This white paper is presented by the Ethics Working Group of the uNLock Consortium This white paper presents findings of the Ethics Working Group, from the conceptual phase of investigation into the ethical issues of the uNLock solution, providing identity management solutions for sharing and presentation of medical COVID-19 credentials (test results) in the context of healthcare institutions. We have provided an outline of direct and indirect stakeholders for the uNLock solution and mapped values, benefits, and harms to the respective stakeholders. The resulting conceptual framework has allowed us to lay down key norms and principles of Self Sovereign Identity (SSI) in the specific context of uNLock solution. We hope that adherence to these norms and principles could serve as a groundwork for anticipatory mitigation of moral risk and hazards stemming from the implementation of uNLock solution and similar solutions. Our findings suggest that even early stage of conceptual investigation in the framework of Value Sensitive Design (VSD), reveals numerous ethical issues. The proposed implementation of the uNLock app in the healthcare context did not proceed further than prototype stage, thus our investigation was limited to the conceptual stage, and did not involve the practical implementation of VSD method involving translation of norms and values into engineering requirements. Nevertheless, our findings suggest that the implementation of VSD method in this context is a promising approach that helps to identify moral conflicts and risks at a very early stage of technological development of SSI solutions. Furthermore, we would like to stress that in the light of our findings it became painfully obvious that hasty implementation of medical credentials system without thorough ethical assessment, risks creating more ethical issues rather than addressing existing ones.
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In this paper, we explore the design of web-based advice robots to enhance users' confidence in acting upon the provided advice. Drawing from research on algorithm acceptance and explainable AI, we hypothesise four design principles that may encourage interactivity and exploration, thus fostering users' confidence to act. Through a value-oriented prototype experiment and value-oriented semi-structured interviews, we tested these principles, confirming three of them and identifying an additional principle. The four resulting principles: (1) put context questions and resulting advice on one page and allow live, iterative exploration, (2) use action or change oriented questions to adjust the input parameters, (3) actively offer alternative scenarios based on counterfactuals, and (4) show all options instead of only the recommended one(s), appear to contribute to the values of agency and trust. Our study integrates the Design Science Research approach with a Value Sensitive Design approach.
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Background: Research on maternity care often focuses on factors that prevent good communication and collaboration and rarely includes important stakeholders – parents – as co-researchers. To understand how professionals and parents in Dutch maternity care accomplish constructive communication and collaboration, we examined their interactions in the clinic, looking for “good practice”. Methods: We used the video-reflexive ethnographic method in 9 midwifery practices and 2 obstetric units. Findings: We conducted 16 meetings where participants reflected on video recordings of their clinical interactions. We found that informal strategies facilitate communication and collaboration: “talk work” – small talk and humour – and “work beyond words” – familiarity, use of sight, touch, sound, and non-verbal gestures. When using these strategies, participants noted that it is important to be sensitive to context, to the values and feelings of others, and to the timing of care. Our analysis of their ways of being sensitive shows that good communication and collaboration involves “paradoxical care”, e.g., concurrent acts of “regulated spontaneity” and “informal formalities”. Discussion: Acknowledging and reinforcing paradoxical care skills will help caregivers develop the competencies needed to address the changing demands of health care. The video-reflexive ethnographic method offers an innovative approach to studying everyday work, focusing on informal and implicit aspects of practice and providing a bottom up approach, integrating researchers, professionals and parents. Conclusion: Good communication and collaboration in maternity care involves “paradoxical care” requiring social sensitivity and self-reflection, skills that should be included as part of professional training.
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