OBJECTIVES: To improve transmural palliative care for acutely admitted older patients, the PalliSupport transmural care pathway was developed. Implementation of this care pathway was challenging. The aim of this study was to improve understanding why the implementation partly failed.DESIGN: A qualitative process evaluation study.SETTING/PARTICIPANTS: 17 professionals who were involved in the PalliSupport program were interviewed.METHODS: Online semi-structured interviews. Thematic analysis to create themes according to the implementation framework of Grol & Wensing.RESULTS: From this study, themes within four levels of implementation emerged: 1) The innovation: challenges in current palliative care, the setting of the pathway and boost for improvement; 2) Individual professional: feeling (un)involved and motivation; 3) Organizational level: project management; 4) Political and economic level: project plan and evaluation.CONCLUSION AND IMPLICATIONS: We learned that the challenges involved in implementing a transmural care pathway in palliative care should not be underestimated. For successful implementation, we emphasize the importance of creating a program that fits the complexity of transmural palliative care. We suggest starting on a small scale and invest in project management. This could help to involve all stakeholders and anticipate current challenges in palliative care. To increase acceptance, create one care pathway that can start and be used in all care settings. Make sure that there is sufficient flexibility in time and room to adjust the project plan, so that a second pilot study can possibly be performed, and choose a scientific evaluation with both rigor and practical usefulness to evaluate effectiveness.
In this project we take a look at the laws and regulations surrounding data collection using sensors in assistive technology and the literature on concerns of people about this technology. We also look into the Smart Teddy device and how it operates. An analysis required by the General Data Protection Regulation (GDPR) [5] will reveal the risks in terms of privacy and security in this project and how to mitigate them. https://nl.linkedin.com/in/haniers
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De zorgsector verwerkt zeer gevoelige persoonsgegevens, waaronder gezondheidsgegevens. Bij onvoorzichtige omgang, kan dit een grote impact hebben op de rechten en vrijheden van natuurlijke personen. eHealth moet daarom voldoen aan het vereiste van data protection by design. Wanneer hieraan niet is voldaan, is het zaak om handhavend op te treden ter voorkoming van datalekken. Sinds de Algemene Verordening Gegevensbescherming (AVG) van toepassing is, bereikten meerdere datalekken het voorpaginanieuws waarbij eHealth niet voldeed aan voornoemde verplichting. In dit artikel onderzoeken de auteurs in hoeverre de in de AVG opgenomen handhavingsmogelijkheden met bijbehorende rechtsmiddelen de bescherming van persoonsgegevens waarborgen bij de inzet van eHealth.
