Background: Patient participation in goal setting is important to deliver client-centered care. In daily practice, however, patient involvement in goal setting is not optimal. Patient-specific instruments, such as the Patient Specific Complaints (PSC) instrument, can support the goal-setting process because patients can identify and rate their own problems. The aim of this study is to explore patients’ experiences with the feasibility of the PSC, in the physiotherapy goal setting. Method: We performed a qualitative study. Data were collected by observations of physiotherapy sessions (n=23) and through interviews with patients (n=23) with chronic conditions in physiotherapy practices. Data were analyzed using directed content analysis. Results: The PSC was used at different moments and in different ways. Two feasibility themes were analyzed. First was the perceived ambiguity with the process of administration: patients perceived a broad range of experiences, such as emotional and supportive, as well as feeling a type of uncomfortableness. The second was the perceived usefulness: patients found the PSC useful for themselves – to increase awareness and motivation and to inform the physiotherapist – as well as being useful for the physiotherapist – to determine appropriate treatment for their personal needs. Some patients did not perceive any usefulness and were not aware of any relation with their treatment. Patients with a more positive attitude toward questionnaires, patients with an active role, and health-literate patients appreciated the PSC and felt facilitated by it. Patients who lacked these attributes did not fully understand the PSC’s process or purpose and let the physiotherapist take the lead. Conclusion: The PSC is a feasible tool to support patient participation in the physiotherapy goal setting. However, in the daily use of the PSC, patients are not always fully involved and informed. Patients reported varied experiences related to their personal attributes and modes of administration. This means that the PSC cannot be used in the same way in every patient. It is perfectly suited to use in a dialogue manner, which makes it very suitable to improve goal setting within client-centered care.
Background: To prevent deterioration after admission to the intensive care unit (ICU), and to improve rehabilitation, the ICU team should use digital technologies to provide comprehensive and practical information alongside personalised support for survivors and their family members. However, a knowledge gap exists on the users’ preferences for such an e-health platform in ICU follow-up services. Objectives: This study aims to explore the opinions and priorities for an e-health platform, including choices in digital elements, according to survivors of critical illness and their family members. Methods: A cross-sectional survey was used among members and other interested individuals of the Dutch volunteer organisation ‘Foundation Family- and Patient-Centred Intensive Care’. An investigator-developed questionnaire was disseminated through the newsletter and social media channels of the Foundation Family- and Patient-Centred Intensive Care. The results of this member consultation were analysed and reported as descriptive statistics on demographic variables and outcome measures in opinions and priorities of the participants. Results: Most of the 227 participants were female (76%), aged 46–55 years (33%), and completed higher education (70%). The participants reported high confidence in advice delivered through an e-health platform (72%). They prioritised the provision of a guide including relevant professionals who may support them during their recovery when using an e-health platform. Conclusions: ICU survivors prioritised the provision of relevant professionals who may support them during their recovery when using an e-health platform; however, selection bias means the population studied is likely to be more digitally connected than the general ICU population. Digital solutions could cater to their information and support needs. For family members, the highest priority reported was receiving help in managing their emotional distress. The development of an e-health platform considering the opinions and priorities of this target group could contribute to a personalised recovery trajectory promoting self-management while including digital elements addressing relevant ICU follow-up services.
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AimTo synthesize the literature on the experiences of patients, families and healthcare professionals with video calls during hospital admission. Second, to investigate facilitators and barriers of implementation of video calls in hospital wards.DesignScoping review.MethodsPubMed, CINAHL and Google Scholar were searched for relevant publications in the period between 2011 and 2023. Publications were selected if they focused on experiences of patients, families or healthcare professionals with video calls between patients and their families; or between families of hospitalized patients and healthcare professionals. Quantitative and qualitative data were summarized in data charting forms.ResultsForty-three studies were included. Patients and families were satisfied with video calls as it facilitated daily communication. Family members felt more engaged and felt they could provide support to their loved ones during admission. Healthcare professionals experienced video calls as an effective way to communicate when in-person visits were not allowed. However, they felt that video calls were emotionally difficult as it was hard to provide support at distance and to use communication skills effectively. Assigning local champions and training of healthcare professionals were identified as facilitators for implementation. Technical issues and increased workload were mentioned as main barriers.ConclusionPatients, families and healthcare professionals consider video calls as a good alternative when in-person visits are not allowed. Healthcare professionals experience more hesitation towards video calls during admission, as it increases perceived workload. In addition, they are uncertain whether video calls are as effective as in-person conservations.Implications for the Clinical PracticeWhen implementing video calls in hospital wards, policymakers and healthcare professionals should select strategies that address the positive aspects of family involvement at distance and the use of digital communication skills.Patient ContributionNo patient or public contribution.
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IC-verpleegkundigen van het Radboudumc, Ziekenhuis Gelderse Vallei in Ede en Rijnstate Arnhem hebben het lectoraat Acute Intensieve Zorg van de HAN gevraagd met hen een project te starten om familieparticipatie in de basiszorg vorm te geven. Het ontbreekt verpleegkundigen aan handvatten en ondersteunende tools hoe ze familie hierbij kunnen betrekken. Daar moet dit project een antwoord op geven. Het doel is te komen tot een werkwijze en tools die voor IC-verpleegkundigen en naasten ondersteunend zijn voor het betrekken van naasten bij de basiszorg voor de IC-patiënt en het praktisch handelen te verbeteren. In dit project wordt ontwerpgericht onderzoek toegepast om gedurende het onderzoekstraject met IC-professionals en naasten een geschikte tool en werkwijze te onderzoeken, zo nodig te ontwikkelen en deze te pilottesten op toepasbaarheid. Deelvraag 1 omvat een diagnosticerend deel met een kwalitatief explorerende studie. Deze fase bestaat uit focusgroepinterviews met professionals en individuele interviews met ex-IC-patiënten en hun naasten. Deelvraag 2 omvat een ontwerp-/ontwikkelgericht deel en is gericht is op “het ondersteunen van het professioneel handelen in kennisintensieve beroepen”. Het ontwerpgerichte deel bestaat uit het opstellen van ontwerpcriteria, een literatuurstudie naar beschikbare tools, ontwerpen van werkwijze en tools, testen van de werkwijze en tools, evalueren en zo nodig bijstellen van de werkwijze en tools. Deelvraag 3 omvat de testfase met voorlichting en scholing, het (pilot-)testen van de werkwijze en tools, analyse van de testresultaten, vragenlijstonderzoek en een focusgroepinterview. Dit project wordt gestart met consortiumpartners (HAN en 3 ziekenhuizen). Als niet-consortiumpartners zijn ervaringsdeskundigen (via Stichting Family and Patient Centered Intensive Care), professionals uit andere instellingen (Santeonziekenhuizen en het Reinier de Graaf Gasthuis), beroepsvereniging V&VN IC, en kennispartner IQ Healthcare betrokken. De ontwikkelde kennis en producten zullen via alle partners en hun netwerken verder worden verspreid om toepassing van familieparticipatie in de basiszorg aan IC-patiënten te vergroten.
