Background Parenting a child with profound intellectual and multiple disabilities has great implications. Parents generally rely heavily on healthcare and social welfare services in caring for the child at home. Previous studies indicated mismatch between what parents need to preserve family and personal wellbeing and what is typically provided by services. This study focused on the role of healthcare and social welfare services in childcare and aims to contribute to understanding how parents perceive their interactions with service providers. Methods We interviewed 25 Dutch parents who cared for their child at home. Data were analysed using Framework Method. Findings Two overarching themes were found: “Being the lifeline” addressed that parents had central roles in fragmented services, and “Losing ownership” highlighted that parents were constrained in living life according to own beliefs and values while interacting with providers. Conclusions Findings illuminated that many parents became overburdened and compromised heavily on agency over family thriving due to functioning of healthcare and social welfare services. Findings supported working with integrated family case managers, creating effective and proactive access to equipment and services, and enacting high quality facilities for help with childcare and respite. These are important conditions to enable parents to construct family life more autonomously and make their further contribution to society. This may also lead to improved connotations of dependence on healthcare and social welfare services.
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Personalization, production on-demand, and flexible manufacture facilities are growing within the European apparel sector, supported by national and regional public policy. These developments seem to embody a much waited “paradigm shift” in the fashion industry; a shift from global to local scale, from quantity to quality and from standard products to personalized services. Such values, however, are far from new, and scholars have already pointed out the similarities between emerging and pre-industrial systems of production and consumption. This article argues that in order to understand current developments in historical context, we should return to the process of industrialization of the apparel industry during the turn from the 19th to the 20th C, taking into account aspects of production as much as mediation and consumption. With this aim in mind, the article traces the rise of ready-made garments in the Netherlands and northwest Europe, and the associated decline in custom- and home-made garments in the region. Although available statistical data is insufficient to accurately map these phenomena, secondary sources suggest that both processes were not simultaneous and therefore there was not a straightforward substitution of custom- and home-made clothing by ready-mades. While availability and trade of mass-produced ready-mades was escalating since the early 19th C, it was not until mid 20th C that custom- and home-made clothing declined among the middle class. In this study, such a gap is explained by a steady increase in the amount of clothes acquired per person: an expanding culture of consumption during the period under consideration may have enabled these different systems to flourish all together. A parallelism of the findings above with current developments suggests that we should not regard emergent industrial formats as substitutionary of established ones, but as complementary. We may then reevaluate to what extent does the rise of the flexible factory enable a “revolution”, a shift from a problematic present to a contrasting and desirable future. This historical overview indicates that, on the contrary, emerging product-service-systems manufacturing personalized garments on-demand must be considered in relation to – and in coexistence with- traditional industrial models.
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