Background and objective Public involvement in palliative care is challenging and difficult, because people in need of palliative care are often not capable of speaking up for themselves. Patient representatives advocate for their common interests. The aim of our study was to examine in depth the current practice of public involvement in palliative care. Setting and sample The study was conducted in the province of Limburg in the Netherlands, with six palliative care networks. Study participants were 16 patient representatives and 12 professionals. Method This study had a descriptive design using qualitative methods: 18 in-depth interviews and three focus groups were conducted. The critical incident technique was used. The data were analysed using an analytical framework based on Arnstein’s involvement classification and the process of decision making. Impact categories as well as facilitators and barriers were analysed using content analysis. Findings and conclusion The perceived impact of public involvement in palliative care in terms of citizen control and partnership is greatest with regard to quality of care, information development and dissemination, and in terms of policymaking with regard to the preparation and implementation phases of decision making. The main difference in perceived impact between patient representatives and professionals relates to the tension between operational and strategic involvement. Patient representatives experienced more impact regarding short-term solutions to practical problems, while professionals perceived great benefits in long-term, strategic processes. Improving public involvement in palliative care requires positive attitudes, open communication, sufficient resources and long-term support, to build a solid basis for pursuing meaningful involvement in the entire decision-making process.
MULTIFILE
Wereldwijd onderzoek: Hoe gebruiken nieuwsmedia social media? Jongeren lezen geen krant meer, ze kijken op hun smartphone die ze altijd bij de hand hebben. Binnen het lectoraat social media en reputatiemanagement van NHL hogeschool te Leeuwarden heeft een groep internationale studenten in 12 landen onderzoek gedaan. Hierbij hebben ze meer dan 150 social media sites bestudeerd van nieuws media. De resultaten maken deel uit van een internationaal onderzoek van NHL Hogeschool en Haaga Helia University. De onderzoeksvraag was: Wat speelt zich af in de nieuwsmedia? Persbureaus kunnen het overzicht gebruiken om hun social media te optimaliseren. En voor ieder die journalistiek een warm hart toedraagt is het interessante informatie over de nieuwsmedia in een overgangssituatie (2nd edition)
Purpose–The purpose of this paper is to describe and understand dimensions of cultural activity involvement and the relationship between cultural activity involvement and behavioural loyalty. Design/methodology/approach–Semi-structured in-depth interviews with 47 customers of a theatre were held. Findings–The study shows that the concept of cultural activity involvement consists of six dimensions: attraction, centrality, self-expression, social bonding, cultural transmission and financial contribution. Three customer segments are taken into consideration according behavioural loyalty levels: incidental spectators, interested participants and the core audience. There are large differences between the three customer segments regarding cultural activity involvement. Research limitations/implications–Introspection might have decreased the reliability. As the study is a case study, problems with external validity are recognised. Practical implications–Given the decline of subsidies in the arts world, it becomes more important to attract more visitors and to increase spending. Performing arts organisations might attract more visitors in case they provide additional services which enable cultural transmission. Moreover, the study shows that certain visitors are willing to contribute additional money to the arts. Originality/value–Current studies about leisure involvement focus on recreation and distinguish four dimensions of involvement. This study focuses on cultural activity involvement and explores these four dimensions, but also shows there are two new dimensions. This study contributes to a further understanding of the relationship between cultural activity involvement and behavioural loyalty.
LINK
The HAS professorship Future Food Systems is performing applied research with students and external partners to transform our food system towards a more sustainable state. In this research it is not only a question of what is needed to achieve this, but also how and with whom. The governance of our food system needs rethinking to get the transformative momentum going in a democratic and constructive manner. Building on the professorship’s research agenda and involvement in the transdisciplinary NWA research project, the postdoc will explore collective ownership and inclusive participation as two key governance concepts for food system transformation. This will be done in a participatory manner, by learning from and with innovative bottom-up initiatives and practitioners from the field. By doing so, the postdoc will gain valuable practical insights that can aid to new approaches and (policy) interventions which foster a sustainable and just food system in the Netherlands and beyond. A strong connection between research and education is created via the active research involvement of students from different study programs, supervised by the postdoc (Dr. B. van Helvoirt). The acquired knowledge is embedded in education by the postdoc by incorporating it into HAS study program curricula and courses. In addition, it will contribute to the further professional development of qualitative research skills among HAS students and staff. Through scientific, policy and popular publications, participation in (inter)national conferences and meetings with experts and practitioners, the exposure and network of the postdoc and HAS in the field of food systems and governance will be expanded. This will allow for the setting up of a continuous research effort on this topic within the professorship via follow-up research with knowledge institutes, civic society groups and partners from the professional field.
Veel organisaties in met name de publieke sector kampen met bureaucratie, medewerkers die hun passie kwijt zijn en cliënten of burgers die zich een nummer voelen. Hoe kan een organisatie de bedoeling centraal stellen en weer wendbaar worden, waardoor zij weer oog krijgt voor de mensen die zij bedient? Hoe kan een organisatie voor sterke teams, coachend leiderschap en betekenisvol werk zorgen en het werkplezier van medewerkers vergroten? Een 'bottom-up'-aanpak van integrale organisatievernieuwing leidt in de praktijk tot goede resultatenDoel In dit ontwerpgerichte onderzoek wordt op participatieve wijze gewerkt aan een organisatieontwerp waarin de klant centraal staat en teams de bouwsteen vormen van de organisatie. Middels een methodiek ontwikkeld door het lectoraat werken professionals zelf aan het ontwerp van deze platte en eenvoudige organisatie en geven vorm aan hun teams waarin hun professionele autonomie groot is. Er wordt gekeken naar de aanpassingen van de organisatie die nodig zijn om teams te versterken, zoals een passende besturingsfilosofie, coachend leiderschap, ondersteunende diensten en systemen. Resultaten Dit onderzoek loopt. Na afloop vind je hier een samenvatting van de resultaten. Zelforganisatietool De door het lectoraat ontwikkelde zelforganisatietool biedt inzicht in de teamvorming en teamontwikkeling en geeft teams en hun leidinggevenden handvatten voor hun ontwikkelpad. Afstudeeratelier Organiseren van waardig werk Studenten van het Institute for People & Business die bezig zijn met hun afstudeeronderzoek rondom het thema Ontwerpen & Veranderen van organisaties vormen tezamen een afstudeeratelier. Zij verdiepen aan de hand van expertcolleges hun kennis en maken de kennis die zij opdoen vervolgens overdraagbaar naar andere organisaties en het onderwijs door de resultaten van hun onderzoek te delen. Aanpak De ontwerp- en verandermethodiek die in het praktijkgericht onderzoek wordt toegepast, is gebaseerd op een experiment in de ouderenzorg. De aanpak staat beschreven in de handreiking ‘Sociale innovatie in de ouderenzorg: samenwerken aan goede zorg, op reis met de client als kompas’ (Handreiking Sociale Innovatie). In dit artikel (Artikel Organisatieverandering van onderop) worden de resultaten van dit experiment toegelicht. Deze ontwerp- en verandermethode is vervolgens in diverse organisaties toegepast (Edward Lawler – High-Involvement Management). Momenteel wordt een soortgelijke participatieve methode ontwikkeld voor, en toegepast in het hoger onderwijs (https://www.hu.nl/onderzoek/projecten/naar-een-teamgerichte-organisatie). Onderwijsteams binnen de HU gebruiken de aanpak om zelforganiserend te worden en een teamgerichte organisatie te bouwen. Er wordt gelijktijdig onderzoek uitgevoerd om inzicht te krijgen in de verbetering van het organisatieontwerp, in de ontwikkeling van het zelforganiserend vermogen van teams en wat de lessons learned zijn ten behoeve van een handreiking voor het ontwerpen van een teamgerichte organisatie in het hoger onderwijs.
Coastal nourishments, where sand from offshore is placed near or at the beach, are nowadays a key coastal protection method for narrow beaches and hinterlands worldwide. Recent sea level rise projections and the increasing involvement of multiple stakeholders in adaptation strategies have resulted in a desire for nourishment solutions that fit a larger geographical scale (O 10 km) and a longer time horizon (O decades). Dutch frontrunner pilot experiments such as the Sandmotor and Ameland inlet nourishment, as well as the Hondsbossche Dunes coastal reinforcement project have all been implemented from this perspective, with the specific aim to encompass solutions that fit in a renewed climate-resilient coastal protection strategy. By capitalizing on recent large-scale nourishments, the proposed Coastal landSCAPE project C-SCAPE will employ and advance the newly developed Dynamic Adaptive Policy Pathways (DAPP) approach to construct a sustainable long-term nourishment strategy in the face of an uncertain future, linking climate and landscape scales to benefits for nature and society. Novel long-term sandy solutions will be examined using this pathways method, identifying tipping points that may exist if distinct strategies are being continued. Crucial elements for the construction of adaptive pathways are 1) a clear view on the long-term feasibility of different nourishment alternatives, and 2) solid, science-based quantification methods for integral evaluation of the social, economic, morphological and ecological outcomes of various pathways. As currently both elements are lacking, we propose to erect a Living Lab for Climate Adaptation within the C-SCAPE project. In this Living Lab, specific attention is paid to the socio-economic implications of the nourished landscape, as we examine how morphological and ecological development of the large-scale nourishment strategies and their design choices (e.g. concentrated vs alongshore uniform, subaqueous vs subaerial, geomorphological features like artificial lagoons) translate to social acceptance.
