AIM: The objectives of this study were (i) to develop two cerebral visual impairment motor questionnaires (CVI-MQ's) for children with cerebral palsy (CP): one for children with Gross Motor Function Classification System (GMFCS) levels I, II and III and one for children with GMFCS levels IV and V; (ii) to describe their face validity and usability; and (iii) to determine their sensitivity and specificity.BACKGROUNDS: The initial versions of the two CVI-MQ's were developed based on literature. Subsequently, the Delphi method was used in two groups of experts, one familiar with CVI and one not familiar with CVI, in order to gain consensus about face validity and usability. The sensitivity and specificity of the CVI-MQ's were subsequently assessed in 82 children with CP with (n = 39) and without CVI (n = 43). With the receiver operating curve the cut-off scores were determined to detect possible presence or absence of CVI in children with CP.RESULTS: Both questionnaires showed very good face validity (percentage agreement above 96%) and good usability (percentage agreement 95%) for practical use. The CVI-MQ version for GMFCS levels I, II and III had a sensitivity of 1.00 and specificity of 0.96, with a cut-off score of 12 points or higher, and the version for GMFCS levels IV and V had a sensitivity of 0.97 and a specificity of 0.98, with a cut-off score of eight points or higher.CONCLUSION: The CVI-MQ is able to identify at-risk children with CP for the probability of having CVI.
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Signalen uit het veld van de (jeugd)reclassering wijzen er op dat bij jongeren met een licht verstandelijke beperking (LVB) en reclasseringscontact huisvesting één van de leefgebieden is waarop zich problemen voordoen. (Jeugd)reclasseringswerkers geven daarbij aan dat het ontbreken van een eigen woonplek jongeren met een LVB extra kwetsbaar en beinvloedbaar maakt, wat leidt tot een verhoogde kans op recidive. Ook geven werkers aan dat veel hulpverleningsinstanties niet goed in staat zijn om voor deze specifieke doelgroep een hulpverleningstraject gericht op passende huisvesting in te zetten. Deze signalen uit het werkveld hebben er toe geleid dat de William Schrikker Groep Jeugdreclassering (WSG-JR) en het Leger des Heils Jeugdzorg & Reclassering (LJ&R) de Hogeschool Leiden en de Hogeschool Utrecht hebben gevraagd om een probleemverkenning uit te voeren naar huisvestingsproblematiek bij jongeren met een LVB en reclasseringscontact
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Background: To date, there is no evidence-based functional therapy programme available for children with both cerebral palsy (CP) and cerebral visual impairment (CVI). This study evaluates an individually targeted functional therapy programme adapted for these children experiencing difficulties with gross motor functioning and functional skills. Methods: Participants: Five children with CP and CVI, mean (SD) age 114 (52) months, participated in this study. Intervention: Participants were assigned to an 18-week functional therapy programme including nine weeks of individual functional therapy aimed at improving gross motor function followed by nine weeks of daily training of functional skills from the parents/caregivers. Analyses: The Related Samples Wilcoxon Signed Rank Test with a significance level of p<.05 was utilised to detect possible significant differences between the pre- and post-test. Results: According to the Goal Attainment Scaling (GAS), each child improved gross motor functioning. All the children also scored significantly higher in the section Functional Skills in the domains self-care and mobility as well as in the section Caregiver Assistance in the domain of self-care. Conclusion: This adapted individually functional therapy programme suggests improved gross motor functioning and functional skills in children with CP and CVI.
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