Vragen als ‘Wat is authentiek leiderschap?’ of ‘Wat is de rol van de creatieve professional in complexe maatschappelijke vraagstukken?’ komen niet uit de lucht vallen. Er is een context, er zijn (beweeg)redenen waarom deze vragen (nu) worden gesteld. Dat geldt ook voor de zoektocht naar de rol van het onderwijs voor het aangaan van maatschappelijke vraagstukken of het verlangen om ‘mens te mogen zijn’ zoals geformuleerd in de visie van het domein Creative Business van Hogeschool Inholland. Deze thema’s serieus nemen betekent ook deze belichten vanuit de huidige tijdgeest en de oorzaken ontrafelen waarom een vraag (nu) speelt. Ik zal eerst de contouren schetsen van de huidige tijdgeest waarin complexe vraagstukken ontstaan en dan ingaan op de manier hoe we gewend zijn deze op te lossen.
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Objective: The majority of parents with a disabled child experience chronic sorrow, characterized by recurrent feelings of grief and loss related to their child’s disability. There is a significant lack of research on parents’ lived experiences of chronic sorrow, which limits our ability to understand parents’ needs and provide proper support. Design: Interpretative Phenomenological Analysis (IPA) was conducted based on in-depth interviews with six parents of severely disabled children. Results: In the literature on chronic sorrow, an important aspect has been consistently overlooked: the particular position of being a parent, experiencing an awareness of being ultimately responsible for their children. The analysis revealed how this awareness, experienced as a deeply felt ethical commitment, unconditional, largely in isolation, and without a limit in time, shaped the experience of chronic sorrow. Because of this awareness, the parents experienced themselves facing a Herculean task of navigating their intricate motions while struggling to maintain their ability to function. Conclusions: By revealing the importance of considering the unique parental position, the study enriches the concept of chronic sorrow, simultaneously offering insights into what it means to be a parent of a disabled child. These insights can improve care professionals’ responsiveness to parental needs.
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Aim Many long-term ostomates are ‘out-of-sight’ of healthcare, and it is unknown how ostomates deal with ostomy- related problems and how these problems affect their quality of life (QOL). The aim is to examine patient-related studies describing ostomy-related problems and their impact on the perceived QOL of long-term colostomates. Methods The electronic databases PubMed (MEDLINE), CINAHL, Cochrane Library and PsycINFO were systematically searched. All studies were included in which ostomy- specific QOL was measured using validated multidimensional instruments. Results Of the 6447 citations identified, 14 prevailingly descriptive cross-sectional studies were included. Three different validated multidimensional instruments for measuring QOL in ostomates were used (EORTC C30/CR38, MCOHQOLQO, Stoma QOL Questionnaire). All studies demonstrated that living with a colostomy influences the overall QOL negatively. The ostomy-related problems described included sexual problems, depressive feelings, gas, constipation, dissatisfaction with appearance, change in clothing, travel difficulties, feeling tired and worry about noises. Conclusion In conclusion, all 14 studies gave an indication of the impact of ostomy-related problems on the perceived QOL and demonstrated that a colostomy influences the QOL negatively. There is a wide range of ostomyspecific QOL scores, and there seem to be higher QOL scores in the studies where the MCOHQOLQO instrument was used. The MCOHQOLQO and the Stoma QOL Questionnaire gave the most detailed information about which ostomy-related problems were experienced. This review adds knowledge about the impact of stoma-related problems on QOL of long-term ostomates, but more research has to be conducted, to detect ostomy-related problems and especially possible care needs.
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Abstract of the lecture that Derk-Jan Stobbelaar gave at the 6th Living Knowledge Conference at Copenhagen.
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Background: Research in maternity care is often conducted in mixed low and high-risk or solely high-risk populations. This limits generalizability to the low-risk population of pregnant women receiving care from Dutch midwives. To address this limitation, 24 midwifery practices in the Netherlands bring together routinely collected data from medical records of pregnant women and their offspring in the VeCaS database. This database offers possibilities for research of physiological pregnancy and childbirth. This study explores if the pregnant women in VeCaS are a representative sample for the national population of women who receive primary midwife-led care in the Netherlands. Methods: In VeCaS we selected a low risk population in midwife-led care who gave birth in 2015. We compared population characteristics and birth outcomes in this study cohort with a similarly defined national cohort, using Chi Square and two side t-test statistics. Additionally, we describe some birth outcomes and lifestyle factors. Results: Midwifery practices contributing to VeCaS are spread over the Netherlands, although the western region is underrepresented. For population characteristics, the VeCaS cohort is similar to the national cohort in maternal age (mean 30.4 years) and parity (nulliparous women: 47.1% versus 45.9%). Less often, women in the VeCaS cohort have a non-Dutch background (15.7% vs 24.4%), a higher SES (9.9% vs 23.7%) and live in an urbanised surrounding (4.9% vs 24.8%). Birth outcomes were similar to the national cohort, most women gave birth at term (94.9% vs 94.5% between 37 + 0–41+ 6 weeks), started labour spontaneously (74.5% vs 75.5%) and had a spontaneous vaginal birth (77.4% vs 77.6%), 16.9% had a home birth. Furthermore, 61.1% had a normal pre-pregnancy BMI, and 81.0% did not smoke in pregnancy. Conclusions: The VeCaS database contains data of a population that is mostly comparable to the national population in primary midwife-led care in the Netherlands. Therefore, the VeCaS database is suitable for research in a healthy pregnant population and is valuable to improve knowledge of the physiological course of pregnancy and birth. Representativeness of maternal characteristics may be improved by including midwifery practices from the urbanised western region in the Netherlands.
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Introduction This study aims to explore maternal and perinatal outcomes of migrant women in Iceland. Material and methods This prospective population-based cohort study included women who gave birth to a singleton in Iceland between 1997 and 2018, comprising a total of 92 403 births. Migrant women were defined as women with citizenship other than Icelandic, including refugees and asylum seekers, and categorized into three groups, based on their country of citizenship Human Development Index score. The effect of country of citizenship was estimated. The main outcome measures were onset of labor, augmentation, epidural, perineum support, episiotomy, mode of birth, obstetric anal sphincter injury, postpartum hemorrhage, preterm birth, a 5-minute Apgar <7, neonatal intensive care unit admission and perinatal mortality. Odds ratios (ORs) and 95% confidence intervals (CIs) for maternal and perinatal outcomes were calculated using logistic regression models. Results A total of 8158 migrant women gave birth during the study period: 4401 primiparous and 3757 multiparous. Overall, migrant women had higher adjusted ORs (aORs) for episiotomy (primiparas: aOR 1.43, 95% CI 1.26–1.61; multiparas: 1.39, 95% CI 1.21–1.60) and instrumental births (primiparas: 1.14, 95% CI 1.02–1.27, multiparas: 1.41, 95% CI 1.16–1.72) and lower aORs of induction of labor (primiparas: 0.88, 95% CI 0.79–0.98; multiparas: 0.74, 95% CI 0.66–0.83), compared with Icelandic women. Migrant women from countries with a high Human Development Index score (≥0.900) had similar or better outcomes compared with Icelandic women, whereas migrant women from countries with a lower Human Development Index score than that of Iceland (<0.900) had additionally increased odds of maternal and perinatal complications and interventions, such as emergency cesarean and postpartum hemorrhage. Conclusions Women’s citizenship and country of citizenship Human Development Index scores are significantly associated with a range of maternal and perinatal complications and interventions, such as episiotomy and instrumental birth. The results indicate the need for further exploration of whether Icelandic perinatal healthcare services meet the care needs of migrant women.
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Friday 27th October 2018 the official kick-off event unfolded at Inholland University of Applied Sciences in Delft. Participants from numerous companies and research establishments congregated to make new acquaintances and share their ideas. The dean of Inholland Delft, Gerard van Oosten, gave a welcoming speech. Next lector Robotica Cock Heemskerk formally introduced the unique HiPerGreen project. Several guest speakers presented additional subject related information: Jeremy Harbinson (distinguished researcher in plant physiology atm Wageningen UR), David Pajares (AvioniCS – a company specialised in rapid prototyping and control systems for small UAVs) and Arash Noroozi (ElpaNav, a start-up company for localisation technology). Lucien Fesselet, assistant project manager, resumed the day with a brief history of the ‘Drones in de kas’ project where HiPerGreen evolved from. Then the audience were split into smaller groups to assess the risks associated within each project work package. A important outcome was the consensus that the business case validation should be started right from the beginning. The kick-off was concluded with a drink.
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On February 23, 2016, Zac Woolfitt gave a live webinar on video teaching. He was located at Inholland Diemen (where he also teaches Tourism), the broadcast was directly transferred to the Sonic Foundry worldwide users group, based in Madison, Wisconsin, USA.
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Friday 23rd March 2018 the first HiPerGreen semi-annual symposium took place at the newly opened World Horti Center in Naaldwijk. Participants in the form of students, professors and company representatives came together to share progress and ideas. Cock Heemskerk, lector Robotica, opened the event with a welcoming speech. Lucien Fesselet, assistant project manager, followed with general updates on the project. Then the floor was given to the students to present their results and progress. Pieter van der Hoeven, associate lector, presented on behalf of four graduating students from the Business, Finance and Law department the assignment on market research. The findings show great potential in business opportunity with the Orchid market. Amora Amir, a potential PhD researcher on big data, gave a speech on the usefulness and the need to understand big amounts of data. Lucien Fesselet performed a live flight demonstration to give an idea of the capabilities and the behaviour of the drone. After the risk analasys the sympoium was concluded with a drink.
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Students, researchers, professors and company representatives gathered to share progress and ideas at the second half-year symposium of HiPerGreen at the World Horti Center in Naaldwijk. HiPerGreen is a Raak MKB subsidised research project aiming to bring value to horticultural growers. Cock Heemskerk, head of the HiPerGreen project and lector Robotica at InHolland University of Applied Sciences, welcomed everyone and gave an overall status update. Then Lucien, Fesselet project manager at HiPerGreen, talked about the minimal viable product (MVP) to make automated detection of fusarium in Phalaenopsis (a type of orchid) possible. Three consortium partners were invited to explain what they do for HiPerGreen and what their motives for participation are: Igno Breukers (DB2-Vision, start-up of a new type of multispectral camera for Precision Agriculture), Tim Brander (head grower at Hazeu Orchids) and Tom Kearny-Mitchel (plant biology advisor at Applied Drone Innovations). Next several students summarised their team’s work, findings and failures to the audience. During the live demo Lucien unveiled one of the team’s newly-built technologies: live stream thermal images of plants. The sympoium was concluded with a brainstorm session and drink.
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