Objective: To report the study protocol and baseline characteristics of a prospective cohort study to evaluate longitudinal recovery trajectories of patients recovering from COVID-19 who have visited a primary care allied health professional. Design: Report of the protocol and baseline characteristics for a prospective cohort study with a mixed-methods approach. Patients: Patients recovering from COVID-19 treated by primary care dietitians, exercise therapists, occupational therapists, physical therapists and/or speech and language therapists in the Netherlands. Methods: The prospective study will measure primary outcome domains: participation, health-related quality of life, fatigue, physical functioning, and costs, at baseline, 3, 6, 9 and 12 months. Interviews, on the patients’ experiences with allied healthcare, will be held with a subsample of patients and allied health professionals. Results: The cohort comprises 1,451 patients (57% female, mean age 49 (standard deviation 13) years). Preliminary results for the study cohort show that 974 (67%) of the participants reported mild/moderate severity symptoms during the infection period and patients reported severe restrictions in activities of daily living compared with previous research in other patient populations. Both quantitative and qualitative, will provide insight into the recovery of patients who are treated by allied health professionals. Conclusion: In conclusion, this will be the first comprehensive study to longitudinally evaluate the recovery trajectories and related costs of patients recovering from COVID-19 who are treated by allied health professionals in the Netherlands. This study will provide evidence for the optimal strategy to treat patients recovering from COVID-19 infection, including which patients benefit, and to what extent, from treatment, and which factors might impact their recovery course over time. The preliminary results of this study demonstrated the severity of restrictions and complaints at the start of therapy are substantial.
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Objective: To report the study protocol and baseline characteristics of a prospective cohort study to evaluate longitudinal recovery trajectories of patients recovering from COVID-19 who have visited a primary care allied health professional. Design: Report of the protocol and baseline characteristics for a prospective cohort study with a mixedmethods approach. Patients: Patients recovering from COVID-19 treated by primary care dietitians, exercise therapists, occupational therapists, physical therapists and/or speech and language therapists in the Netherlands. Methods: The prospective study will measure primary outcome domains: participation, health-related quality of life, fatigue, physical functioning, and costs, at baseline, 3, 6, 9 and 12 months. Interviews, on the patients' experiences with allied healthcare, will be held with a subsample of patients and allied health professionals. Results: The cohort comprises 1,451 patients (57% female, mean age 49 (standard deviation 13) years). Preliminary results for the study cohort show that 974 (67%) of the participants reported mild/moderate severity symptoms during the infection period and patients reported severe restrictions in activities of daily living compared with previous research in other patient populations. Both quantitative and qualitative, will provide insight into the recovery of patients who are treated by allied health professionals. Conclusion: In conclusion, this will be the first comprehensive study to longitudinally evaluate the recovery trajectories and related costs of patients recovering from COVID-19 who are treated by allied health professionals in the Netherlands. This study will provide evidence for the optimal strategy to treat patients recovering from COVID-19 infection, including which patients benefit, and to what extent, from treatment, and which factors might impact their recovery course over time. The preliminary results of this study demonstrated the severity of restrictions and complaints at the start of therapy are substantial.
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Introduction: The transition from hospital to home is often suboptimal, resulting in patients not receiving the necessary allied healthcare after discharge. This may, in turn, lead to delayed recovery, a higher number of readmissions, more emergency department visits and an increase in mortality and healthcare costs. This study aimed to gain insight into patients' experiences, perceptions, and needs regarding hospital-to-home transition, focusing on allied healthcare as a first step towards the development of a transitional integrated allied healthcare pathway for patients with complex care needs after hospital discharge. Methods: We conducted semistructured interviews with patients. Participants were recruited from universities and general hospitals in the Amsterdam region between May and July 2023. They were eligible if they (1) were discharged from the hospital minimally 3 and maximally 12 months after admission to an oncologic surgery department, internal medicine department, intensive care unit, or trauma centre, (2) received hospital-based care from at least one allied healthcare provider, who visited the patient at least twice during hospital admission, (3) spoke Dutch or English and (4) were 18 years or older. Interviews were audio-recorded and transcribed verbatim. We performed a thematic analysis of the interview data. Results: Nineteen patients were interviewed. Three themes emerged from the analysis. ‘Allied healthcare support during transition’ depicts patients' positive experiences when they felt supported by allied health professionals during the hospital-to-home transition. ‘Patient and family involvement’ illustrates how much patients value the involvement of their family members during discharge planning. ‘Information recall and processing’ portrays the challenges of understanding and remembering overwhelming amounts of information, sometimes unclear and provided at the wrong moment. Overall, patients' experiences of transitional care were positive when they were involved in the discharge process. Negative experiences occurred when their preferences for postdischarge communication were ignored. Conclusions: This study suggests that allied health professionals need to continuously collaborate and communicate with each other to provide patients and their families with the personalized support they need. To provide high-quality and person-centred care, it is essential to consider how, when, and what information to provide to patients and their families to allow them to contribute to their recovery actively. Patient or Public Contribution: The interview guide for this manuscript was developed with the assistance of patients, who reviewed it and provided us with feedback. Furthermore, patients provided us with their valuable lived experiences by participating in the interviews conducted for this study.
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“In Nederland overleden in 2010 ongeveer 136.000 mensen, waarvan 108.500 (ca. 80%) niet onverwacht. Bij deze laatste groep is palliatieve zorg aan de orde. Hiervan was 80% ouder dan 65 jaar. In de toekomst zal dit aantal door de dubbele vergrijzing sterk toenemen. Van de mensen die in 2008 overleden aan een chronische ziekte stierf 34% thuis (IKNL, Algemene principes van palliatieve zorg)”. 84% van de Nederlandse bevolking prefereert thuis te sterven (Gomes, 2012).Palliatieve zorg helpt bij het voorkomen en verlichten van gezondheidgerelateerd lijden door vroege identificatie, juiste beoordeling en behandeling van pijn en andere problemen (WHO, 2020). Bij thuiswonende kankerpatiënten in de Nederlandse eerstelijnszorg geeft 72% aan pijn te ervaren, van wie 25% ondraaglijke pijn (Ruijs, 2012). Meer dan een kwart van de oudere volwassen patiënten ervaart pijn in de laatste 2 jaar van hun leven, waarbij de prevalentie toeneemt van 23% in 24 maanden voorafgaand aan het overlijden tot 55% in de laatste levensmaand (Smith, 2010). Tijdens de laatste levensweek meldt 25% van de palliatieve patiënten pijn te ervaren, ondanks het voorschrijven van opioïden (Klint, 2019). Onverlichte pijn is een veelvoorkomend probleem bij patiënten die sterven aan kanker en aan niet-kwaadaardige chronische ziekten. De leeropdracht Kortdurende zorg en interprofessionele samenwerking bij kwetsbare ouderen is onderdeel van het lectoraat Healthy Ageing, Allied Healthcare and Nursing. De insteek binnen de wijkverpleging van ZuidOostZorg is om, waar mogelijk, de kwetsbare ouderen kortdurend te ondersteunen en te werken aan reablement. In de laatste levensfase zijn de kortdurende doelen en acties gericht op het bieden van kwaliteit van leven, waarin een intensieve samenwerking is met o.a. huisartsen. Dit kan bijvoorbeeld zijn op het gebied van het in kaart brengen van de laatste levenswensen (proactieve zorgplanning), bieden van symptoommanagement en zorg voor naasten.
