This paper describes the Care4Balance (C4B) system for better facilitating communication and task coordination between formal and informal caregivers, and older adults as care receivers. Field-tests with older adults (n=3) and user studies (n=9) were conducted to evaluate the system and the perceived usefulness of the system. A review of related work and the study findings show that (1) the perceived benefit for the older target group was very low. The main motivation for using the system was triggered by the perceived benefit for their closest informal caregivers; (2) Informal caregivers do not regularly seek help for themselves, and (3) Introducing a C4B-like system is more than solving hardware and usability issues. The study suggests that more flexibility in the organizational structure of formal care (in The Netherlands and beyond) is needed.
In addition to formal welfare institutions, there are many informal initiatives in the social landscape that are engaged in social work. These informal actors offer help, care or support to their members and visitors, and/or fulfil a bridging function to formal welfare organisations. They fulfil this role in particularly for target groups that experience distance or barriers to the formal care and welfare system. Despite the important role they play, these actors are often still unknown territory for both formal care and welfare actors and policymakers. Based on research from Belgium and the Netherlands, this article sheds light on this hidden voluntary social work and its characteristics. We also examine hidden voluntary social work in relation to formal welfare organisations and the (local) government. Despite the potential added value of cooperation, it is not easy to build up a sustainable and equal cooperative relationship, or for the government to effectively support hidden voluntary social work. Safeguarding the uniqueness of informal players is a particular concern.
Aims and objectives To gain insight into the perceived added value of a decision support App for district nurses and case managers intended to support a problem assessment and the provision of advices on possible solutions to facilitate ageing in place of people with dementia, and to investigate how they would implement the App in daily practice. Background District nurses and case managers play an important role in facilitating ageing in place of people with dementia (PwD). Detecting practical problems preventing PwD from living at home and advising on possible solutions is complex and challenging tasks for nurses and case managers. To support them with these tasks, a decision support App was developed. Methods A qualitative study using semi‐structured interviews was conducted. A photo‐elicitation method and an interview guide were used to structure the interviews. The data were analysed according to the principles of content analysis. Results In five interviews with seven district nurses and case managers, the added value was described in terms of five themes: (a) providing a broader/better overview of possible solutions; (b) providing a guideline/checklist for problem assessment and advice on solutions; (c) supporting an in‐depth problem assessment; (d) being a support tool for unexperienced case managers/district nurses; and (e) providing up‐to‐date information. The participants regarded the App as complementary to their current work procedure, which they would use in a flexible manner at different stages in the care continuum. Conclusions The participants valued both parts, the problem assessment and the overview of possible solutions. An important requisite for the usage would be that the content is continuously updated. Before implementation of the App can be recommended, an evaluation of its effectiveness regarding decision‐making should be conducted. Relevance to clinical practice This study underpins the need of nurses and case managers for decision support with regard to problem assessment and providing advices on possible solutions to facilitate ageing in place of PwD. There results also show the importance of listening to users experience and their perceived added value of decision support tools as this helps to explain the lack of statistically significant effects on quantitative outcome measure in contrast to a high willingness to use the App in a previous study.
