Parental involvement is a crucial force in children’s development, learning and success at school and in life [1]. Participation, defined by the World Health Organization as ‘a person’s involvement in life situations’ [2] for children means involvement in everyday activities, such as recreational, leisure, school and household activities [3]. Several authors use the term social participation emphasising the importance of engagement in social situations [4, 5]. Children’s participation in daily life is vital for healthy development, social and physical competencies, social-emotional well-being, sense of meaning and purpose in life [6]. Through participation in different social contexts, children gather the knowledge and skills needed to interact, play, work, and live with other people [4, 7, 8]. Unfortunately, research shows that children with a physical disability are at risk of lower participation in everyday activities [9]; they participate less frequently in almost all activities compared with children without physical disabilities [10, 11], have fewer friends and often feel socially isolated [12-14]. Parents, in particular, positively influence the participation of their children with a physical disability at school, at home and in the community [15]. They undertake many actions to improve their child’s participation in daily life [15, 16]. However, little information is available about what parents of children with a physical disability do to enable their child’s participation, what they come across and what kind of needs they have. The overall aim of this thesis was to investigate parents’ actions, challenges, and needs while enhancing the participation of their school-aged child with a physical disability. In order to achieve this aim, two steps have been made. In the first step, the literature has been examined to explore the topic of this thesis (actions, challenges and needs) and to clarify definitions for the concepts of participation and social participation. Second, for the purposes of giving breadth and depth of understanding of the topic of this thesis a mixed methods approach using three different empirical research methods [17-19], was applied to gather information from parents regarding their actions, challenges and needs.
"How can we transform neighbourhoods in a child-friendly way to increase the quality of life for all citizens?" ContextMetamorphosis starts from the premise that when a neighbourhood has many children on its public spaces, this is a major indicator that it is well designed as a sustainable neighbourhood. The word sustainability itself is already inseparably combined with children as it implicates “designed for the next generations”. Metamorphosis focuses on children – but not only that, children will also play a crucial role in most Work Packages of the project. They will act as ambassadors, driving forces, encouragers of actions, translators, evaluators, investigators and in many more roles. As such, children represent an enormous added value to achieve unconventional and innovative findings, methods and implementations. Aim projectThe project has started in June 2017 and will last for three years. Twelve partners from seven European countries work together on this project to achieve the following goal: “Transformation of neighbourhoods in a child-friendly way to increase the quality of life for all citizens.”Role BUasBUas is Work Package leader of ‘Capacity building’. This includes sharing the lessons learned from Metamorphosis with cities and countries who are not directly involved in the project. Another important part of this Work Package is developing didactic materials in order to implement the gained knowledge from the project in curricula of educational institutes.
