Moving away from the strong body of critique of pervasive ‘bad data’ practices by both governments and private actors in the globalized digital economy, this book aims to paint an alternative, more optimistic but still pragmatic picture of the datafied future. The authors examine and propose ‘good data’ practices, values and principles from an interdisciplinary, international perspective. From ideas of data sovereignty and justice, to manifestos for change and calls for activism, this collection opens a multifaceted conversation on the kinds of futures we want to see, and presents concrete steps on how we can start realizing good data in practice.
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This pilot study explores the reasons patients have for refusing chemotherapy, and the ways oncologists respond to them. Our hypothesis, generated from interviews with patients and oncologists, is that an ethical approach that views a refusal as an autonomous choice, in which patients are informed about the pros and cons of treatment and have to decide by weighing them, is not sufficient.A different ethical approach is needed to deal with the various evaluations that play a role in treatment refusal. If patients forgo further treatment, while curative or palliative methods are available, there is no perspective from which to integrate the weighing of pros and cons of treatment and the preferences and values of individual cancer patients.A discrepancy thus results as regards what "good reasons" are, evoking misunderstandings or even breaking off communication. Suggestions are given for follow up research.
The range of studies that has been conducted on the role of gossip in organizations suggests that gossip in the workplace plays a variety of important roles in organisational processes. However, relatively few studies have explored its role in intercultural situations. This is surprising given how organisations are becoming increasingly diverse. This paper addresses this gap in the literature. It reports on an exploratory project that sought to determine how perceptions of organisational gossip vary between members of different cultural groups. Using a sensemaking, interpretative approach, we showed two gossip scenarios to 8 Chinese, 8 German and 8 Dutch first year students, and conducted semi structured interviews, asking them how they perceived the nature of the gossip, the gossiper and the object of gossip (i.e., the person being gossiped about). After analysing the data with ATLAS.ti, we observed certain patterns emerging. For example, while all students condemned a manager’s bad behaviour, the Chinese students seemed to expect it more than did their Dutch or German counterparts. Moreover, we found that the relationship and amount of trust that exists between gossiper, listener and object of gossip greatly influenced how the gossiper and object of gossip were perceived. After reflecting on our research methodology, this study sets the stage for the next phase of our research on the role of gossip in intercultural situations. LinkedIn: https://www.linkedin.com/in/dominiquedarmon/
