Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand parents’ needs and provide proper support. Design: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with six parents of severely disabled children. Results: In the literature on chronic sorrow, an important aspect has been consistently overlooked: the particular position of being a parent, experiencing an awareness of being ultimately responsible for their children. The analysis revealed how this awareness, experienced as a deeply felt ethical commitment, unconditional, largely in isolation, and without a limit in time, shaped the experience of chronic sorrow. Because of this awareness, the parents experienced themselves facing a Herculean task of navigating their intricate motions while struggling to maintain their ability to function. Conclusions: By revealing the importance of considering the unique parental position, the study enriches the concept of chronic sorrow, simultaneously offering insights into what it means to be a parent of a disabled child. These insights can improve care professionals’ responsiveness to parental needs.
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Presentatie gegeven over de review in Brussel Objectives: In the past decades many psychosocial interventions for elderly people with dementia have been developed and implemented. Relatively little research has been done on the extent to which these interventions were implemented in the daily care. The aim of this study was to obtain insight into strategies for successful implementation of psychosocial interventions in the daily residential dementia care. Using a modified RE-AIM framework, the indicators that are considered important for effective and sustainable implementation were defined.
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Chronic sorrow involves parents’ enduring grief due to their child’s disability. This stems not only from the recurring painful reality parents face, which differs from the life they had hoped for their children, families, and themselves but from also being confronted with societal and personal norms and expectations they cannot meet. There is a lack of research on the lived experiences of parents’ chronic sorrow. An Interpretative Phenomenological Analysis (IPA) study involving six parents with severely disabled children explored what it is like for parents to confront being ‘‘different.’’ Besides sorrow, the parents experienced intense ambiguity,guilt, and uncertainty while navigating societal expectations and their own perceptions of their children. Their ideas of parenthood and their self-identity as parents proved central to their strategies. This study provides insight into the intricacies of this particular aspect of chronic sorrow in parents, with relevance for research and practice.
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The challenges we collectively face, such as climate change, are characterized by more complexity, interdependence, and dynamism than is common for educational practice. This presents a challenge for (university) education. These transition challenges are often described as wicked or VUCA (Volatile, Uncertain, Complex, and Ambiguous) problems. In response, educational innovations that are inspired by ecology such as living labs are starting to emerge, but little is known about how learners engage within and with these more ecological forms of education. This work is an exploratory study into how learners navigate VUCA learning environments linked to tackling sustainability transition challenges, with a focus on the positive qualities of these experiences. This is done through interpretative phenomenological analysis (IPA) of seven students (using semi-structured interviews) of the MSC Metropolitan Analysis, Design and Engineering program, a joint degree from Wageningen University and Delft University of Technology in the Netherlands. The main findings, which are both psychological and educational, of this exploration include openness to new experiences (1), flexibility (2), a process appreciation of learning (3), a desire to create a positive impact on one’s direct biophysical environment (4) and society (5). In addition, we discuss the potential limitations of the malleability of these different qualities and propose future avenues for research into ecological learning for universities. This work closes by highlighting recommendations for educators to consider when designing or engaging in ecological forms of higher education that connect students to sustainability transitions.
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PowerPoint presentation, shown during a lecture held by Derk Jan Stobbelaar, lecturer at Van Hall Larenstein, at the 9th International Conference 'Interpretive Policy Analysis' (IPA).
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Background: Smoking is an avoidable risk factor for diseases, impacting socioeconomic and health care systems globally. The meaning, purposes, and values related to continued smoking after being diagnosed with COPD have not yet been sufficiently explored from an occupational perspective. Gaining an understanding of why people continue to engage in health-compromising or harmful occupations facilitates a more inclusive view on and discussion of occupation. The purpose of this study was to explore meaning construction regarding the occupation of tobacco smoking of people living with COPD in Germany. Methods: This study applied an interpretative phenomenology analysis (IPA) approach to explore the lived experience of people living with COPD who continue to smoke. Four participants were interviewed. Their accounts were then analysed following IPA guidelines. Findings: Three themes emerged from the data: Set in stone, Forbidden fruit, and To wear sackcloth and ashes. Smoking was experienced as a meaningful occupation, and it was especially valued for how it structured the day. Smoking was a familiar habit, and it supported emotional, physical, and cognitive well-being, and contributed to sense of identity. Conclusion: The findings illustrate the importance of understanding occupations that are not positively related to physical health and well-being because of their harmful nature. The findings of this study suggest that occupations do not need to be health-promoting, productive, or reasonable to be meaningful to individuals—meaning is constructed by subjective perceptions of enjoyment, pleasure, and well-being and by experiencing a sense of restoration and reward when engaging in them.
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Patienten in der forensischen Psychiatrie sind während ihrer Behandlung häufig Aggressionen von Mitpatienten ausgesetzt. Uns sind jedoch keine Untersuchungen darüber bekannt, wie sich dies auf das Wohlbefinden der Patienten und den Behandlungsverlauf auswirkt. In dieser Studie befragten wir neun Patienten zu ihren Erfahrungen mit Viktimisierung während der psychiatrischen Zwangsbehandlung. Die Interviews wurden analysiert mit Hilfe eines Grounded-Theory-Ansatzes in Kombination mit Elementen der konsensuellen qualitativen Forschung und der interpretativen phänomenologischen Analyse. Aus den Daten ergaben sich drei Hauptthemen, nämlich situative Beschreibungen sowie intra- und interpersonelle Konsequenzen. Die Patienten waren nicht nur körperlicher Gewalt und verbaler Aggression durch andere Patienten ausgesetzt, sondern auch einem allgegenwärtigen Strom von mikroaggressiven Kommentaren. Die Möglichkeiten, diesen Situationen zu entkommen, waren begrenzt. Dies bedeutet, dass die Viktimisierungsprozesse, die bei den meisten Patienten bereits in einem früheren Lebensabschnitt begonnen haben, während der forensisch-psychiatrischen Behandlung fortgesetzt werden. Zu den intrapersonellen Folgen gehören Angst, Hypervigilanz, reaktive Aggression, Flashbacks sowie Vermeidungs- und Rückzugsverhalten. Zu den zwischenmenschlichen Auswirkungen zählen verstärkte Machtunterschiede zwischen den Patienten und nachteilige Behandlungsergebnisse, wie z. B. Probleme mit dem Selbstwertgefühl. Viktimisierungsprozesse werden in einem Umfeld, das sich auf die Risiken und die Behandlung von kriminellem Verhalten konzentriert, nicht immer rechtzeitig bemerkt. Daher ist ein höheres Maß an Traumasensibilität in der forensisch-psychiatrischen Versorgung erforderlich. Es werden Empfehlungen für die Umsetzung einer traumainformierten Versorgung gegeben.
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Regenerative forms of higher education are emerging, and required, to connect with some of the grand transition challenges of our times. This paper explores the lived experience of 21 students learning to navigate a regenerative form of higher education in the Mission Impact course at The Hague University of Applied Sciences. This semester-length course ran for two iterations with the intention of connecting the students with local transitions towards a more circular society, one where products are lasting and have multiple lives when they are shared, refurbished, or become a source for a new product. At the end of each iteration, the students reflected on their experience using the Living Spiral Framework, which served as basis for an interpretative phenomenological analysis of their journey navigating this transformative course. The results of this study include four themes; (1) Opting in—Choosing RHE, (2) Learning in Regenerative Ways, (3) Navigating Resistance(s), and (4) Transformative Impacts of RHE. These themes can be used by practitioners to design and engage with regenerative forms of higher education, and by scholars to guide further inquiry. van den Berg B, Poldner KA, Sjoer E, Wals AEJ. ‘Sweet Acid’ An Interpretative Phenomenological Analysis of Students’ Navigating Regenerative Higher Education. Education Sciences. 2022; 12(8):533. https://doi.org/10.3390/educsci12080533
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While the importance of professional support following very preterm delivery (VP) is established, the parental experience of support still warrants deeper understanding. Evaluation of a Dutch one-year post-discharge responsive parenting intervention following VP suggested that parents with lower educational levels benefitted less from the program. This idiographic phenomenological study investigated the lived experiences of two mothers with differing educational backgrounds receiving professional support during hospitalization and post-discharge. In-depth interviews with the mothers were analyzed using Interpretative Phenomenological Analysis. We formulate three impressions: (1) How the mothers made sense of their experiences resonated with the findings of research on class differences in parenting. (2) The mothers valued professionals who struck a personalized balance between supporting their maternal agency and attending to their vulnerability and needs for help and perspective. (3) The mothers experienced greater trust in professionals who could suspend pre- conceived assumptions and take their personal characteristics into consideration. Practice suggestions are extrapolated for social work professionals. The study has relevance to educational diversity and recommends an overarching sensitivity to positionality in professional work with parents.
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One of the goals of this research is to arrive at an implementation of a CAN-bus that can be used for lab exercises in regular student courses. In this paper, an overview is given of our basic ideas concerning the CAN concept and its application to the control of a manufacturing system. This system consists of two robots, a milling machine and some transportation means. In this system, every workstation will have its own CAN controller. The concept consists of a specially designed hardware structure, embedded software for the protocol and initialisation and a high level production environment, that makes it possible to configure a production system in an easy way.
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