Background: Patient decision aids (PDAs) can support the treatment decision making process and empower patients to take a proactive role in their treatment pathway while using a shared decision-making (SDM) approach making participatory medicine possible. The aim of this study was to develop a PDA for prostate cancer that is accurate and user-friendly. Methods: We followed a user-centered design process consisting of five rounds of semi-structured interviews and usability surveys with topics such as informational/decisional needs of users and requirements for PDAs. Our userbase consisted of 8 urologists, 4 radiation oncologists, 2 oncology nurses, 8 general practitioners, 19 former prostate cancer patients, 4 usability experts and 11 healthy volunteers. Results: Informational needs for patients centered on three key factors: treatment experience, post-treatment quality of life, and the impact of side effects. Patients and clinicians valued a PDA that presents balanced information on these factors through simple understandable language and visual aids. Usability questionnaires revealed that patients were more satisfied overall with the PDA than clinicians; however, both groups had concerns that the PDA might lengthen consultation times (42 and 41%, respectively). The PDA is accessible on http://beslissamen.nl/. Conclusions: User-centered design provided valuable insights into PDA requirements but challenges in integrating diverse perspectives as clinicians focus on clinical outcomes while patients also consider quality of life. Nevertheless, it is crucial to involve a broad base of clinical users in order to better understand the decision-making process and to develop a PDA that is accurate, usable, and acceptable.
Background: In implementation science, vast gaps exist between theoretical and practical knowledge. These gaps prevail in the process of getting from problem analysis to selecting implementation strategies while engaging stakeholders including care users. Objective: To describe a process of how to get from problem analysis to strategy selection, how to engage stakeholders, and to provide insights into stakeholders’ experiences. Design: A qualitative descriptive design. Setting and participants: The setting was a care organization providing long-term care to people with acquired brain injuries who are communication vulnerable. Fourteen stakeholders (care users, professionals and researchers) participated. Data were collected by a document review, five interviews and one focus group. Inductive content analysis and deductive framework analysis were applied. Intervention: Stakeholder engagement. Main outcome measures: A three-step process model and stakeholders experiences. Results and conclusion: We formulated a three-step process: (a) reaching consensus and prioritizing barriers; (b) categorizing the prioritized barriers and idealization; and (c) composing strategies. Two subthemes continuously played a role in how stakeholders were engaged during the process: communication supportive strategies and continuous contact. The experiences of stakeholder participation resulted in the following themes: stakeholders and their roles, use of co-creation methods and communication supportive strategies, building relationships, stimulus of stakeholders to engage, sharing power, empowerment of stakeholders, feeling a shared responsibility and learning from one another. We conclude that the inclusion of communicationvulnerable care users is possible if meetings are prepared, communication-friendly presentations and reports are used, and relationship building is prioritized.
Uit de inleiding: "Ziekenhuiszorg wordt steeds duurder en complexer. Ziekenhuis Rivierenland uit Tiel wilde daarom meer procesgericht werken, en zo de efficiency en het kwaliteitsniveau verhogen. Het ziekenhuis vroeg het lectoraat Procesinnovatie en Informatiesystemen van Kenniscentrum Innovatie & Business (Hogeschool Utrecht) om mee te denken. Het lectoraat en ziekenhuis ontwikkelden daarop gezamenlijk een procesmodel voor de zorg; alle zorgprocessen binnen het ziekenhuis zijn daarin onder te brengen."
Physical rehabilitation programs revolve around the repetitive execution of exercises since it has been proven to lead to better rehabilitation results. Although beginning the motor (re)learning process early is paramount to obtain good recovery outcomes, patients do not normally see/experience any short-term improvement, which has a toll on their motivation. Therefore, patients find it difficult to stay engaged in seemingly mundane exercises, not only in terms of adhering to the rehabilitation program, but also in terms of proper execution of the movements. One way in which this motivation problem has been tackled is to employ games in the rehabilitation process. These games are designed to reward patients for performing the exercises correctly or regularly. The rewards can take many forms, for instance providing an experience that is engaging (fun), one that is aesthetically pleasing (appealing visual and aural feedback), or one that employs gamification elements such as points, badges, or achievements. However, even though some of these serious game systems are designed together with physiotherapists and with the patients’ needs in mind, many of them end up not being used consistently during physical rehabilitation past the first few sessions (i.e. novelty effect). Thus, in this project, we aim to 1) Identify, by means of literature reviews, focus groups, and interviews with the involved stakeholders, why this is happening, 2) Develop a set of guidelines for the successful deployment of serious games for rehabilitation, and 3) Develop an initial implementation process and ideas for potential serious games. In a follow-up application, we intend to build on this knowledge and apply it in the design of a (set of) serious game for rehabilitation to be deployed at one of the partners centers and conduct a longitudinal evaluation to measure the success of the application of the deployment guidelines.
Kansen voor circulaire beademingszorg De gezondheidszorg is verantwoordelijk voor 7% van de totale Nederlandse CO2-uitstoot. Eén van de meest materiaal intensieve afdelingen in een ziekenhuis is de intensive care. Patiënten op een intensive care worden beademd en ontvangen daarbij zogenaamde beademingszorg. Tijdens beademingszorg wordt gemaakt van hulpmiddelen zoals beademingsslangen, uitzuigslangen, filters en materialen ter infectiepreventie. De meeste hulpmiddelen worden na gebruik weggegooid. Om de zorg te verduurzamen zijn in de Green Deal doelstellingen geformuleerd om grondstoffenverbruik te verminderen in 2030 en uiteindelijk toe te werken naar circulaire zorg 2050. Er is op dit moment echter weinig kennis over de milieubelasting van gebruikte hulpmiddelen tijdens beademingszorg en de mogelijkheden om circulaire strategieën toe te passen. Dit project heeft als doel om een inventarisatie te maken van de milieubelasting en de afvalstromen van hulpmiddelen rondom beademingszorg. Daarbij is het project ook gericht op een inventarisatie van de mate waarin milieubelasting een overweging is bij de besluitvorming door betrokken stakeholders. Vervolgens zal in kaart worden gebracht welke mogelijkheden er zijn om via circulaire strategieën een bijdrage te leveren om de milieubelasting van hulpmiddelen rondom beademingszorg te verminderen. Voor de uitvoering van dit project zijn unieke deskundigheidsgebieden samengebracht in een consortium. De praktijkpartners hebben expertise in zorgverlening op de intensive care afdeling (AmsterdamUMC) en afvalstromen in ziekenhuizen (adviesbureau Innomax). De betrokken kennisinstellingen hebben expertise in onderwijs- en onderzoek rondom duurzaamheid (de Hogeschool van Amsterdam, Technische Universiteit Delft en Radboudumc). Dit consortium is een unieke samenwerking waarbij om kennis van zorgprocessen, afvalstromen en de milieubelasting van de zorgverlening op de intensive care worden gebundeld om de kansen voor duurzame beademingszorg te inventariseren. De resultaten van dit project zullen een praktijkverandering in gang zetten op intensive care afdelingen van AmsterdamUMC en Radboudumc en vervolgens ook verspreid worden via de landelijke en internationale netwerken.
A feeling of worry, anxiety, loneliness and anticipation are commonplace in both medical and non-medical arenas such as elderly care. An innovative solution such as the ‘simple and effective’ comfyhand would offer better patient care and improved care efficiency with a high chance of long-term, economic efficiency. ComfyHand is a start-up in the healthcare sector that aims to develop sustainable products to improve patient wellbeing in healthcare settings. It does this by emulating the experience of holding a hand which gives the person comfort and support in moments where real human contact is not possible. Right now the comfyhand is in the development phase, working on several prototypes for test trials in elderly care and hospitals. In this project we want to explore the use of 3D printing for producing a comfyhand. Desired properties for the prototype include optimal heat transfer, softness, regulation of sweat, durability and sustainability. The goal of this study is to develop a prototype to test in a trial with patients within Envida, a care centre. The trial itself is out of scope of this project. This proposal focuses on researching the material of choice and the processability. Building on knowledge gained in a previous Kiem GoChem project and a Use Case (Shape3Dup) of a currently running Raak MKB project (Enlighten) on 3D printing of breast prostheses, several materials, designs and printing parameters will be tested.