The aim of this study is to investigate Dutch citizens’ care attitudes by looking at care-giving norms and citizens’ welfare state orientation and to explore to what extent these attitudes can be explained by combinations of diversity characteristics. We combined two datasets (2016 and 2018, N = 5,293) containing citizens’ opinions regarding society and conducted multivariate linear and ordered probit regression analyses. An intersectional perspective was adopted to explore the influence of combinations of diversity characteristics. Results show that citizens’ care-giving norms are relatively strong, meaning they believe persons in need of care should receive help from their families or social networks. However, citizens consider the government responsible for care as well. Men, younger people, people in good health and people of non-Western origin have stronger care-giving norms than others, and younger people assign relatively more responsibility to the family than the government. Level of education and religiosity are also associated with care attitudes. Primary diversity dimensions are more related to care attitudes than secondary, circumstantial dimensions. Some of the secondary dimensions interact with primary dimensions. These insights offer policy makers, social workers and (allied) health professionals the opportunity to align with citizens’ care attitudes, as results show that people vary to a large extent in their care-giving norms and welfare state orientation.
Health in All Policies (HiAP), a horizontal strategy connecting all relevant policy sectors, is internationally recognised as a core policy approach to improve the population’s health. For HiAP to be effective, it is recommended that both a Whole of Government and a Whole of Society approach is applied. In the Netherlands, HiAP has been in place since the late eighties of last century. Initially the focus has been on the Whole of Government approach; more recently this is amended by a national Whole of Society program.This thesis addresses the possible role of Citizen Science as a possible contribution to the knowledge base underpinning HiAP and a Whole of Society approach. Citizen Science, as the active contribution of citizens in research, links up with asset-based approachesand community participation that are key elements in modern health promotion.Key questions of the thesis were:“What are possible methods to engage citizens in developing the knowledge base for Health in All Policies (HiAP), and what are challenges and benefits of such engagement?”This thesis draws, firstly, on a theoretical exploration in which the application of Citizen Science in public health is explored. Secondly, two case studies on the application of Citizen Science in the Netherlands were performed. Thirdly, two scoping reviews wereperformed. Finally, one case study was carried out focusing on perceptions of health professionals in a Dutch city district.
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In ons dagelijkse leven hebben we veel met technologie te maken, vaak met interactieve, informatie-gerichte technologie: als consument doen we online boodschappen – zeker in deze pandemische tijd; als reiziger in het openbaar vervoer plannen en betalen we onze reis met interactieve technologie – nu weliswaar even wat minder; als weggebruiker navigeren we op basis van technologie; en ons energieverbruik in huis wordt ‘smart’ gemeten en geadministreerd. Als burger staan we steeds vaker middels technologie in contact met overheden. Denk aan alle online communicatie met de overheid, zo als de belastingdienst en gemeenten die middels apps, websites en de ‘Berichtenbox’ van ‘MijnOverheid’ met burgers communiceren. En er wordt over burgers en ons gedrag al heel wat data verzameld, door gemeenten, de politie, door bijvoorbeeld de zorgsector. En ook in de publieke ruimte wordt data verzameld – met smart city technologie, zoals camera’s en sensoren – met als doel om de stad veiliger, efficiënter en leefbaarder te maken. Al die ‘big data’ maakt het mogelijk om inzichten te genereren – al dan niet met kunstmatige intelligentie – en besluiten te nemen. We gebruiken technologie ook om als burger zelf actie te ondernemen. Bij de overheid kunnen we met apps melden wat er op straat verbeterd of onderhouden moet worden. Met onze buren zitten we in een WhatsApp groep of NextDoor, om bij te dragen aan de leefbaarheid en veiligheid van de buurt. We kunnen met smart home tools of citizen science kits de luchtkwaliteit meten, binnenshuis, maar ook buitenshuis. We tekenen petities, doen mee aan peilingen en enquêtes. En social networking sites (SNS) worden intensief gebruikt, voor sociale en professionele relaties, maar ook om maatschappelijk actief te zijn, voor het organiseren van het samenleven in een buurt. We weten inmiddels dat social media ook een effectief kanaal zijn om de democratie te beïnvloeden. Burgers komen dus in aanraking met veel verschillende technologieën, met verschillende doelstellingen, resultaten en bijeffecten, en waaraan mensen in allerlei functies en rollen deelnemen. Wat centraal staat in het vakgebied Civic Technology is dat de technologie in dienst staat van het burgerschap.
Dutch society faces major future challenges putting populations’ health and wellbeing at risk. An ageing population, increase of chronic diseases, multimorbidity and loneliness lead to more complex healthcare demands and needs and costs are increasing rapidly. Urban areas like Amsterdam have to meet specific challenges of a growing and super divers population often with a migration background. The bachelor programs and the relating research groups of social work and occupational therapy at the Amsterdam University of Applied Sciences innovate their curricula and practice-oriented research by multidisciplinary and cross-domain approaches. Their Centres of Expertise foster interprofessional research and educational innovation on the topics of healthy ageing, participation, daily occupations, positive health, proximity, community connectedness and urban innovation in a social context. By focusing on senior citizens’ lives and by organizing care in peoples own living environment. Together with their networks, this project aims to develop an innovative health promotion program and contribute to the government missions to promote a healthy and inclusive society. Collaboration with stakeholders in practice based on their urgent needs has priority in the context of increasing responsibilities of local governments and communities. Moreover, the government has recently defined social base as being the combination of citizen initiatives, volunteer organizations , caregivers support, professional organizations and support of vulnerable groups. Kraktie Foundations is a community based ethno-cultural organization in south east Amsterdam that seeks to research and expand their informal services to connect with and build with professional care organizations. Their aim coincides with this project proposal: promoting health and wellbeing of senior citizens by combining intervention, participatory research and educational perspectives from social work, occupational therapy and hidden voluntary social work. With a boundary crossing innovation of participatory health research, education and Kraktie’s work in the community we co-create, change and innovate towards sustainable interventions with impact.
The project aims to improve palliative care in China through the competence development of Chinese teachers, professionals, and students focusing on the horizontal priority of digital transformation.Palliative care (PC) has been recognised as a public health priority, and during recent years, has seen advances in several aspects. However, severe inequities in the access and availability of PC worldwide remain. Annually, approximately 56.8 million people need palliative care, where 25.7% of the care focuses on the last year of person’s life (Connor, 2020).China has set aims for reaching the health care standards of the developed countries by 2030 through the Healthy China Strategy 2030, where one of the improvement areas in health care includes palliative care, thus continuing the previous efforts.The project provides a constructive, holistic, and innovative set of actions aimed at resulting in lasting outcomes and continued development of palliative care education and services. Raising the awareness of all stakeholders on palliative care, including the public, is highly relevant and needed. Evidence based practice guidelines and education are urgently required for both general and specialised palliative care levels, to increase the competencies for health educators, professionals, and students. This is to improve the availability and quality of person-centered palliative care in China. Considering the aging population, increase in various chronic illnesses, the challenging care environment, and the moderate health care resources, competence development and the utilisation of digitalisation in palliative care are paramount in supporting the transition of experts into the palliative care practice environment.General objective of the project is to enhance the competences in palliative care in China through education and training to improve the quality of life for citizens. Project develops the competences of current and future health care professionals in China to transform the palliative care theory and practice to impact the target groups and the society in the long-term. As recognised by the European Association for Palliative Care (EAPC), palliative care competences need to be developed in collaboration. This includes shared willingness to learn from each other to improve the sought outcomes in palliative care (EAPC 2019). Since all individuals have a right to health care, project develops person-centered and culturally sensitive practices taking into consideration ethics and social norms. As concepts around palliative care can focus on physical, psychological, social, or spiritual related illnesses (WHO 2020), project develops innovative pedagogy focusing on evidence-based practice, communication, and competence development utilising digital methods and tools. Concepts of reflection, values and views are in the forefront to improve palliative care for the future. Important aspects in project development include health promotion, digital competences and digital health literacy skills of professionals, patients, and their caregivers. Project objective is tied to the principles of the European Commission’s (EU) Digital Decade that stresses the importance of placing people and their rights in the forefront of the digital transformation, while enhancing solidarity, inclusion, freedom of choice and participation. In addition, concepts of safety, security, empowerment, and the promotion of sustainable actions are valued. (European Commission: Digital targets for 2030).Through the existing collaboration, strategic focus areas of the partners, and the principles of the call, the PalcNet project consortium was formed by the following partners: JAMK University of Applied Sciences (JAMK ), Ramon Llull University (URL), Hanze University of Applied Sciences (HUAS), Beijing Union Medical College Hospital (PUMCH), Guangzhou Health Science College (GHSC), Beihua University (BHU), and Harbin Medical University (HMU). As project develops new knowledge, innovations and practice through capacity building, finalisation of the consortium considered partners development strategy regarding health care, (especially palliative care), ability to create long-term impact, including the focus on enhancing higher education according to the horizontal priority. In addition, partners’ expertise and geographical location was also considered important to facilitate long-term impact of the results.Primary target groups of the project include partner country’s (China) staff members, teachers, researchers, health care professionals and bachelor level students engaging in project implementation. Secondary target groups include those groups who will use the outputs and results and continue in further development in palliative care upon the lifetime of the project.
The ELSA AI lab Northern Netherlands (ELSA-NN) is committed to the promotion of healthy living, working and ageing. By investigating cultural, ethical, legal, socio-political, and psychological aspects of the use of AI in different decision-makingcontexts and integrating this knowledge into an online ELSA tool, ELSA-NN aims to contribute to knowledge about trustworthy human-centric AI and development and implementation of health technology innovations, including AI, in theNorthern region.The research in ELSA-NN will focus on developing and mapping ELSA knowledge around three general concepts of importance for the development, monitoring and implementation of trustworthy and human-centric AI: availability, use,and performance. These concepts will be explored in two lines of research: 1) use case research investigating the use of different AI applications with different types of data in different decision-making contexts at different time periods duringthe life course, and 2) an exploration among stakeholders in the Northern region of needs, knowledge, (digital) health literacy, attitudes and values concerning the use of AI in decision-making for healthy living, working and ageing. Specificfocus will be on investigating low social economic status (SES) perspectives, since health disparities between high and low SES groups are growing world-wide, including in the Northern region and existing health inequalities may increase with theintroduction and use of innovative health technologies such as AI.ELSA-NN will be integrated within the AI hub Northern-Netherlands, the Health Technology Research & Innovation Cluster (HTRIC) and the Data Science Center in Health (DASH). They offer a solid base and infrastructure for the ELSA-NNconsortium, which will be extended with additional partners, especially patient/citizens, private, governmental and researchrepresentatives, to have a quadruple-helix consortium. ELSA-NN will be set-up as a learning health system in which much attention will be paid to dialogue, communication and education.
