Objectives: To determine the psychometric properties of a questionnaire to assess fear of movement (kinesiophobia): the Tampa Scale for Kinesiophobia (TSK-NL Heart), and to investigate the prevalence of kinesiophobia in patients attending cardiac rehabilitation.Methods: A total of 152 patients were evaluated with the TSK-NL Heart during intake and 7 days later. Internal consistency, test-retest reliability and construct validity were assessed. For construct validity, the Cardiac Anxiety Questionnaire (CAQ) and the Hospital Anxiety and Depression Scale (HADS) were used. The factor structure of the TSK-NL Heart was determined by a principal component analysis (PCA).Results: After removal of 4 items due to low internal consistency, the TSK-NL Heart showed substantial reliability (intraclass correlation coefficient; ICC: 0.80). A strong positive correlation was found between the TSK-NL Heart and the CAQ (rs: 0.61). Strong positive correlations were found between the TSK-NL Heart and de HADS (Anxiety) (rs: 0.60) and between the TSK-NL Heart and the CAQ (rs: 0.61). The PCA revealed a 3-factor structure as most suitable (fear of injury, avoidance of physical activity, perception of risk). High levels of kinesiophobia were found in 45.4% of patients.Conclusion: The 13-item TSK-NL Heart has good psychometric properties, and we recommend using this version to assess kinesiophobia, which is present in a substantial proportion of patients referred for cardiac rehabilitation.Keywords: Tampa Scale for Kinesiophobia; cardiac rehabilitation; exercise; fear of movement; physical activity; cardiovascular disease
A loss of physical functioning (i.e., a low physical capacity and/or a low physical activity) is a common feature in patients with chronic obstructive pulmonary disease (COPD). To date, the primary care physiotherapy and specialized pulmonary rehabilitation are clearly underused, and limited to patients with a moderate to very severe degree of airflow limitation (GOLD stage 2 or higher). However, improved referral rates are a necessity to lower the burden for patients with COPD and for society. Therefore, a multidisciplinary group of healthcare professionals and scientists proposes a new model for referral of patients with COPD to the right type of exercise-based care, irrespective of the degree of airflow limitation. Indeed, disease instability (recent hospitalization, yes/no), the burden of disease (no/low, mild/moderate or high), physical capacity (low or preserved) and physical activity (low or preserved) need to be used to allocate patients to one of the six distinct patient profiles. Patients with profile 1 or 2 will not be referred for physiotherapy; patients with profiles 3–5 will be referred for primary care physiotherapy; and patients with profile 6 will be referred for screening for specialized pulmonary rehabilitation. The proposed Dutch model has the intention to get the right patient with COPD allocated to the right type of exercise-based care and at the right moment.
Background: Patients with chronic obstructive pulmonary disease (COPD) demonstrate reduced levels of daily physical activity (DPA) compared to healthy controls. This results in a higher risk of hospital admission and shorter survival. Performing regular DPA reduces these risks. Objective: To develop an eHealth intervention that will support patients with COPD to improve or maintain their DPA after pulmonary rehabilitation. Methods: The design process consisted of literature research and the iterative developing and piloting phases of the Medical Research Council (MRC) model for complex clinical interventions and the involvement of end users. Participants were healthy adults and persons with COPD. Results: The mobile phone interface met all the set requirements. Participants found that the app was stimulating and that reaching their DPA goals was rewarding. The mean (SD) scores on a 7-point scale for usability, ease of use, ease of learning, and contentment were 3.8 (1.8), 5.1 (1.1), 6.0 (1.6), and 4.8 (1.3), respectively. The mean (SD) correlation between the mobile phone and a validated accelerometer was 0.88 (0.12) in the final test. The idea of providing their health care professional with their DPA data caused no privacy issues in the participants. Battery life lasted for an entire day with the final version, and readability and comprehensibility of text and colors were favorable. Conclusions: By employing a user-centered design approach, a mobile phone was found to be an adequate and feasible interface for an eHealth intervention. The mobile phone and app are easy to learn and use by patients with COPD. In the final test, the accuracy of the DPA measurement was good. The final version of the eHealth intervention is presently being tested by our group for efficacy in a randomized controlled trial in COPD patients.
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Longaandoeningen, zoals COPD, veroorzaken problemen in het dagelijks functioneren door een afgenomen uithoudingsvermogen, benauwdheid en (bewegings-) angst. Tijdens longrevalidatie vormen inspanningstraining en het leren omgaan met dagelijkse fysieke beperkingen (zoals benauwdheid bij inspanning) de hoeksteen van de behandeling. Het is voor patiënten moeilijk om een actieve leefstijl te behouden. Na deelname aan revalidatie gaan trainingseffecten verloren door een verminderd aanbod van trainingsprikkels (reversibiliteit). Daarnaast wordt, een jaar na de revalidatie, maar liefst 20% van de patiënten opnieuw opgenomen in het ziekenhuis met een longaanval (exacerbatie). Door de verschuiving van (dure) derdelijns naar eerstelijns zorg, hebben meer patiënten toegang tot de zorg die ze nodig hebben. Hierdoor kan verergering van klachten voorkomen worden. Naast fysieke inspanning is het voor oefen- en fysiotherapeuten belangrijk om patiënten een duurzame actieve leefstijl aan te leren en het zelfmanagement van patiënten te vergroten. Een blended beweeginterventie, om het zelfmanagement (omtrent beweging, benauwdheid en beweginsgangst) van COPD patiënten te stimuleren, zowel in de praktijk als in de thuissituatie middels een eHealth toepassing, biedt mogelijk uitkomst. Echter, missen therapeuten kennis en handvatten om blended care toe te passen in de praktijk. Het doel van dit project is om samen met fysiotherapeuten en oefentherapeuten een blended care programma in te richten voor patiënten met COPD. In werkpakket 1 inventariseren we de behoeften en belemmerende factoren van een blended beweeginterventie bij therapeuten en patiënten. Op basis van deze bevindingen worden de belangrijkste elementen van de interventie geselecteerd en wordt, in co-creatie met eindgebruikers de eerste versie van de interventie ontwikkeld (WP2). Om te bepalen wat de toegevoegde waarde van de interventie is, worden de voorlopige effectiviteit en haalbaarheid onderzocht waarbij 25 eerstelijns therapeuten de blended interventie gaan gebruiken (WP3). In WP4 worden scholingsmodules ontwikkeld voor studenten en therapeuten om kennis over zelfmanagement en technologie bij COPD te vergroten.