Background: To determine whether adolescents with generalized hypermobility spectrum disorder/hypermobile Ehlers-Danlos syndrome (G-HSD/hEDS) show changes in the level of disability, physical functioning, perceived harmfulness and pain intensity after completing multidisciplinary rehabilitation treatment.Methods: Pre-test post-test design. Fourteen adolescents with G-HSD/hEDS participated. The multi-disciplinary rehabilitation treatment consisted of a combination of physical training and exposure in vivo. Physical training aims to improve aerobic capacity, muscle strength and propriocepsis for compensating hypermobility. Exposure in vivo aims to decrease disability and pain-related fear. Pre- and post-treatment assessments were conducted to assess the level of disability, physical functioning (motor performance, muscle strength and physical activity level), perceived harmfulness and pain intensity.Results: After completing multidisciplinary rehabilitation treatment, the adolescents showed a significant and clinically relevant improvement (improvement of 67%, p < 0.01) in functional disability. Furthermore, significant improvements were found in motor performance (p < 0.01), muscle strength (p < 0.05), perceived harmfulness (p < 0.01) and pain intensity (p < 0.01) after completing multidisciplinary rehabilitation treatment.Conclusion: Multidisciplinary rehabilitation treatment leads to a significantly and clinically relevant improvement in the level of disability for adolescents with G-HSD/hEDS. Positive effects were also found in physical functioning, perceived harmfulness and pain intensity. Although the results of this multidisciplinary rehabilitation treatment for adolescents with G-HSD/hEDS are promising, further study is needed to confirm these findings in a randomized design.
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With the rise of chronic diseases as the number one cause of death and disability among urban populations, it has become increasingly important to design for healthy environments. There is, however, a lack of interdisciplinary approaches and solutions to improve health and well-being through urban planning and design. This case study offers an HCI solution and approach to design for healthy urban structures and dynamics in existing neighborhoods. We discuss the design process and design of ROOT, an interactive lighting system that aims to stimulate walking and running through supportive, collaborative and social interaction.
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Background: Determining what constitutes an excellent allied health care professional (AHCP) is important, since this is what will guide the development of curricula for training future physical therapists, oral hygienists, speech therapists, diagnostic radiographers, and dietitians. This also determines the quality of care.Aim: To describe perspectives of AHCPs on which characteristics are commonly associated with an excellent AHCP.Methods: AHCPs’ perspectives were derived from three focus group discussions. Twenty-one health care professionals participated. The final analysis of the focus group discussions produced eight domains, in which content validity was obtained through a Delphi panel survey of 27 contributing experts.Results: According to the survey, a combination of the following characteristics defines an excellent AHCP: (1) cognizance, to obtain and to apply knowledge in a broad multidisciplinary health care field; (2) cooperativity, to effectively work with others in a multidisciplinary con¬text; (3) communicative, to communicate effectively at different levels in complex situations; (4) initiative, to initiate new ideas, to act proactively, and to follow them through; (5) innovative, to devise new ideas and to implement alternatives beyond current practices; (6) introspective, to self-examine and to reflect; (7) broad perspective, to capture the big picture; and (8) evidence-driven, to find and to use scientific evidence to guide one’s decisions.Conclusion: The AHCPs perspectives can be used as a reference for personal improvement for supervisors and professionals in clinical practice and for educational purposes. These perspectives may serve as a guide against which talented students can evaluate themselves.
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ObjectiveFirst, to make an inventory of activity limitations commonly reported by knee osteoarthritis (OA) patients undergoing multidisciplinary rehabilitation. Second, to evaluate treatment outcome using the Patient Specific Functional Scale (PSFS) and compare it to the Western Ontario and McMasters Universities Osteoarthritis Index physical function subscale (WOMAC-pf).DesignAn observational study with assessments before and immediately after multidisciplinary rehabilitation. Five hundred and thirteen patients used the PSFS, a patient-reported tool to identify activity limitations and score the patient's ability to perform the activity on an 11-point Numeric Rating Scale (NRS), to report three activities in which they were limited. Frequencies and percentages of their highest-prioritized activity were calculated and categorized according to the International Classification of Functioning, Disability, and Health (ICF). Paired-samples T-tests were used to analyze the change in ability to perform the activities. Effect sizes of PSFS and WOMAC-pf were compared.ResultsMost patients indicated limitations in walking, walking up/down stairs, prolonged standing, and standing up from a chair. Following these common activities, 26 different activities were identified. The majority of these highest-prioritized activities fell under the first-level ICF category of Mobility. The ability to perform all activities significantly improved after treatment. Effect sizes ranged between 0.60 and 0.97 and were greater than the effect size of the WOMAC-pf (0.41).ConclusionKnee OA patients who undergo multidisciplinary rehabilitation exhibit improvements in performing daily activities. The PSFS is a valuable tool to evaluate patient-specific activity limitations and seems to capture improvements in activity limitations beyond the WOMAC-pf.
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For creating sports innovations we need tools to collect data on physical activity behaviour. Collecting data is time-consuming and expensive. Therefore, sharing data and using it to answer multiple research questions is desirable. Especially in larger multidisciplinary research projects, it is beneficial if a diverse data set can be collected effortlessly. For this, we created a smartphone app that can be used for scientific data collection on physical activity behavior in sport research.The requirement for the app was that the different research partners could contribute, use the app independently and that the individual contributions could be easily combined into a larger app. We created a base app which provides a framework for easy implementation of custom modules. Each functionality in the app is represented in a module and can be created by different parties. The app uses the EventBus framework [1] to allow easy communication between independent modules including an independent GUI. In our presentation we will further explain this independance using the beacon physical activity app BAMBEA [4] .Over the span of three years we made a sensor collection-, emotion input-, beacon scanner-, beacon handler-, goal-, reward- and message/notification-module. We combined different modules into different versions. A first version initially focused on running behaviour and used a movement- and a heart rate-module that were originally created for research [2] and different modules of partners (like gait step frequency and emotion detection). The app was extended with a GUI to test the user experience of the modules [3]. Finally, the framework was updated and combined different modules and a new GUI for a bootcamp app [4]. In conclusion we experienced the modular framework as a good solution for reuse and collaboration within multidisciplinary research projects. By allowing for the independent development of modules only intense communication between partners was needed when conflicts occurred between modules. Another advantage was that partners could develop their module in their desired programming language and later integrate their module in the app by providing a small wrapper. We consider the framework approach as a success for projects where close collaboration is desired with a multidisciplinary team. However, we would not advise this approach when it can be expected that multiple heavy performance solutions are required and resources like data collection, storage and backup cannot be shared. In that case a tight integration and continuous collaborative implementation is likely a preferred approach.This research is made possible by the Amsterdam University of Applied Sciences research programs Urban Vitality, Amsterdam Creative Industries Network, the Amsterdam Institute of Sport Sciences (AISS) and by the Dutch National program COMMIT/.
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A definition of the concepts ‘multidisciplinairy and transdisciplinary work’ and the different types of reaction of social work towards the emergence of multidisciplinary and transdisciplinary approaches.
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The growing importance of technology in health care calls for interdisciplinary study programmes in which students with various backgrounds work together in exploring and designing new solutions for real-life problems. The Centre of Healthcare and Technology of Fontys University of Applied Sciences (Fontys EGT), the Netherlands, is presented as an example of how new initiatives in the field of education at the crossroads of health care and technology can be shaped and implemented in practice. A case study illustrating one of the student projects is provided as an example of the approach to educational innovation and interdisciplinary collaboration.
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Introduction: The implementation of oncology care pathways that standardize organizational procedures has improved cancer care in recent years. However, the involvement of “authentic” patients and caregivers in quality improvement of these predetermined pathways is in its infancy, especially the scholarly reflection on this process. We, therefore, aim to explore the multidisciplinary challenges both in practice, when cancer patients, their caregivers, and a multidisciplinary team of professionals work together on quality improvement, as well as in our research team, in which a social scientist, health care professionals, health care researchers, and experience experts design a research project together. Methods and design: Experience-based co-design will be used to involve cancer patients and their caregivers in a qualitative research design. In-depth open discovery interviews with 12 colorectal cancer patients, 12 breast cancer patients, and seven patients with cancer-associated thrombosis and their caregivers, and focus group discussions with professionals from various disciplines will be conducted. During the subsequent prioritization events and various co-design quality improvement meetings, observational field notes will be made on the multidisciplinary challenges these participants face in the process of co-design, and evaluation interviews will be done afterwards. Similar data will be collected during the monthly meetings of our multidisciplinary research team. The data will be analyzed according to the constant comparative method. Discussion: This study may facilitate quality improvement programs in oncologic care pathways, by increasing our real-world knowledge about the challenges of involving “experience experts” together with a team of multidisciplinary professionals in the implementation process of quality improvement. Such co-creation might be challenging due to the traditional paternalistic relationship, actual disease-/treatment-related constraints, and a lack of shared language and culture between patients, caregivers, and professionals and between professionals from various disciplines. These challenges have to be met in order to establish equality, respect, team spirit, and eventual meaningful participation.
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Effects of climate change in cities are evident and are expected to increase in the future, demanding adaptation. In order to share knowledge, raise awareness, and build capacity on climate adaptation, the first concept of a “ClimateCafé” has been utilized since 2012 in 25 events all over the world. In 8 years ClimateCafé grew into a field education concept involving different fields of science and practice for capacity building in climate change adaptation. This chapter describes the need, method, and results of ClimateCafés and provides tools for organizing a ClimateCafé in a context-specific case. Early ClimateCafés in the Philippines are compared with the ClimateCafé in Peru to elucidate the development of this movement, in which one of the participants of ClimateCafé Philippines 2016 became the co-organizer of ClimateCafé Peru in 2019. The described progress of ClimateCafés provides detailed information on the dynamic methodological aspects, holding different workshops. The workshops aim at generating context-specific data on climate adaptation by using tools and innovative data collection techniques addressing deep uncertainties that come with climate change adaptation. Results of the workshops show that context-specific, relevant, multidisciplinary data can be gathered in a short period of time with limited resources, which promotes the generation of ideas that can be used by local stakeholders in their local context. A ClimateCafé therefore stimulates accelerated climate action and support for adaptation solutions, from the international and the local, from the public and private sector, to ensure we learn from each other and work together for a climate resilient future. The methodology of ClimateCafé is still maturing and the evaluation of the ClimateCafés over time leads to improvements which are applied during upcoming ClimateCafés, giving a clear direction for further development of this methodology for knowledge exchange, capacity building, and bridging the gap between disciplines within climate adaptation.
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Facilitate multidisciplinary e-textile development by enhancing collaboration and knowledge transfer across disciplines, ultimately leading to comprehensive requirements while keeping the user interaction in mind. presentation during E-textiles 2023
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