Hematological malignancies and treatment with hematopoietic SCT are known to affect patients’ quality of life. The problem profile and care needs of this patient group need clarification, however. This study aimed to assess distress, problems and care needs after allo- or auto-SCT, and to identify risk factors for distress, problems or care needs. In this cross-sectional study, patients treated with allo-SCT or auto-SCT for hematological malignancies completed the Distress Thermometer and Problem List. Three patient groups were created: 0–1, 1–2.5 and 2.5–5.5 years after transplantation. After allo-SCT, distress and the number of problems tended to be lower with longer follow-up. After auto-SCT, distress was highest at 1–2.5 year(s). Patients mainly reported physical problems, followed by cognitive-emotional and practical problems. A minority reported care needs. Risk factors for distress as well as problems after allo-SCT included younger age, shorter time after transplantation and GVHD. A risk factor for distress as well as problems after auto-SCT was the presence of comorbid diseases. Up to 5 years after auto-SCT or allo-SCT, patients continue to experience distress and problems. Judged by prevalence, physical problems are first priority in supportive care, followed by cognitive-emotional and practical problems.
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Identifying factors that predict health-related quality of life (QOL) following hematopoietic SCT, is important in estimating patients’ abilities to adjust to the consequences of their disease and treatment. As the studies that have been published on this subject are scattered, the present study aimed to systematically review prognostic factors for health-related QOL after auto- and allo-SCT in hematological malignancies. A systematic, computerized search in Medline, EMBASE, PsycINFO and the Cochrane Library was conducted from 2002 to June 2010. The methodological quality of the studies was assessed using an adaptation of Hayden's criteria list. Qualitative data synthesis was performed to determine the strength of the scientific evidence. In all, 35 studies fulfilled the selection criteria. Strong–moderate evidence was found for GVHD, conditioning regimen, being female, younger age, receiving less social support and pre-transplant psychological distress as predictors of various aspects of health-related QOL following hematopoietic SCT. The results of this review may help transplant teams in selecting patients at risk for experiencing a diminished health-related QOL following hematopoietic SCT. Follow-up treatment can be provided in order to promote QOL.
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To improve people’s lives, human-computer interaction researchers are increasingly designing technological solutions based on behavior change theory, such as social comparison theory (SCT). However, how researchers operationalize such a theory as a design remains largely unclear. One way to clarify this methodological step is to clearly state which functional elements of a design are aimed at operationalizing a specific behavior change theory construct to evaluate if such aims were successful. In this article, we investigate how the operationalization of functional elements of theories and designs can be more easily conveyed. First, we present a scoping review of the literature to determine the state of operationalizations of SCT as behavior change designs. Second, we introduce a new tool to facilitate the operationalization process. We term the tool blueprints. A blueprint explicates essential functional elements of a behavior change theory by describing it in relation to necessary and sufficient building blocks incorporated in a design. We describe the process of developing a blueprint for SCT. Last, we illustrate how the blueprint can be used during the design refinement and reflection process.
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Client: ERA-NET Cofund Smart Cities and Communities, JPI Urban EuropeUrban tourism generates income for cities and create opportunities for its businesses and employment for its residents. However, it can also lead to overcrowding, pollution, noise and numerous other problems, thus reducing quality of life for residents and other local stakeholders and potentially leading to public discontent. This project introduces SCITHOS as a concept that consists of guidelines and tools to help cities find solutions to make the transition towards environmentally and socially responsible urban tourism that simultaneously contributes to long-term prosperity.Within SCTHOS this is done by combining hospitality principles, simulation tools, apps and serious gaming techniques to support policymakers and other stakeholders in generating collaborative deep reflections about barriers to sustainable urban tourism and the need for transition or adaptation strategies. The project supports the assessment of intervention strategies based on an interactive simulation-supported multi-stakeholder approach that triggers social learning and behavior change, while stimulating shared governance and smart citizenship.Guidelines/ tools and the full concept are developed through a series of living labs and field experiments in participating cities. What is more, a Smart City Hospitality network is set up to ensure accessibility to this concept, including all tools and experiences with using them. The final results of the projects are presented 10 and 11 September 2019 in Vienna, as a pre-session to the popular annual Tourism conference (TOURMIS).
Centre of Expertise, onderdeel van Fontys
