Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand parents’ needs and provide proper support. Design: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with six parents of severely disabled children. Results: In the literature on chronic sorrow, an important aspect has been consistently overlooked: the particular position of being a parent, experiencing an awareness of being ultimately responsible for their children. The analysis revealed how this awareness, experienced as a deeply felt ethical commitment, unconditional, largely in isolation, and without a limit in time, shaped the experience of chronic sorrow. Because of this awareness, the parents experienced themselves facing a Herculean task of navigating their intricate motions while struggling to maintain their ability to function. Conclusions: By revealing the importance of considering the unique parental position, the study enriches the concept of chronic sorrow, simultaneously offering insights into what it means to be a parent of a disabled child. These insights can improve care professionals’ responsiveness to parental needs.
Acknowledging the roles and responsibilities of business in society and the importance of realizing the Sustainable Development Goals (SDGs), contemporary management education is characterized by the integration of a rich palette of initiatives in the field of Responsible Management Education (RME). It is important though to recognize that these initiatives, however laudable, so far represent rather basic, and thus insufficient, ways of truly integrating sustainability into management education. This Provocation to Debate essay therefore identifies three perspectives for bolstering RME through the SDGs: (1) addressing the fact that SDGs incorporate trade-offs, tensions, and paradoxes; (2) realizing the SGDs implies engaging in systemic activism; and (3) embracing the SDGs comes with emotional affect. As such, this essay is an invitation to critically reflect on the roles and contents of management education in spurring sustainable development and to engage in a meaningful discussion about the value and the limitations of the SDGs for advancing the RME agenda.
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Artificial Intelligence (AI) is increasingly shaping the way we work, live, and interact, leading to significant developments across various sectors of industry, including media, finance, business services, retail and education. In recent years, numerous high-level principles and guidelines for ‘responsible’ or ‘ethical’ AI have been formulated. However, these theoretical efforts often fall short when it comes to addressing the practical challenges of implementing AI in real-world contexts: Responsible Applied AI. The one-day workshop on Responsible Applied Artificial InTelligence (RAAIT) at HHAI 2024: Hybrid Human AI Systems for the Social Good in Malmö, Sweden, brought together researchers studying various dimensions of Responsible AI in practice.This was the second RAAIT workshop, following the first edition at the 2023 European Conference on Artificial Intelligence (ECAI) in Krakow, Poland.
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In dit project ontwikkelt het HvA-lectoraat Responsible IT in co-creatie met Digital Agency Fonk een werkend prototype van een innovatieve educatieve AI-applicatie, die de taalvaardigheid van kinderen en ouders vergroot. Onderdeel van deze applicatie is een functionaliteit voor taalvereenvoudiging op basis van AI. Dit software-onderdeel analyseert tijdens het lezen het AVI niveau van de lezers en past het verhaal hier automatisch op aan. Met audio- en spraakanalyse worden fouten in o.a. uitspraak, grammatica en woordbegrip gedetecteerd, en het niveau van de tekst automatisch verhoogd of te verlaagd. Door de moeilijkheidsgraad van de tekst langzaam te verhogen wordt de leesvaardigheid verbeterd.
De maatschappelijke discussies over de invloed van AI op ons leven tieren welig. De terugkerende vraag is of AI-toepassingen – en dan vooral recommendersystemen – een dreiging of een redding zijn. De impact van het kiezen van een film voor vanavond, met behulp van Netflix' recommendersysteem, is nog beperkt. De impact van datingsites, navigatiesystemen en sociale media – allemaal systemen die met algoritmes informatie filteren of keuzes aanraden – is al groter. De impact van recommendersystemen in bijvoorbeeld de zorg, bij werving en selectie, fraudedetectie, en beoordelingen van hypotheekaanvragen is enorm, zowel op individueel als op maatschappelijk niveau. Het is daarom urgent dat juist recommendersystemen volgens de waarden van Responsible AI ontworpen worden: veilig, eerlijk, betrouwbaar, inclusief, transparant en controleerbaar.Om op een goede manier Responsible AI te ontwerpen moeten technische, contextuele én interactievraagstukken worden opgelost. Op het technische en maatschappelijke niveau is al veel vooruitgang geboekt, respectievelijk door onderzoek naar algoritmen die waarden als inclusiviteit in hun berekening meenemen, en door de ontwikkeling van wettelijke kaders. Over implementatie op interactieniveau bestaat daarentegen nog weinig concrete kennis. Bekend is dat gebruikers die interactiemogelijkheden hebben om een algoritme bij te sturen of aan te vullen, meer transparantie en betrouwbaarheid ervaren. Echter, slecht ontworpen interactiemogelijkheden, of een mismatch tussen interactie en context kosten juist tijd, veroorzaken mentale overbelasting, frustratie, en een gevoel van incompetentie. Ze verhullen eerder dan dat ze tot transparantie leiden.Het ontbreekt ontwerpers van interfaces (UX/UI designers) aan systematische concrete kennis over deze interactiemogelijkheden, hun toepasbaarheid, en de ethische grenzen. Dat beperkt hun mogelijkheid om op interactieniveau aan Responsible AI bij te dragen. Ze willen daarom graag een pattern library van interactiemogelijkheden, geannoteerd met onderzoek over de werking en inzetbaarheid. Dit bestaat nu niet en met dit project willen we een substantiële bijdrage leveren aan de ontwikkeling ervan.
Denim Democracy from the Alliance for Responsible Denim (ARD) is an interactive exhibition that celebrates the journey and learning of ARD members, educates visitors about sustainable denim and highlights how companies collaborate together to achieve results. Through sight, sound and tactile sensations, the visitor experiences and fully engages sustainable denim production. The exhibition launches in October 2018 in Amsterdam and travels to key venues and locations in the Netherlands until April 2019. As consumers, we love denim but the denim industry, like other sub-sectors in the textile, apparel and footwear industries, faces many complex sustainability challenges and has been criticized for its polluting and hazardous production practices. The Alliance for Responsible Denim project brought leading denim brands, suppliers and stakeholders together to collectively address these issues and take initial steps towards improving the ecological sustainability impact of denim production. Sustainability challenges are considered very complex and economically undesirable for individual companies to address alone. In denim, small and medium sized denim firms face specific challenges, such as lower economies of scale and lower buying power to affect change in practices. There is great benefit in combining denim companies' resources and knowledge so that collective experimentation and learning can lift the sustainability standards of the industry and lead to the development of common standards and benchmarks on a scale that matters. If meaningful, transformative industrial change is to be made, then it calls for collaboration between denim industry stakeholders that goes beyond supplier-buyer relations and includes horizontal value chain collaboration of competing large and small denim brands. However collaboration between organizations, and especially between competitors, is highly complex and prone to failure. The research behind the Alliance for Responsible Denim project asked a central research question: how do competitors effectively collaborate together to create common, industry standards on resource use and benchmarks for improved ecological sustainability? To answer this question, we used a mixed-method, action research approach. The Alliance for Responsible Denim project mobilized and facilitated denim brands to collectively identify ways to reduce the use of water and chemicals in denim production and then aided them to implement these practices individually in their respective firms.
![Prevalence of responsible research practices among academics in The Netherlands [version 2; peer review: 2 approved]](https://publinova-harvester-content-prod.s3.amazonaws.com/thumbnails/files/previews/pdf/20240419024525240089.f5_0352_4033_99e3_b9d3476cb04f_110664_gowri_gopalakrishn-thumbnail-400x300.png)
