The basic level of postural control is functionally active from early infancy onwards: young infants possess a repertoire of direction-specific postural adjustments. Whether or not direction-specific adjustments are used depends on the child's age and the nature of the postural task. The second level of control emerges after 3 months: children start to develop the capacity to adapt postural activity to environmental constraints. But the adult form of postural adaptation first emerges after adolescence. Children with cerebral palsy (CP) in general have the ability to generate direction-specific adjustments, but they show a delayed development in the capacity to recruit direction-specific adjustments in tasks with a mild postural challenge. Children with CP virtually always have difficulties in the adaptation of direction-specific activity. The limited data available on the effect of intervention on postural development suggest that intervention involving active trial and error experience may accelerate postural development in typically developing infants and may improve postural control in children with or at high risk for a developmental motor disorder.
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Objectives: Participation is considerably restricted in children and adolescents with acquired brain injury (ABI) as compared to their healthy peers. This systematic review aims to identify which factors are associated with participation in children and adolescents with ABI. Methods: A systematic search in Medline and various other electronic databases from January 2001–November 2014 was performed. All clinical studies describing determinants of participation at least 1 year after the diagnosis of ABI by means of one or more pre-defined instruments in patients up to 18 years of age were included. Extracted data included study characteristics, patient characteristics, participation outcome and determinants of participation (categorized into: health conditions (including characteristics of ABI), body functions and structures, activities, personal factors and environmental factors). The methodological quality of the studies was evaluated based on three quality aspects (selection, information and statistical analysis bias) and scored as low, moderate or high. Results: Eight studies using an explicit participation outcome measure were selected after review, including a total of 1863 patients, with a follow-up ranging from 1 up to 288 months. Three studies included patients with a traumatic or a non-traumatic brain injury (TBI or NTBI) and five studies with only TBI patients. Factors consistently found to be associated with more participation restrictions were: greater severity of ABI, impaired motor, cognitive, behavioural and/or sensory functioning, limited accessibility of the physical environmentand worse family functioning. Fewer participation problems were associated with a supportive/nurturing parenting style, higher household income, acceptance and support in the community and availability of special programmes. The overall methodological quality of the included studies was high in two and moderate in six studies. Conclusion: This systematic review shows that only a few, moderate quality, studies on the determinants of participation after paediatric ABI using recommended explicit measurement instruments are available. Various components of the ICF model: health condition, body functions and structures and environmental factors were consistently found to be associated with participation. More methodologically sound studies, using the recommended explicit outcome measures, a standardized set of potential determinants and longterm follow-up are suggested to increase the knowledge on participation in children and youth with ABI.
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Poster van ons onderzoek naar de sociaal-maatschappelijke impact van het Wereldkampioenschap CP voetbal in Drenthe 2011. Gepresenteerd tijdens een symposium van het lectoraat Praktijkgerichte Sportwetenschap.
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The aim of the present thesis was to contribute to the improvement of patient care communication across the integrated care setting of children with cerebral palsy. Hereto, we followed two subsequent phases: 1) obtaining a better understanding of the experienced quality of patient care communication across the integrated care setting of cerebral palsy in three Dutch care regions; and 2) investigating the feasibility and usability of an eHealth application to improve patient care communication in these care regions.
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Background: Traumatic brain injury (TBI) is in the developed countries the most common cause of death and disability in childhood. Aim: The purpose of this study is to estimate the incidence of TBI for children and young people in an urbanised region of the Netherlands and to describe relevant characteristics of this group. Methods: Patients, aged 1 month - 24 years who presented with traumatic brain injury at the Erasmus University Hospital (including the Sophia Children's Hospital) in 2007 and 2008 were included in a retrospective study. Data were collected by means of diagnosis codes and search terms for TBI in patient records. The incidence of TBI in the different referral areas of the hospital for standard, specialised and intensive patient care was estimated. Results: 472 patients met the inclusion criteria. The severity of the Injury was classified as mild in 342 patients, moderate in 50 patients and severe in 80 patients. The total incidence of traumatic brain injury in the referral area of the Erasmus University Hospital was estimated at 113.9 young people per 100.000. The incidence for mild traumatic brain injury was estimated at 104.4 young people, for moderate 6.1 and for severe 3.4 young people per 100.000. Conclusion: The ratio for mild, moderate and severe traumatic brain injury in children and young people was 33.7e1.8e1.In the mild TBI group almost 17% of the patients reported sequelae. The finding that 42% of them had a normal brain CT scan at admission underwrites the necessity of careful follow up of children and young people with mild TBI.
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Bij exergaming wordt oefenen (exercise) gecombineerd met serious gaming. Binnen de geriatrische revalidatie, het vakgebied van Marije Holstege, wordt hiermee de revalidant op een leuke manier uitgedaagd tot (meer of langer) bewegen. Ook Tanja Nijboer houdt zich bezig met exergaming, zowel op motorisch als cognitief vlak. De master Advanced Health Informatics Practice (AHIP)1 was benieuwd naar de waarde van exergaming en ging het gesprek aan.
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PurposeThe aims of this study were to adapt the Paediatric Evaluation of Disability Inventory, Dutch version (PEDI-NL) for children with cerebral visual impairment (CVI) and cerebral palsy (CP) and determine test–retest and inter-respondent reliability.MethodThe Delphi method was used to gain consensus among twenty-one health experts familiar with CVI. Test–retest and inter-respondent reliability were assessed for parents and caregivers of 75 children (aged 50–144 months) with CP and CVI. The percentage identical scores of item scores were computed, as well as the interclass coefficients (ICC) and Cronbach's alphas of scale scores over the domains self-care, mobility, and social function.ResultsAll experts agreed on the adaptation of the PEDI-NL for children with CVI. On item score, for the Functional Skills scale, mean percentage identical scores variations for test–retest reliability were 73–79 with Caregiver Assistance scale 73–81, and for inter-respondent reliability 21–76 with Caregiver Assistance scale 40–43. For all scales over all domains ICCs exceeded 0.87. For the domains self-care, mobility, and social function, the Functional Skills scale and the Caregiver Assistance scale have Cronbach's alpha above 0.88.ConclusionThe adapted PEDI-NL for children with CP and CVI is reliable and comparable to the original PEDI-NL.
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Onderzoek naar de effectiviteit van het side-event programma bij het wereldkampioenschoep CP Voetbal in Drenthe in 2011. Onderzocht is in welke mate de verschillende side-events een bijdrage leverden aan de doelstellingen van het hoofdevenement. Het onderzoek vond plaats binnen het kader van de pilot van het Ministerie van Volksgezondheid, Welzijn en Sport (VWS) om kennis te ontwikkelen over sportevenementen.
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Voor u ligt het derde boekje dat wij uitgeven naar aanleiding van de lezingenreeks ‘Kracht van Sport’. Het betreft de vijfde maal dat wij de reeks organiseren. De reeks startte in 2012 met het onderwerp; ‘Olympische Spelen in Nederland: Droom of Nachtmerrie?’, in 2013 gevolgd door ‘Kracht van Sport’ (boekje), in 2014 ‘Kracht van Sport: over de grens’, in 2015 ‘Kracht van Sport: de verbinding’ (boekje), en afgelopen voorjaar (2016) ‘Kracht van Aangepaste Sport’.
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