Background: To determine whether adolescents with generalized hypermobility spectrum disorder/hypermobile Ehlers-Danlos syndrome (G-HSD/hEDS) show changes in the level of disability, physical functioning, perceived harmfulness and pain intensity after completing multidisciplinary rehabilitation treatment.Methods: Pre-test post-test design. Fourteen adolescents with G-HSD/hEDS participated. The multi-disciplinary rehabilitation treatment consisted of a combination of physical training and exposure in vivo. Physical training aims to improve aerobic capacity, muscle strength and propriocepsis for compensating hypermobility. Exposure in vivo aims to decrease disability and pain-related fear. Pre- and post-treatment assessments were conducted to assess the level of disability, physical functioning (motor performance, muscle strength and physical activity level), perceived harmfulness and pain intensity.Results: After completing multidisciplinary rehabilitation treatment, the adolescents showed a significant and clinically relevant improvement (improvement of 67%, p < 0.01) in functional disability. Furthermore, significant improvements were found in motor performance (p < 0.01), muscle strength (p < 0.05), perceived harmfulness (p < 0.01) and pain intensity (p < 0.01) after completing multidisciplinary rehabilitation treatment.Conclusion: Multidisciplinary rehabilitation treatment leads to a significantly and clinically relevant improvement in the level of disability for adolescents with G-HSD/hEDS. Positive effects were also found in physical functioning, perceived harmfulness and pain intensity. Although the results of this multidisciplinary rehabilitation treatment for adolescents with G-HSD/hEDS are promising, further study is needed to confirm these findings in a randomized design.
Aim To provide insight into the basic characteristics of decision making in the treatment of symptomatic severe aortic stenosis (SSAS) in Dutch heart centres with specific emphasis on the evaluation of frailty, cognition, nutritional status and physical functioning/functionality in (instrumental) activities of daily living [(I)ADL]. Methods A questionnaire was used that is based on the European and American guidelines for SSAS treatment. The survey was administered to physicians and non-physicians in Dutch heart centres involved in the decision-making pathway for SSAS treatment. Results All 16 Dutch heart centres participated. Before a patient case is discussed by the heart team, heart centres rarely request data from the referring hospital regarding patients’ functionality (n = 5), frailty scores (n = 0) and geriatric consultation (n = 1) as a standard procedure. Most heart centres ‘often to always’ do their own screening for frailty (n = 10), cognition/mood (n = 9), nutritional status (n = 10) and physical functioning/functionality in (I)ADL (n = 10). During heart team meetings data are ‘sometimes to regularly’ available regarding frailty (n = 5), cognition/mood (n = 11), nutritional status (n = 8) and physical functioning/functionality in (I)ADL (n = 10). After assessment in the outpatient clinic patient cases are re-discussed ‘sometimes to regularly’ in heart team meetings (n = 10). Conclusions Dutch heart centres make an effort to evaluate frailty, cognition, nutritional status and physical functioning/functionality in (I)ADL for decision making regarding SSAS treatment. However, these patient data are not routinely requested from the referring hospital and are not always available for heart team meetings. Incorporation of these important data in a structured manner early in the decision-making process may provide additional useful information for decision making in the heart team meeting.
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This systematic review evaluates the implementation of treatment integrity procedures in outcome studies of youth interventions targeting behavioral problems. The Implementation of Treatment Integrity Procedures Scale (ITIPS), developed by Perepletchikova, Treat, and Kazdin (2007), was adapted (ITIPS-A) and used to evaluate 32 outcome studies of evidence-based interventions for youths with externalizing behavioral problems. Integrity measures were found to be still rare in these studies. Of the studies that took integrity into account, 80% approached adequacy in implementing procedures for treatment integrity. The ITIPS-A is recommended as an instrument to guide development of integrity instruments and the implementation of treatment integrity procedures in youth care.
Aanleiding Sinds kort nemen zorgprofessionals en onderzoekers in Nederland initiatieven om mensen met een licht verstandelijke beperking (LVB) zo lang mogelijk te laten functioneren in de eigen thuissituatie. Een manier om dit te doen is de inzet van zogenoemde Functional Assertive Community Treatment (FACT) teams. Deze teams gebruiken voornamelijk verbale interventies. Maar mensen met een LVB hebben moeite met het verwerken van verbale informatie. Vaktherapie kan juist met non-verbale en ervaringsgerichte methodieken goed aansluiten bij deze groep. Dit innovatieprogramma richt zich op de vraag van vaktherapeuten hoe en in welke vorm zij, in of rondom FACT LVB-teams, mensen met een LVB kunnen helpen. Doelstelling Het doel van de deelnemers aan het project is de zorg en ondersteuning van mensen met een LVB in de eigen thuissituatie (buurt/wijk) te verbeteren. Liefst zodanig dat deze mensen minder vaak hoeven te worden (her)opgenomen in een behandelcentrum. Het doel van het project is om de meerwaarde vast te stellen van de inzet van vaktherapie in of rondom FACT LVB teams bij het realiseren van deze ambitie. Het project is gefaseerd opgebouwd. In de eerste fase worden de vaktherapeutische behandelvormen bepaald. Vervolgens worden efficiënte interprofessionele werkwijzen en een vaktherapeutische behandel- & ondersteuningsroute vastgesteld, en ten slotte wordt het project geëvalueerd. Beoogde resultaten Het project biedt resulteert in een handreiking voor professionals om interprofessioneel samen te werken in de wijk voor mensen met LVB. Binnen het onderwijs levert het project een bijdrage aan een minor 'Wijkgerichte zorg & ondersteuning'. Het biedt een leerwerkplaats LVB voor studenten vaktherapie en aanpalende gebieden. De handreiking wordt geïmplementeerd in de opleidingen die opleiden tot vaktherapeut. Zogenaamde 'battles', waarin interprofessioneel samenwerken aan problemen vanuit de praktijk en het beste idee bekroond wordt met een stimuleringsprijs, zorgen voor verdere ontwikkeling. Publicaties in vakliteratuur zorgen voor verspreiding van de projectresultaten. De deelnemers aan het project zullen aansluiting zoeken bij symposia - regionaal, nationaal en internationaal - en bijeenkomsten buiten en binnen het netwerk om de resultaten aan een breed publiek te presenteren.
Recycling of plastics plays an important role to reach a climate neutral industry. To come to a sustainable circular use of materials, it is important that recycled plastics can be used for comparable (or ugraded) applications as their original use. QuinLyte innovated a material that can reach this goal. SmartAgain® is a material that is obtained by recycling of high-barrier multilayer films and which maintains its properties after mechanical recycling. It opens the door for many applications, of which the production of a scoliosis brace is a typical example from the medical field. Scoliosis is a sideways curvature of the spine and wearing an orthopedic brace is the common non-invasive treatment to reduce the likelihood of spinal fusion surgery later. The traditional way to make such brace is inaccurate, messy, time- and money-consuming. Because of its nearly unlimited design freedom, 3D FDM-printing is regarded as the ultimate sustainable technique for producing such brace. From a materials point of view, SmartAgain® has the good fit with the mechanical property requirements of scoliosis braces. However, its fast crystallization rate often plays against the FDM-printing process, for example can cause poor layer-layer adhesion. Only when this problem is solved, a reliable brace which is strong, tough, and light weight could be printed via FDM-printing. Zuyd University of Applied Science has, in close collaboration with Maastricht University, built thorough knowledge on tuning crystallization kinetics with the temperature development during printing, resulting in printed products with improved layer-layer adhesion. Because of this knowledge and experience on developing materials for 3D printing, QuinLyte contacted Zuyd to develop a strategy for printing a wearable scoliosis brace of SmartAgain®. In the future a range of other tailor-made products can be envisioned. Thus, the project is in line with the GoChem-themes: raw materials from recycling, 3D printing and upcycling.
