Het strategisch project Citizen Science for a Healthy Lifestyle is gestart op 1 november 2019. Het project had als doel: kennis, ervaring, scholing en internationalisering op het thema Citizen Science for Healthy Lifestyle bevorderen. Deze strategische fonds heeft op concrete wijze vorm en inhoud gegeven aan de visie en doelen van het CoE HA. Deze aanvraag heeft mede geleid tot het benoemen van Citizen Science als belangrijke enabler/versneller binnen de visie van het CoE HA. In jaar 1 lag het accent op scholing (expert conference/workshop etc.) en de opzet van een 3-tal pilots. In jaar 2 werd de opgedane kennis en ervaring verwerkt in ontwikkelde onderwijs modules Citizen Science. De Hanzehogeschool stelt zich tot doel waarde en impact te cre ren in Noord-Nederland, met de inzet van onderwijs, onderzoek en innovatie. De strategie van het Centre of Expertise Healthy Ageing (CoE HA) belicht drie thema’s: 1) gelijkheid en participatie in gezondheidszorg, 2) gezonde leefstijl en omgeving, en 3) kwetsbaarheid en passende zorg. Zowel als onderzoek/innovatiestrategie en als middel om burgers en gemeenschappen te betrekken, speelt Citizen Science for health een belangrijke rol in het mogelijk maken en versnellen van processen binnen de drie thema’s. Citizen Science kan gedefinieerd worden als een vorm van onderzoekssamenwerking en co-creatie die burgers betrekt bij onderzoek en innovatie om concrete vraagstukken aan te pakken, en die dus vereist dat niet-professionele bijdragers onderdeel van de samenwerking zijn.Belangrijkste resultaten:• Citizen Science is mede door deze strategische fonds aanvraag en van de drie enablers geworden in de nieuwe CoE HA strategische koers 2021-2026;• Opstart pilots van Living Lab Beweegvriendelijk Vinkhuizen, Living Lab Oldambt Tijd voor Toekomst en Meer Gezonde Jaren Appingedam. Mede door blijvende investering en honorering van Living Labs Sport en Bewegen van ZonMw; Het gaat hier om een netwerksubsidie (8 maanden), lokale verankering (12 maanden) en experiment subsidie (5 maanden);• Integratie Citizen Science in Erasmus+ capacity building project Sustainable Wellbeing (SUSWELL);• Ontwikkeling SPRONG-aanvraag op het thema Citizen Science (deadline 31 mei 2022);• Diverse scholingsactiviteiten en workshops (master HAP, bachelor, docent-onderzoekers van de Healthy Ageing schools, studiedagen) hebben in 2020, 2021 en 2022 plaatsgevonden;• Studie tweedaagse over Citizen Science gehouden voor studenten en docent-onderzoekers CoE HA en KC Noorderruimte;• Samenwerking met Stanford University en Our Voice: Citizen Science for Health Equity network gerealiseerd;• Positioning statement Citizen Science geschreven in NL en EN;• Lid geworden van European Citizen Science Association (ECSA);• Scholingsmateriaal ontwikkeld voor studenten en docent-onderzoekers van de vijf schools vallend onder Healthy Ageing;• Ontwikkeling NWO-subsidie aanvraag maatschappelijk verdien vermogen over citizen-student Science voor studenten welzijn tijdens en na de Corona pandemie (deadline voorjaar 2022);• Postdoc aanstelling Citizen Science vanuit het CoE HA.• Met de Citizen Science scholingsactiviteiten zijn in totaal 270 bachelor studenten, 145 master studenten, 279 docent-onderzoekers, 109 professionals en 180 burgers bereikt verspreid over de verschillende pilots.Aanbevelingen:• Mede op basis van de impact van praktijkgericht onderzoek op praktijk, onderwijs en onderzoek (PRIME-model pagina 29), doorgaan met onderwijs en praktijk ontwikkelingen. De bijdrage aan het wetenschappelijke/onderzoeksdomein op Citizen Science verdient dekomende jaren extra aandacht;• Mede op basis van bevindingen visitatie terugkoppeling CoE HA (6-7 april 2022), verder doorontwikkelen tot herkend en erkend expertisecentrum op Citizen Science in de context van (publieke) gezondheidsdomein;• De komende jaren verder investeren in mensen en middelen in Citizen Science zodat het een van de leidende aanpakken wordt binnen onderwijs-onderzoek binnen het CoE HA zodat de Hanze zich ontwikkelt tot een expertisecentrum (o.a. m.b.v. SPRONG);• Komende jaren verder kennis en expertise ontwikkelen op Citizen Science door eigenonderzoek (promovendi/postdocs) en scholing;• Citizen Science integreren in relevante onderzoeksprojectaanvragen;• Citizen Science verder integreren in de drie inhoudelijke thema’s van het CoE HA;• Citizen Science onderwijsmodules en scholingen implementeren in het onderwijs van studenten (bachelors, masters) en bij- en nascholing van docent-onderzoekers.
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Citizen science – the active participation of lay people in research – may yield crucial local knowledge and increase research capacity. Recently, there is growing interest to understand benefits for citizen scientists themselves. We studied the perceived impacts of participation in a public health citizen science project on citizen scientists in a disadvantaged neighbourhood in the Netherlands. Local citizen scientists, characterised by low income and low educational level – many of whom were of migrant origin – were trained to interview fellow residents about health-enhancing and health-damaging neighbourhood features. Experiences of these citizen scientists were collected through focus groups and interviews and analysed using a theoretical model of potential citizen science benefits. The results show that the citizen scientists perceived participation in the project as a positive experience. They acquired a broader understanding of health and its determinants and knowledge about healthy lifestyles, and took action to change their own health behaviour. They reported improved self confidence and social skills, and expanded their network across cultural boundaries. Health was perceived as a topic that helped people with different backgrounds to relate to one another. The project also induced joint action to improve the neighbourhood’s health. We conclude that citizen science benefits participants with low educational or literacy level. Moreover, it seems to be a promising approach that can help promote health in underprivileged communities by strengthening personal skills and social capital. However, embedding projects in broader health promotion strategies and long-term engagement of citizen scientists should be pursued to accomplish this.
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Mensen die zelf de luchtkwaliteit van hun wijk willen meten… Toekomstmuziek? Nee hoor, het RIVM is er al mee bezig. Maar wat komt daar allemaal bij kijken? Een onderzoek over luchtkwaliteit als startpunt voor een discussie over citizen science.
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Health interventions often do not reach blue-collar workers. Citizen science engages target groups in the design and execution of health interventions, but has not yet been applied in an occupational setting. This preliminary study determines barriers and facilitators and feasible elements for citizen science to improve the health of blue-collar workers. The study was conducted in a terminal and construction company by performing semi-structured interviews and focus groups with employees, company management and experts. Interviews and focus groups were analyzed using thematic content analysis and the elements were pilot tested. Workers considered work pressure, work location and several personal factors as barriers for citizen science at the worksite, and (lack of) social support and (negative) social culture both as barriers and facilitators. Citizen science to improve health at the worksite may include three elements: (1) knowledge and skills, (2) social support and social culture, and (3) awareness about lifestyle behaviors. Strategies to implement these elements may be company specific. This study provides relevant indications on feasible elements and strategies for citizen science to improve health at the worksite. Further studies on the feasibility of citizen science in other settings, including a larger and more heterogeneous sample of blue-collar workers, are necessary.
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Even though citizen and patient engagement in health research has a long tradition, citizen science in health has only recently gained attention and recognition. However, at present, there is no clear overview of the specifics and challenges of citizen science initiatives in the health domain. Such an overview could contribute to highlighting and articulating the different needs of stakeholders engaged in any form of citizen science in the health domain. It may also encourage the input of citizens and patients alike in health research and innovation, policy, and practice. This paper reports on a survey developed by the European Citizen Science Association (ECSA)’s Working Group “Citizen Science for Health,” to highlight the perceived characteristics and enabling factors of citizen science in the health domain, and to formulate a direction for future work and research. The survey was available in six languages and was open between January and August 2022. The majority of the 254 respondents were from European countries, and the largest stakeholder respondent group was researchers. Respondents were asked about their perspectives on the particular characteristics of citizen science performed in health and biomedical research, as well as the challenges and opportunities it affords. Ethics, the complexity of the health domain, and the overlap in roles whereby the researcher is sometimes also the subject of research, were the main issues suggested as being specific to citizen science in health. The top two areas that respondents identified as in need of development were “balanced return on investment” and “ethics.” This publication discusses these and other conditions with references to current literature.
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BackgroundStroke is a major cause of disability globally, with high recurrence rates despite the implementation of secondary prevention strategies. Promoting physical activity and reducing sedentary behaviour are critical to mitigate these risks. Collaborative research approaches, including citizen science, offer promising methods for developing more effective and sustainable interventions by leveraging patient insights and lived experiences across different research stages.ObjectivesThis scoping review explored the application of citizen science approaches in developing interventions targeting physical activity and sedentary behaviour for people with stroke.MethodsFollowing Arksey and O’Malley’s framework and the PRISMA-ScR checklist, five databases were searched. We included empirical studies involving stroke patients in research on physical activity or sedentary behaviour interventions. Data was extracted on terminology, collaboration methods, and participant roles and analysed using the Participation Matrix framework. Methodological rigor was assessed using the CASP qualitative checklist.ResultsFourteen studies were included, most published after 2020 and originating from diverse countries. Terms like “co-design,” “co-creation,” and “patient and public involvement” were prevalent, but “citizen science” was not explicitly mentioned. Methods for active involvement of stroke patients included focus groups, workshops, and advisory panels. Stroke patients primarily participated as advisors or partners during intervention design, with minimal involvement in early research stages, data analysis, or dissemination. Researchers predominantly held decision-making roles.ConclusionsCitizen science in stroke research is still developing, with limited patient involvement across research phases. Expanding the depth and scope of patient involvement could enhance the relevance and long-term impact of interventions.
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Citizen science has demonstrated potential to foster local changes in public health, including physical (in)activity. We used community-engaged citizen science to explore how to improve the exercise-friendliness of a Dutch neighborhood, chosen because it scored below average on important health parameters.We followed the steps of design thinking and employed the Our Voice citizen science method to find out how community members perceived exercise-friendliness in their neighborhood. Members participated in technology-enabled “discovery” walks using the multi-lingual Stanford Neighborhood Discovery Tool mobile application. Positive, negative, and dual features in the neighborhood were captured. During a researcher-facilitated process, citizen scientists analyzed their data together, leading to overarching themes reflecting resident needs and desires. These themes served as the basis for developing a walking route throughout the neighborhood. Several initial walking route prototypes were developed and tested by citizen scientists, resulting in a final route design that was realized in collaboration with local government officials. Citizen scientists were interviewed and asked about their engagement with and sense of agency throughout the research process. They reported commitment to the project and their neighborhood, and a desire to contribute to society. They also reported increased agency in contributing to neighborhood impacts.This project showed that citizen science “by the people” is a powerful way to engage people with projects in their own neighborhoods. It provided local perspectives on the neighborhood, which led to actual changes in the environment
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In dit experiment hebben de samenwerkingspartners VitaalNed en de Hanzehogeschool Groningen (studenten en docent-onderzoekers) kennis en ervaring opgedaan over de successen en belemmeringen van een gezamenlijk innovatieproces dat tot doel had een voor alle partijen gewenst en aantrekkelijk leefstijlaanbod. Dit aanbod zou gericht moeten zijn op studentenwelzijn, met een aanpak op zowel fysiek, mentaal als sociaal welzijn. De doelstellingen waren als volgt:1. Aan het einde van het experiment is er een onderbouwd en door Citizen Science gevalideerd plan van aanpak voor de implementatie van een op studentenbehoefte en evidentie gebaseerde innovatie ter verbetering van psychosociaal en fysiek welzijn van hbo-studenten (potentieel N=33.000). Dit plan is gekoppeld aan een (grove) inschatting van vermindering van maatschappelijke kosten op gebied van zorg en arbeidsverzuim; 2. Aan het einde van het experiment is er inzicht in de successen en belemmeringen van een gezamenlijk innovatieproces om tot een passend leefstijlaanbod voor studenten te komen, alsmede in de eco-systeem/Citizen Science aanpak als versneller voor innovatie;3. De private partner VitaalNed innoveert met de nieuwe kennis haar eigen en nieuwe leefstijlaanbod en vertaalt dit naar mogelijk andere producten, diensten en doelgroepen die efficiënt en effectief zijn zodat ze vergoed kunnen worden door o.a. zorgverzekeraar, gemeente etc. Hiermee heeft VitaalNed aan het einde van het experiment een businesscase om leefstijlinnovaties effectiever te maken op inhoud en duur.
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Health in All Policies (HiAP), a horizontal strategy connecting all relevant policy sectors, is internationally recognised as a core policy approach to improve the population’s health. For HiAP to be effective, it is recommended that both a Whole of Government and a Whole of Society approach is applied. In the Netherlands, HiAP has been in place since the late eighties of last century. Initially the focus has been on the Whole of Government approach; more recently this is amended by a national Whole of Society program.This thesis addresses the possible role of Citizen Science as a possible contribution to the knowledge base underpinning HiAP and a Whole of Society approach. Citizen Science, as the active contribution of citizens in research, links up with asset-based approachesand community participation that are key elements in modern health promotion.Key questions of the thesis were:“What are possible methods to engage citizens in developing the knowledge base for Health in All Policies (HiAP), and what are challenges and benefits of such engagement?”This thesis draws, firstly, on a theoretical exploration in which the application of Citizen Science in public health is explored. Secondly, two case studies on the application of Citizen Science in the Netherlands were performed. Thirdly, two scoping reviews wereperformed. Finally, one case study was carried out focusing on perceptions of health professionals in a Dutch city district.
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One neighborhood in Groningen, the Netherlands, is a neighborhood housing about 12,000 citizens with on average a low-SES background, showing a less healthy and active lifestyle. In the past, initiatives have been undertaken to promote active lifestyle by implementing outdoor facilities stimulating physical activity. However, use of facilities was poor due to lack of citizen involvement. Aim of this project was to engage citizens in the overall process of capturing, plan making and prototyping of concepts for an exercise-friendly physical and social environment.From January 2020 - May 2022 a Living Lab was run following the ‘Our Voice’ citizen science method. Participatory citizen science was applied in which a community of stakeholders (public/private parties) and citizens was built. The community addressed the problem by creating more insight in promoting/degrading features in the neighborhood concerning an active lifestyle. Citizens (n = 40) used the Stanford Neighborhood Discovery Tool, which allowed for systematic observations of the physical environment. Additionally, emergent research walks gave extra information on neighborhood barriers/facilitators next to Discovery Tool data. Collected data allowed citizens to brainstorm on possible solutions in sessions facilitated by the researchers. Solutions were presented to local government and further developed for implementation and realization.Use of the Discovery Tool created an overview of the neighborhood. Based on positive/negative features, new ideas were generated for improving exercise-friendliness. One example was a walking route along art objects in the neighborhood. Furthermore, a citizens work group was formed which discussed this route, and other ideas and prototypes, with local government. This group was also involved in realization of prototypes.Our project resulted in a citizen science approach which can be transferred to other neighborhoods. Use of Discovery Tool showed many benefits for neighborhood plan making. Early and continuous involvement of citizens will lead to more sustainable engagement and is a powerful method to create engagement around societal problems and social innovation in the field of Health Enhancing Physical Activity.A transferable method for neighborhood development based on citizen science was developed. Key feature in our method was integration of design thinking, citizen engagement, and use of digital tools.
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