Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (or dementia, but there is a lack of clarity about how everyday life is perceived from this insiderinsider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MC I and dementia living at home.
Increasing attention has been paid to the ‘voice’ of people living with mild cognitive impairment (MCI) or dementia, but there is a lack of clarity about how everyday life is perceived from this insider’s perspective. This study aimed to explore the everyday life experiences, challenges and facilitators of individuals with MCI and dementia living at home. A scoping review of qualitative studies, guided by the Joanna Briggs Institute Reviewers Manual, was conducted. Eight databases were searched, resulting in 6345 records, of which 58 papers published between 2011 and 2021 were included. Analysis was carried out by descriptive content analysis. Findings were categorized into seven spheres of everyday life: experiences related to the condition, self, relationships, activities, environment, health and social care and public opinions. The results show many disruptions and losses in everyday life and how people try to accommodate these changes. In all areas of everyday life, people show a deep desire to have reciprocal relationships, stay engaged through participation in activities and have a sense of belonging in the community. However, more research is needed on the factors that promote and impede the sense of reciprocity and belonging.
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In de lerarenopleiding wordt aandacht besteed aan het ontwikkelen van pedagogisch handelen waarbij aangesloten wordt bij de ‘bekwaamheidseisen voor leraren basisonderwijs’. Het gaat dan om de ontwikkeling van pedagogische kennis en kunde en het stimuleren van bewustwording van het eigen handelen. Het expliciteren van het pedagogisch handelen van leraren is vaak nog lastig en blijft impliciet. Aanstaande leraren lijken zich wel bewust van het belang van hun pedagogische opdracht, maar kunnen hun pedagogisch handelen soms lastig verwoorden, onderbouwen of expliciteren. Zo ook bij het creëren van een oefenplaats voor burgerschapsvorming. Het ontbreekt hen aan taal om situaties te herkennen en hun pedagogisch handelen te duiden, terwijl ze er wel degelijk vorm aan geven. Dit onderzoeksproject heeft als doel om (aanstaande) leraren te ondersteunen bij het expliciteren van hun pedagogische opdracht bij het creëren van een oefenplaats voor burgerschapsvorming. Met behulp van de centrale vraag: “Op welke wijze kunnen alledaagse ervaringen – gericht op pedagogisch handelen bij het creëren van een oefenplaats voor burgerschapsvorming – benut worden om het handelen van (aanstaande) leraren te verstevigen?” wil de postdoc inzicht creëren in: - de manieren om alledaagse pedagogische ervaringen tot uitdrukking te brengen; en - de manier waarop deze ervaringen gebruikt kunnen worden om (aanstaande) leraren te ondersteunen bij de bewustwording van hun pedagogisch handelen en het zodoende te verstevigen. Het startpunt voor bewustwording is het expliciteren van alledaagse pedagogische ervaringen, zogenaamde lived experiences. Deze zijn de basis voor reflectie, dialoog met anderen en daarmee bewustwording. Het delen van verhalen over praktijkervaringen wordt gezien als een belangrijk startpunt bij het ontwikkelen van pedagogisch handelen . Bovenstaande sluit aan bij het instellingsplan 2017-2022 genaamd ‘Le(ra)ren met Lef’ en het onderzoeksprofiel van het onderzoekscentrum. De hbo-postdoc besteedt 50% van haar tijd aan onderzoek, de andere 50% wordt besteed aan het geven van onderwijs.
We had been involved in the redesign of the 4 Period Rooms of the Marquise Palace, also called the Palace of Secrets, in Bergen op Zoom. This design was based on the biography of a historical figure: Marie Anne van Arenberg, whose dramatic life was marked by secrets. Each of the 4 rooms represents a turning moment in Marie Anne’s story: the official marriage, the secret marriage and the betrayal, the dilemma and choice, with, in a final room, the epilogue. These different episodes are reflected in the way the rooms are furnished: the ballroom, the bedroom, the dining room. The Secret Marquise as design and exhibition has brought more visitors to the museum. As designers and researchers, however, we were interested in understanding more about this success, and, in particular, in understanding the visitors experience, both emotionally and sensorially at different moments/situations during the story-driven experience.In the fall of 2021, the visitors’ lived experience was evaluated using different approaches: a quantitative approach using biometric measurements to register people’s emotions during their visit, and a qualitative one consisting of a combination of observations, visual imagery, and interpretative phenomenological analysis (IPA).Qualitatively, our aim was to understand how respondents made sense of Marie Anne’s story in the way in which this was presented throughout the exhibition. We specifically looked at the personal context and frame of reference (e.g., previous experiences, connection to the visitor’s own life story, associations with other stories from other sources). In the design of the rooms, we used a combination of digital/interactive elements (such as a talking portrait, an interactive dinner table, an interactive family painting), and traditional physical objects (some 17th century original objects, some reproductions from that time). The second focal point of the study is to understand how these different elements lead the visitors experience.
Digital technologies in public spaces have become more prescient, capable, and invisible. As a result, the need to explain and mediate these technologies has become more urgent. Current processes for designing digital trust interaction protocols, visual languages, and interfaces for the urban environment have been dominated by governing actors: policing, government, and tech-companies. When communities are involved in the design process, their participation is limited to formats these organisations prescribe. By default, these designs exclude the lived technological experiences of communities that use the built environment. The outcome is a lopsided appraisal of digital trust, and designs that are insufficiently transparent and equitable– and as a result, not understood and embraced by the communities who must use them. This design-research aims to develop prototypes that include how urban interactive technologies are ‘lived’ in the spaces where they are implemented. These experiences will be teased-out through site-specific aesthetic and performative actions, which in turn inform the design process. The envisioned contribution includes ways of ’doing’ to the field of situated design, and concrete prototypes for alternative digital trust protocols, visual languages, and interfaces. By flipping the current approach on its head, this research argues that the practical and ethical departure points for addressing digital ‘trust deficits’ are already within the diverse communities who use the built environment.
