Background: Current use of smartphone cameras by parents create opportunities for longitudinal home-video-assessments to monitor infant development. We developed and validated a home-video method for parents, enabling Pediatric Physical Therapists to assess infants’ gross motor development with the Alberta Infant Motor Scale (AIMS). The objective of the present study was to investigate the feasibility of this home-video method from the parents’ perspective. Methods: Parents of 59 typically developing infants (0–19 months) were recruited, 45 parents participated in the study. Information about dropout was collected. A sequential mixed methods design was used to examine feasibility, including questionnaires and semi-structured interviews. While the questionnaires inquired after the practical feasibility of the home-video method, the interviews also allowed parents to comment on their feelings and thoughts using the home-video method. Results: Of 45 participating parents, 34 parents returned both questionnaires and eight parents agreed to an interview. Parent reported effort by the infants was very low: the home-video method is perceived as similar to the normal routine of playing. The parental effort level was acceptable. The main constraint parents reported was time planning. Parents noted it was sometimes difficult to find the right moment to record the infant’s motor behavior, that is, when parents were both at home and their baby was in the appropriate state. Technical problems with the web portal, reported by 28% of the parents were also experienced as a constraint. Positive factors mentioned by parents were: the belief that the home videos are valuable for family use, receiving feedback from a professional, the moments of one-on-one attention and interaction with their babies. Moreover, the process of recording the home videos resulted in an increased parental awareness of, and insight into, the gross motor development of their infant. Conclusion: The AIMS home-video method is feasible for parents of typically developing children. Most constraints are of a practical nature that can be addressed in future applications. Future research is needed to show whether the home-video method is also applicable for parents with an infant at risk of motor development problems.
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Crying by healthcare professionals in the medical setting is a common but understudied phenomenon. We aimed to develop a questionnaire which measures the attitudes of parent towards crying pediatricians and pediatric nurses. We assessed reliability and validity in a group of parents of children who are living with, have died from or survived a life-limiting or life-threatening-condition. The development of the PACPN was based on modification of an existing questionnaire and expert input. In a cross-sectional-design, we assessed reliability and validity for both pediatricians and pediatric nurses. Dimensionality was assessed using principal component analysis (PCA). Cronbach’s alphas were calculated for each subscale. For construct validity, participants were asked to rate an additional question regarding the goal to measure parents’ attitudes towards crying pediatricians/pediatric nurses. We hypothesized that a higher score would have a strong positive correlation with the total score of the PACPN. At the end of the questionnaire, participants were asked to rate and comment the completeness. The developed 25-item questionnaire was completed by 116 parents. The PCA revealed two dimensions: (1) family’s circumstances; (2) personal circumstances of the pediatrician/pediatric nurse. Internal consistency was good (pediatricians,.81–.93; pediatric nurses,.83–.93). The hypothesis regarding construct validity was confirmed (Spearman’s rho =.71–.75). The completeness score was 7.7 (min–max 1–10, SD = 1.51). Conclusion: The PACPN showed good internal consistency and some degree of construct validity. We assume that by adding some items with nuance to the situation and the degree of crying the completeness of the questionnaire will improve. (Table presented.)
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A key element in social development is interaction with others, and preterm infants have an increased risk for problems in this aspect. We aimed to gain additional insight into parents’ perception about their preterm child’s social interaction upon reaching school age. Parents informed us about their child being a little fighter, having issues of coping with their disabilities in social contexts, and how their child withdraws from situations that are overlystimulating. They also expressed their concerns about the future, how they encourage their child, and how they experience the transition to primary school. Parents’ experiences concerning the social interaction of their preterm child can be categorized into eight themes of processes in social interaction: child factors, self-regulation, real-time social interaction, long-term social interaction, parental factors, parenting, social environment, and social experiences. Our proposed model of social interaction in preterm infants visualizes theinterrelatedness between these themes in social interaction
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De grootte van de stukjes in potjes babyvoeding laat geen verschil zien op de kauwvaardigheid bij geprakt voedsel gedurende de interventieperiode (leeftijd 8-9 maanden) maar beïnvloedde wel de kauwvaardigheid bij een stukje gekookte aardappel en - wortel, als dat voor de eerste keer werd aangeboden op een leeftijd van 9 maanden.
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Medication safety in pediatrics should remain high on the agenda: Child stays sometimes longer in hospital due to damage after medication error
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BACKGROUND: Physical activity (PA) is important for children with a chronic disease. Serious games may be useful to promote PA levels among these children.OBJECTIVE: The primary purpose of this systematic review was to evaluate the effectiveness of serious games on PA levels in children with a chronic disease.METHODS: PubMed, EMBASE, PsycINFO, ERIC, Cochrane Library, and CINAHL were systematically searched for articles published from January 1990 to May 2018. Both randomized controlled trials and controlled clinical trials were included to examine the effects of serious games on PA levels in children with a chronic disease. Two investigators independently assessed the intervention, methods, and methodological quality in all articles using the Cochrane risk of bias tool. Both qualitative and quantitative analyses were performed.RESULTS: This systematic review included 9 randomized controlled trials (886 participants). In 2 of the studies, significant between-group differences in PA levels in favor of the intervention group were reported. The meta-analysis on PA levels showed a nonsignificant effect on moderate to vigorous PA (measured in minutes per day) between the intervention and control groups (standardized mean difference 0.30, 95% CI -0.15 to 0.75, P=.19). The analysis of body composition resulted in significantly greater reductions in BMI in the intervention group (standardized mean difference -0.24, 95% CI -0.45 to 0.04, P=.02).CONCLUSIONS: This review does not support the hypothesis that serious games improve PA levels in children with a chronic disease. The meta-analysis on body composition showed positive intervention effects with significantly greater reductions in BMI in favor of the intervention group. A high percentage of nonuse was identified in the study of serious games, and little attention was paid to behavior change theories and specific theoretical approaches to enhance PA in serious games. Small sample sizes, large variability between intervention designs, and limited details about the interventions were the main limitations. Future research should determine which strategies enhance the effectiveness of serious games, possibly by incorporating behavior change techniques.
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Background: The aim of this study is to investigate whether age of infant motor milestone achievement is related to levels of physical activity (PA), weight status and blood pressure at age 4–7years of age. Methods: In the Dutch GECKO (Groningen Expert Center of Kids with Obesity) Drenthe cohort, the age of achieving the motor milestone ‘walking without support’ was reported by parents. Weight status and blood pressure were assessed by trained health nurses and PA was measured using the Actigraph GT3X between age 4 and 7years. Results: Adjusted for children’s age, sex and the mother’s education level, infants who achieved walking without support at a later age, spent more time in sedentary behaviour during childhood and less time in moderate-tovigorous PA. Later motor milestones achievement was not related to higher BMI Z-score, waist circumference Zscore, diastolic or systolic blood pressure. Conclusion: The results of this study indicate that a later age of achieving motor milestone within the normal range have a weak relation to lower PA levels at later age. It is not likely that this will have consequences for weight status or blood pressure at 4–7years of age.
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Background: Marfan syndrome (MFS) is a heritable connective tissue disease caused by a defect in FBN1. The diagnosis is based on the revised Ghent criteria. The main features involve the cardiovascular, musculoskeletal, ophthalmic, pulmonary systems and facial features. Although the clinical manifestations of MFS in children are thoroughly addressed in several studies, literature on the impact of MFS on daily functioning is restricted to pediatric advice on sports and leisure participation. Therefore, the full impact of MFS on daily functioning remains unclear. The aim of this qualitative study was to explore parents' perspectives on the impact of MFS on daily functioning of children with MFS aged 4-12 years, themselves and family regarding functional performance, activities, participation, personal and environmental factors, and disease burden. Methods: In this qualitative study parents participated in individual semi-structured interviews (n = 10) and 3 focus groups (n = 5, n = 5 and n = 6). Meetings were transcribed, and data were analyzed using thematic analysis. Meaningful concepts were coded, and concepts concerning children with MFS were linked to the International Classification of Functioning, Disability and Health for Children and Youth. Thereafter themes were identified and interpreted.Results: Parents reported their children could not keep up with peers because of fatigue, pain and physical impairments. Children experienced participation restrictions in school, sports, play and other leisure activities. Parents reported their child as being different due to physical appearance, which provoked unsupportive attitudes. Parental burden was caused by high care needs, lack of support, a limited social life, and concerns about the child's development. Family burden was caused by adjusted and complex family schedules, other family members with MFS, and reproductive planning decision-making, whereas family cohesiveness and caring were positively perceived factors. Conclusions: Parents perceived a large impact of MFS on daily functioning of their children with MFS, themselves and their family. More awareness among all professionals involved in the care of children with MFS and their families is needed so that professionals can address their support needs and provide tailored interventions, rehabilitation and/or educational programs to empower and improve daily functioning of the children, parents and family.
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The purpose of this study was to examine the feasibility and validity of an Athletic Skills Track (AST) to assess fundamental movement skills among 6- to 12-year-old children in a physical education setting. 463 Dutch children (211 girls, 252 boys) completed three tests: the Körperkoordination-Test für Kinder (KTK) and two Athletic Skills Tracks (AST-1, AST-2). The validity of AST-1 and AST-2 was examined by correlating the time (sec) needed to complete the tracks and the KTK Motor Quotient (KTK MQ). Overall, there was a small correlation between AST-1 and the KTK MQ (r = - 0.474 (p = 0.01)) and a medium correlation between AST-2 and the KTK MQ (r = - 0.502 (p = 0.01)). When split up by age group the associations between the Athletic Skills Tracks and the KTK MQ were large for 12-year old children (AST-1: r = - 0.767; AST-2: r = - 0.727) and smallest for 8-year olds with a medium association (AST-1: r = - 0.501; AST-2: r = - 0.469). The results suggest that children’s motor skills can be assessed with a quick, convenient, and low-cost motor competence test in a physical education setting, i.e. an Athletic Skills Track. This is an Accepted Manuscript of an article published by Taylor & Francis in "Journal of Sports Sciences" on 3 March 2016, available online: https://doi.org/10.1080/02640414.2016.1151920
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Internationaal onderzoek laat zien dat ingrijpende jeugdervaringen, ook wel Adverse Childhood Experiences (ACE’s) genoemd, een sleutelrol spelen in de ontwikkeling van jeugdigen en hun (latere) psychische en fysieke gezondheid (o.a. Felitti et al., 1998; McLaughlin, 2016). Jeugdigen met verstandelijke beperkingen en hun ouders zijn helaas sterk ondervertegenwoordigd in internationaal onderzoek naar ACE’s, terwijl het belangrijk is dat de huidige inzichten ook kunnen bijdragen aan de verbetering van hun gezondheid en welzijn (o.a. Keesler, 2014; Northway, 2017). Uit verschillende studies blijkt namelijk dat mensen met een verstandelijke beperking vaker geestelijke en fysieke gezondheidsproblemen hebben (Northway, 2017). Daarnaast blijkt dat zij vaker worden blootgesteld aan een groter aantal ingrijpende levensgebeurtenissen (o.a. Emerson, 2015; Mason-Roberts et al., 2018) en dat deze blootstelling gerelateerd is aan een verhoogd risico op geestelijke gezondheidsproblemen (zie Vervoort-Schel et al., 2018 voor verwijzingen). De premisse van de ACE’s-studies is dat het voorkomen of verminderen van ingrijpende jeugdervaringen een positieve invloed heeft op gezondheid en welzijn in het leven (Northway, 2017). Het is veelbelovend om daar verder onderzoek naar te doen.
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