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Development and Testing of the Aftercare Problem List, a Burn Aftercare Screening Instrument

A growing interest in person-centered care from a biopsychosocial perspective has led to increased attention to structural screening. The aim of this study was to develop an easy-to-comprehend screening instrument using single items to identify a broad range of health-related problems in adult burn survivors. This study builds on earlier work regarding content generation. Focus groups and expert meetings with healthcare providers informed content refinement, resulting in the Aftercare Problem List (APL). The instrument consists of 43 items divided into nine health domains: scars, daily life functioning, scars treatment, body perceptions, stigmatization, intimacy, mental health, relationships, financial concerns, and a positive coping domain. The APL also includes a Distress Thermometer and a question inquiring about preference to discuss the results with a healthcare provider. Subsequently, the APL was completed by 102 outpatients. To test face validity, a linear regression analysis showed that problems in three health domains, i.e., scars, mental health, and body perceptions, were significantly related to higher distress. Qualitative results revealed that a minority found the items difficult which led to further adjustment of the wording and the addition of illustrations. In summation, this study subscribes to the validity of using single items to screen for burn-related problems.

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Development and Testing of the Aftercare Problem List, a Burn Aftercare Screening Instrument

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Brave New Screens: Soma, FOMO, and Friendly Fascism after 1984

Super Bowl commercials teach us how to conceive of surveillance. While Apple promises to fight Big Brother with a personal computer, Coca-Cola invites us to think different, i.e. positively about security cameras. The whitewashing of surveillance accompanies the ‘big brotherization’ of Apple. However, the whitewashing may only be a distraction from another more subtle, more effective (and after all more amusing) progression towards a dystopian future: the constant sharing without friction and language and thus without the distance that would allow for reflection and critical thinking. In this essay, I discuss the symbolic value of the year 1984 and its link to the ongoing move from lingual to visual communication. It underlines that the television screen or smartphone is the sibling of the surveillance camera and shows why the dystopian future we fear won’t be like George Orwell’s 1984 or Anthony Burgess’ 1985.

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Brave New Screens: Soma, FOMO, and Friendly Fascism after 1984

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The anatomy of Zoom fatigue

Covid has flooded our lives with online encounters and interactions. We work, minding our image on screen, or struggle to socialise in a hall of mirrors. Geert Lovink considers what we have lost and how we can reclaim our bodies, relationships and shared physical spaces.

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The story of my first laptop

During my first visit to Japan in 1990 I got acquainted with the Toshiba DynaBook. Unlike earlier laptops, this one was small, elegant and easily fitted into a backpack. A year later I was able to purchase one. This wonder of compact technology accompanied me during my travels to Berlin and Eastern Europe in the first part of the roaring 90s when I was writing for Mediamatic magazine. Our Agentur Bilwet (Adilkno) group composed The Media Archive and Datadandy books on this machine. The laptop assisted me in my move from Dutch to English as my main writing language. Even though it did not have a color screen, and ran MS-DOS (no Windows yet), I could pretty much do everything compared to what I do now. In 1992 a friend brought a new part over from Japan that could easily be installed next to the battery: the modem. From now on I was able to dial into bulletin boards. In 1993 I got access to the internet via hacktic, the forerunner of the xs4all provider. The rest is (my personal) internet history: The Digital City, desk.nl, nettime. The machine retired when I purchased an Acer in Taiwan, in 1999. No nostalgic feelings for a primitive technology. The Dynabook remains superior: a symbol of Japanese industrial supremacy, built before its downfall—in 1992.

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Translation, Cross-Cultural Adaptation, and Psychometric Properties of Writing Readiness Inventory Tool in Context (WRITIC)

This article describes the translation and cultural adaptation process of the WRITIC (Writing Readiness Inventory Tool in Context) into European Portuguese. We examined the content and convergent validity, test-retest, and interrater reliability on the norm-referenced subdomain of the Portuguese (PT) WRITIC Task Performance (TP). To establish content validity, we consulted six experts in handwriting. Internal consistency was found with 70 children, test-retest reliability with 65, inter-rater reliability with 69, and convergent validity with 87. All participants were typically developing kindergarten children. Convergent validity was examined with the Beery–Buktenica Developmental Test of Visual-Motor Integration (Beery™VMI-6) and the Nine Hole Peg-Test (9-HPT). On content validity, we found an agreement of 93%, a good internal consistency with Cronbach’s alpha of 0.72, and an excellent test-retest and inter-rater reliability with ICCs of 0.88 and 0.93. Correlations with Beery™VMI-6 and 9-HPT were moderate (r from 0.39 to 0.65). Translation and cross-cultural adaptation of WRITIC into European Portuguese was successful. WRITIC-PT-TP is stable over time and between raters; it has excellent internal consistency and moderate correlations with Beery™VMI-6 and 9-HPT. This analysis of the European Portuguese version of WRITIC gives us the confidence to start the implementation process of WRITIC-PT in Portugal.

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Translation, Cross-Cultural Adaptation, and Psychometric Properties of Writing Readiness Inventory Tool in Context (WRITIC)

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Experiences of Norwegian Mothers Attending an Online Course of Therapeutic Writing Following the Unexpected Death of a Child

The unexpected death of a child is one of the most challenging losses as it fractures survivors’ sense of parenthood and other layers of identity. Given that not all the bereaved parents who have need for support respond well to available treatments and that many have little access to further intervention or follow-up over time, online interventions featuring therapeutic writing and peer support have strong potential. In this article we explore how a group of bereaved mothers experienced the process of participating in an online course in therapeutic writing for the integration of grief. Our research questions were: How do parents who have lost a child experience being part of an online course in therapeutic writing? What are the perceived benefits and challenges of writing in processing their grief? We followed an existential phenomenological approach and analyzed fieldwork notes (n = 13), qualitative data from the application and assessment surveys (n = 35; n = 21), excerpts from the journals of some participants (n = 3), and email correspondence with some participants (n = 5). We categorized the results in three meaning units: (1) where does my story begin? The “both and” of their silent chaos; (2) standing on the middle line: a pregnancy that does not end; (3) closures and openings: “careful optimism” and the need for community support. Participants experienced writing as an opportunity for self-exploration regarding their identities and their emotional world, as well as a means to develop and strengthen a bond with their children. They also experienced a sense of belonging, validation, and acceptance in the online group in a way that helped them make sense of their suffering. Online writing courses could be of benefit for bereaved parents who are grieving the unexpected death of a child, but do not replace other interventions such as psychotherapy. In addition to trauma and attachment informed models of grief, identity informed models with a developmental focus might enhance the impact of both low-threshold community interventions and more intensive clinical ones. Further studies and theoretical development in the area are needed, addressing dialogical notions such as the multivoicedness of the self. Lehmann OV, Neimeyer RA, Thimm J, Hjeltnes A, Lengelle R and Kalstad TG (2022) Experiences of Norwegian Mothers Attending an Online Course of Therapeutic Writing Following the Unexpected Death of a Child. Front. Psychol. 12:809848. doi: 10.3389/fpsyg.2021.809848

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Experiences of Norwegian Mothers Attending an Online Course of Therapeutic Writing Following the Unexpected Death of a Child

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The Dutch Talking Touch screen Questionnaire

The traditional paternalistic approach in health care is increasingly developing towards a patient-centered care (PCC) approach. However, not all patients are able to take advantage of the positive effects of PCC. Inadequate health literacy (HL) is an important limiting factor in the ability of patients to take on an active role and exchange information with their health care provider effectively. A provenly effective approach to improvement of provider-patient interaction and health outcomes is the use of health-related questionnaires. The aim of the research project described within this thesis was to adapt the most frequently-used questionnaire in Dutch physical therapy practice and add information and communication technology to it. A Dutch and Turkish version of the tool called Talking Touch Screen Questionnaire (TTSQ) was developed and evaluated on both usability and validity aspects. The current prototype of the tool does not yet fully solve the problems native and minority patients with low (health) literacy have with completing the adapted questionnaire. Big challenges in future development and testing the TTSQ are the recruitment of vulnerable members of the hard-to-reach native and minority target populations and finding research methods that suit the abilities and needs of these participants. This is expected to be a very challenging, labor- and time-consuming process. On the other hand, having a usable, valid and reliable TTSQ may well save a lot of time and money in both research and clinical practice in the future.

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The Dutch Talking Touch screen Questionnaire

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Shadowbook

What happens to our everyday language in the digital sphere? How does ‘the post-digital condition’ change the world in which we think about ourselves and talk to one another? In Shadowbook: Writing Through the Digital 2014-2018, Miriam Rasch investigates these questions in five experimental essays and one exposition. From the way the smartphone molds the language of desire and friendship to the possibilities of writing a ‘spreadsheet novel’ – Shadowbook is a testimony to post-digital writing by way of writing. It salutes both the beauty of the web and what hides in the shadows. Even in the bright and shiny sphere of the digital, the dark side is never far off.

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Considerations in writing short films for Virtual Production.

A presentation describing seven factors to consider during the writing process of micro-scripts (1-2 page screenplays) intended for virtual production filming. Topics include blocking, staging, camera movement, and other technical details, along with creative inspirations and using limitations as an advantage.

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Development and Testing of the Aftercare Problem List, a Burn Aftercare Screening Instrument