ObjectiveHospital-to-home (H2H) transitions challenge families of children with medical complexity (CMC) and healthcare professionals (HCP). This study aimed to gain deeper insights into the H2H transition process and to work towards eHealth interventions for its improvement, by applying an iterative methodology involving both CMC families and HCP as end-users.MethodsFor 20-weeks, the Dutch Transitional Care Unit consortium collaborated with the Amsterdam University of Applied Sciences, HCP, and CMC families. The agile SCREAM approach was used, merging Design Thinking methods into five iterative sprints to stimulate creativity, ideation, and design. Continuous communication allowed rapid adaptation to new information and the refinement of solutions for subsequent sprints.ResultsThis iterative process revealed three domains of care – care coordination, social wellbeing, and emotional support – that were important to all stakeholders. These domains informed the development of our final prototype, ‘Our Care Team’, an application tailored to meet the H2H transition needs for CMC families and HCP.ConclusionComplex processes like the H2H transition for CMC families require adaptive interventions that empower all stakeholders in their respective roles, to promote transitional care that is anticipatory, rather than reactive.InnovationA collaborative methodology is needed, that optimizes existing resources and knowledge, fosters innovation through collaboration while using creative digital design principles. This way, we might be able to design eHealth solutions with end-users, not just for them.
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The pilot project that will be described in this report was all about the animateur.What are his skills and attitudes? What are the pedagogical interventions that he uses in a workshop or an event? What are the main issues that arise when we try to include such a naturally non-formal and informal practice into a formal setting like the conservatoire? The pilot project has led to a number of conclusions for the lectorate that have direct implications for setting up a module to train animateurs, and regarding project set-up and content.
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Supportive social interactions between nonparental adults (i.e. social work professionals, volunteers, and other parents that have contact with children but are not the primary caregiver), parents, and children are important for children’s well-being and development. Parenting styles, types of child behaviour, and location in the neighbourhood may influence these interactions. The aim of the present study was to identify when and how nonparental adults respond in interactions with other adults and children in the neighbourhood. A mixed-method study with vignettes and interviews (N = 114) was conducted to gain insight into which factors (parenting style, child behaviour, location in the neighbourhood) influence the nonparental adults’ intention to respond to children and/or parents. Nonparental adults indicated they were most likely to respond in the context of a permissive parenting style or a child’s externalising behaviour. Professionals more often felt responsible than parents and volunteers, although they did not respond more often. All three factors were related to the participants’ willingness to respond and promote a supportive social structure in the neighbourhood. Social work professionals and their organisations can use this study to identify social support interactions and to discuss their responsibilities.--Sociaal ondersteunende interacties tussen mede-opvoeders (zoals sociaal werk-professionals, vrijwilligers en andere ouders die contact met kinderen hebben, maar niet primair verantwoordelijk zijn) zijn belangrijk voor het welzijn en een positieve ontwikkeling van kinderen. Het doel van deze studie was inzicht geven in hoe mede-opvoeders reageren in interacties met andere opvoeders en kinderen in de buurt. Een mixed-method design met vignetten en interviews is toegepast om inzicht te krijgen in welke factoren (opvoedstijl, gedrag van een kind en locatie in de buurt) de reactie van mede-opvoeders beïnvloeden. Mede-opvoeders gaven aan dat ze het meest reageren in situaties waar sprake is van een permissieve opvoedingsstijl of externaliserend gedrag van een kind. Professionals voelen zich meer verantwoordelijk dan ouders en vrijwilligers, maar reageren niet vaker. Opvoedstijl, gedrag van het kind en locatie in de buurt hangen samen met de mate waarin respondenten reageren en om een ondersteunende sociale structuur in de buurt te bevorderen. Sociaal werkers en hun organisaties kunnen deze studie gebruiken om sociaal ondersteunende interacties te identificeren and over hun verantwoordelijkheid te discussiëren.
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