Background: Intellectual disability (ID) is a developmental disorder that causes considerably below-average intellectual performance and adaptive behaviour. In the context of the present study, families raising a child with ID are reported to experience multiple challenges that appear not to be well documented in Pakistan. Methods and procedures: Pakistan, which was conducted in Karachi, Pakistan, followed participatory action research, in which the researcher and participants examined their existing experiences of informal social support and then created, implemented, and evaluated actions to strengthen this informal social support. A total of five families (n = 25) participated in the study. These participating families comprise parents, siblings, and significant others, i.e., aunts, uncles, and grandparents, living with the child with ID. Families with children with ID were selected through a school for children with ID who are under 12 years old. This qualitative action research was conducted in two distinct parts, i.e., a) exploratory part and b) action part. This paper presents the findings of the first exploratory part of the study. Aim: The exploratory phase aimed to explore and examine the experiences and challenges families may experience with informal social support while caring for a child with an intellectual disability in Karachi, Pakistan. Findings: Parents often sacrifice their personal needs and aspirations for their children, leading to decreased tolerance and anxiety. Lack of communication, support, and assistance from family members is another significant issue. Stigmatisation and discrimination from school, relatives, and friends can cause depression and distress. The study emphasises the need for a unified and coordinated approach to support and care. Religious beliefs, siblings, and close friends provide comfort and well-being. When parents manage to connect with similar families, they have the opportunity to express a collective commitment to caregiving. Conclusion: To strengthen the situation, families propose enhancing intimacy and competency within homes and taking action at the governmental level. Governments must provide appropriate services, such as nurses supporting families, support groups, and religious traditions, to promote acceptance and holistic development for intellectually disabled children.
Over the last two decades, there has been increasing political attention on sexual abuse in care. Research has not only shown that sexual abuse in care occurs but also that abuse can be perpetrated by other children and young people in care, children of foster carers, as well as by foster carers and residential staff members. One of the main risk factors turns out to be the absence of relationship and sexuality education in care. This chapter describes the work in a three-year project where partners in four European countries developed products to educate (future) professionals to address sex and sexuality with young people in care, assist young people’s healthy sexual development, and safeguard children and young people from abuse. Grounded in the holistic approach of the WHO’s Standards for Sexuality in Europe, and based on literature review and interviews, five core competencies were developed and operationalized in a reflection instrument. Based on this, an open access (online) course for teams in care and open access materials for social work education were developed and can be found at https://s3-euw1-ap-pe-df-pch-content-public-p.s3.eu-west-1.amazonaws.com/9780429342912/ac296fd5-0ba8-4c3d-97c0-792bf07178b6/content/www.amsterdamuas.com/safe">www.amsterdamuas.com/safe.
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