This book brings together voices from various fields of intellectual inquiry, based on the idea that technological, legal and societal aspects of the information sphere are interlinked and co-dependent from each other. In order to tackle the existing gap in shared semantics, this glossary converges the efforts of experts from various disciplines to build a shared vocabulary on the social, technical, economic, political aspects of decentralised, distributed or sovereign technologies: artefacts which seek to challenge the techno-social status quo by, for example, circumventing law enforcement, resisting surveillance, or being participative.The idea ofthis glossary arose from the need for a workable, flexible and multidisciplinary resource for terminological clarity, which reflects instead of denying complexity. Situating the terms emerging through technology development in the wider context of multidisciplinary scientific, policy and political discourses, this glossary provides a conceptual toolkit for the study of the various political, economic, legal and technical struggles that decentralised, encryption-based, peer-to-peer technologies bring about and go through.Choosing relevant technology-related terms and understanding them is to investigate their affordances within a given ecosystem of actors, discourses and systems of incentives. This requires an interdisciplinary, multi-layered approach that is attentive to the interlinkages between technological design nuances and socio-political, economic implications.The glossary was envisioned as a long-term collaborative project, and as a work-in-progress, as new entries are periodically added over time. The present book collects the entries published on the Internet Policy Review between 2021 and 2023. Therefore, it represents the first volume of what hopefully will be a long-term, ever-evolving editorial collaboration, whose sources of inspiration and goals evolve with the evolving of the broader discussions on decentralized technologies.
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Background: Physical activity is an important intervention for improving disease-related symptoms and systemic manifestations in rheumatic and musculoskeletal disease (RMDs). However, studies suggest that RMD patients report that the lack of individualized and consistent information about physical activity from managing doctors and healthcare professionals, acts as a barrier for engagement. On the other hand, managing doctors and healthcare professionals report lack of knowledge in this area and thus lack of confidence to educate and advise RMD patients about the beneficial effects of physical activity. The aim of the present study therefore, is to develop two e-Learning courses for RMD doctors and health professionals: a) the first one to provide consistent information about the collective benefits of physical activity in RMDs and b) the second on how to implement physical activity advice in routine clinical practice. Methods: An international collaboration of seven countries, consisting of one academic institution and one patient organization from each country, will co-develop the two e-Learning courses. The final e-Learning courses will primarily target to improve – through physical activity advice – RMD symptoms which are important for patients. Discussion: The main result of this study will be to co-develop two e-Learning courses that can be used by managing RMD doctors and healthcare professionals to be made aware of the overall benefits of physical activity in RMDs as well as how to implement physical activity advise within their practice.
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