ObjectiveTo obtain insights into parents' information needs during the first year at home with their very preterm (VP) born infant.MethodsWe conducted semi-structured interviews with parents of VP infants participating in a post-discharge responsive parenting intervention (TOP program). Online interviews were audiotaped and transcribed verbatim. Inductive thematic analysis was performed by two independent coders.ResultsTen participants were interviewed and had various and changing information needs during the developmental trajectory of their infant. Three main themes emerged; (1) Help me understand and cope, (2) Be fully responsible for my baby, and (3) Teach me to do it myself. Available and used sources, such as the Internet, did not meet their information needs. Participants preferred their available and knowledgeable healthcare professionals for reassurance, tailored information, and practical guidance.ConclusionThis study identified parents' information needs during the first year at home with their VP infant and uncovered underlying re-appearing needs to gain confidence in child-caring abilities and autonomy in decision-making about their infants' care.InnovationThis study provides valuable information for healthcare professionals and eHealth developers to support parental self-efficacy during the first year after preterm birth.
Purpose: To support family caregivers of persons post-stroke adequately from the start and to develop self-management interventions, we aim to gain a better understanding of family caregivers experiences at the time of acute care and therefore achieve a better understanding of how they manage their new situation. Methods and Materials: We chose a qualitative descriptive methodology using individual semi-structured interviews with eleven family caregivers of persons post-stroke. We conducted interviews retrospectively, between 2 and 10 months post-stroke, and analysed transcripts using thematic analysis. Results: The themes (1) being in survival mode, (2) feeling supported by family and friends, (3) feeling left alone by the treatment team and (4) insisting on information emerged from the data. Conclusion: During acute care, many self-management skills are required from family caregivers but are just starting to be developed. This development can first be observed as co-management with the social network and is often combined with shared decision-making. Information-sharing, foundational for developing self-management, is essential for family caregivers and should be supported proactively by health professionals from the beginning. Further, from the start, health professionals should raise awareness about role changes and imbalances of activities among family caregivers to prevent negative influences on their health.
Background: Smoking is an avoidable risk factor for diseases, impacting socioeconomic and health care systems globally. The meaning, purposes, and values related to continued smoking after being diagnosed with COPD have not yet been sufficiently explored from an occupational perspective. Gaining an understanding of why people continue to engage in health-compromising or harmful occupations facilitates a more inclusive view on and discussion of occupation. The purpose of this study was to explore meaning construction regarding the occupation of tobacco smoking of people living with COPD in Germany. Methods: This study applied an interpretative phenomenology analysis (IPA) approach to explore the lived experience of people living with COPD who continue to smoke. Four participants were interviewed. Their accounts were then analysed following IPA guidelines. Findings: Three themes emerged from the data: Set in stone, Forbidden fruit, and To wear sackcloth and ashes. Smoking was experienced as a meaningful occupation, and it was especially valued for how it structured the day. Smoking was a familiar habit, and it supported emotional, physical, and cognitive well-being, and contributed to sense of identity. Conclusion: The findings illustrate the importance of understanding occupations that are not positively related to physical health and well-being because of their harmful nature. The findings of this study suggest that occupations do not need to be health-promoting, productive, or reasonable to be meaningful to individuals—meaning is constructed by subjective perceptions of enjoyment, pleasure, and well-being and by experiencing a sense of restoration and reward when engaging in them.
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