllability, assistance, conversation, linkability, recordability, and locatability are associated with privacy considerations. Viewing this observation in the light of privacy calculus theory, we provide insights into how users’ positive experiences of the control over and assistance in the home offered by smart speakers outweighs privacy concerns. On the contrary, non-users reject the devices because of fears that recordability and locatability would breach the privacy of their homes by tapping data to platform companies. Our findings emphasize the dynamic nature of privacy calculus considerations and how these interact with imagined affordances; establishing a contrast between rational and emotional responses relating to smart speaker use.Emotions play a pivotal role in adoption considerations whereby respondents balance fears of unknown malicious actors against trust in platform companies.This study paves the way for further research that examines how surveillance in the home is becoming increasingly normalized by smart technologies.
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Data collected from fitness trackers worn by employees could be very useful for businesses. The sharing of this data with employers is already a well-established practice in the United States, and companies in Europe are showing an interest in the introduction of such devices among their workforces. Our argument is that employers processing their employees’ fitness trackers data is unlikely to be lawful under the General Data Protection Regulation (GDPR). Wearable fitness trackers, such as Fitbit and AppleWatch devices, collate intimate data about the wearer’s location, sleep and heart rate. As a result, we consider that they not only represent a novel threat to the privacy and autonomy of the wearer, but that the data gathered constitutes ‘health data’ regulated by Article 9. Processing health data, including, in our view, fitness tracking data, is prohibited unless one of the specified conditions in the GDPR applies. After examining a number of legitimate bases which employers can rely on, we conclude that the data processing practices considered do not comply with the principle of lawfulness that is central to the GDPR regime. We suggest alternative schema by which wearable fitness trackers could be integrated into an organization to support healthy habits amongst employees, but in a manner that respects the data privacy of the individual wearer.
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AI-driven lifestyle monitoring systems collect data from ambient, motion, contact, light, and physiological sensors placed in the home, enabling AI algorithms to identify daily routines and detect deviations to support older adults "aging in place." Despite its potential to support several challenges in long-term care for older adults, implementation remains limited. This study explored the facilitators and barriers to implementing AIdriven lifestyle monitoring in long-term care for older adults, as perceived by formal and informal caregivers, as well as management, in both an adopting and non-adopting healthcare organization. A qualitative interview study using semi-structured interviews was conducted with 22 participants (5 informal caregivers, 10 formal caregivers, and 7 participants in a management position) from two long-term care organizations. Reflexive thematic analysis, guided by the nonadoption, abandonment, scale-up, spread, and sustainability (NASSS) framework, structured findings into facilitators and barriers. 12 facilitators and 16 barriers were identified, highlighting AI-driven lifestyle monitoring as a valuable, patient-centred, and unobtrusive tool enhancing care efficiency and caregiver reassurance. However, barriers such as privacy concerns, notification overload, training needs, and organizational alignment must be addressed. Contextual factors, including regulations, partnerships, and financial considerations, further influence implementation. This study showed that to optimize implementation of AI-driven lifestyle monitoring, organizations should address privacy concerns, provide training, engage in system (re)design and create a shared vision. A comprehensive multi-level approach across all levels is essential for successful AI integration in long-term care for older adults.
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eHealth education should be integrated into vocational training and continuous professional development programmes. In this opinion article, we aim to support organisers of Continuing Professional Development (CPD) and teachers delivering medical vocational training by providing recommendations for eHealth education. First, we describe what is required to help primary care professionals and trainees learn about eHealth. Second, we elaborate on how eHealth education might be provided
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Design and development practitioners such as those in game development often have difficulty comprehending and adhering to the European General Data Protection Regulation (GDPR), especially when designing in a private sensitive way. Inadequate understanding of how to apply the GDPR in the game development process can lead to one of two consequences: 1. inadvertently violating the GDPR with sizeable fines as potential penalties; or 2. avoiding the use of user data entirely. In this paper, we present our work on designing and evaluating the “GDPR Pitstop tool”, a gamified questionnaire developed to empower game developers and designers to increase legal awareness of GDPR laws in a relatable and accessible manner. The GDPR Pitstop tool was developed with a user-centered approach and in close contact with stakeholders, including practitioners from game development, legal experts and communication and design experts. Three design choices worked for this target group: 1. Careful crafting of the language of the questions; 2. a flexible structure; and 3. a playful design. By combining these three elements into the GDPR Pitstop tool, GDPR awareness within the gaming industry can be improved upon and game developers and designers can be empowered to use user data in a GDPR compliant manner. Additionally, this approach can be scaled to confront other tricky issues faced by design professionals such as privacy by design.
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In this project we take a look at the laws and regulations surrounding data collection using sensors in assistive technology and the literature on concerns of people about this technology. We also look into the Smart Teddy device and how it operates. An analysis required by the General Data Protection Regulation (GDPR) [5] will reveal the risks in terms of privacy and security in this project and how to mitigate them. https://nl.linkedin.com/in/haniers
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Dit onderzoek is uitgevoerd ter afronding van de master Toegepast Recht aan de Hanzehogeschool Groningen. Er is onderzocht wat voor stappen moeten worden genomen bij de aanschaf dan wel ontwikkeling van digitale middelen op het gebied van privacy door organisaties in de revalidatiezorg.Disclaimer:De afstudeeropdracht wordt uitgevoerd door een masterstudent in het kader van zijn/haar afstuderen bij het Instituut voor Rechtenstudies. De student levert een juridisch beroepsproduct op en doet daartoe onderzoek. De student wordt tijdens de uitvoering van zijn/haar afstudeeropdracht begeleid door een afstudeercoach. De inspanningen van de student en de afstudeercoach zijn erop gericht om een zo goed mogelijk beroepsproduct op te leveren. Dit moet opgevat worden als een product van een (master)student en niet van een juridische professional. Mocht ondanks de geleverde inspanningen de informatie of de inhoud van het beroepsproduct onvolledig en/of onjuist zijn, dan kunnen de Hanzehogeschool Groningen, het Instituut voor Rechtenstudies, individuele medewerkers en de student daarvoor geen aansprakelijkheid aanvaarden.
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Purpose: The increasing number of cancer survivors has heightened demands on hospital-based follow-up care resources. To address this, involving general practitioners (GPs) in oncological follow-up is proposed. This study explores secondary care providers’ views on integrating GPs into follow-up care for curatively treated breast and colorectal cancer survivors. Methods: A qualitative exploratory study was conducted using semi-structured interviews with Dutch medical specialists and nurse practitioners. Interviews were recorded, transcribed verbatim, and analyzed using thematic analysis by two independent researchers. Results: Fifteen medical specialists and nine nurse practitioners participated. They identified barriers such as re-referral delays, inexperience to perform structured follow-up, and worries about the lack of oncological knowledge among GPs. Benefits included the GPs’ accessibility and their contextual knowledge. For future organization, they emphasized the need for hospital logistics changes, formal GP training, sufficient case-load, proper staffing, remuneration, and time allocation. They suggested that formal GP involvement should initially be implemented for frail older patients and for prevalent cancer types. Conclusions: The interviewed Dutch secondary care providers generally supported formal involvement of primary care in cancer follow-up. A well-organized shared-care model with defined roles and clear coordination, supported by individual patients, was considered essential. This approach requires logistics adaptation, resources, and training for GPs. Implications for cancer survivors: Integrating oncological follow-up into routine primary care through a shared-care model may lead to personalized, effective, and efficient care for survivors because of their long-term relationships with GPs.
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