Somatic symptoms, pain, catastrophizing and the association with disability among children with heritable connective tissue disorders
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Physical activity and physical fitness in children with heritable connective tissue disorders
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Heritable connective tissue disorders in childhood: Decreased health-related quality of life and mental health
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Heritable connective tissue disorders in childhood
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Parenting a child with Marfan syndrome
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Marfan syndrome in adolescence: adolescents' perspectives on (physical) functioning, disability, contextual factors and support needs
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Marfan syndrome in childhood: parents' perspectives of the impact on daily functioning of children, parents and family; a qualitative study
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Chronic pain in hypermobility syndrome and Ehlers-Danlos syndrome (hypermobility type)
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