Marfan syndrome (MFS) is a multisystemic, autosomal dominant connective tissue disorder that occurs de novo in 25%. In many families, parent and child(ren) are affected, which may increase distress in parents. To assess distress, 42 mothers (29% MFS) and 25 fathers (60% MFS) of 43 affected children, completed the validated screening‐questionnaire Distress thermometer for parents of a chronically ill child, including questions on overall distress (score 0–10; ≥4 denoting “clinical distress”) and everyday problems (score 0–36). Data were compared to 1,134 control‐group‐parents of healthy children. Mothers reported significantly less overall distress (2, 1–4 vs. 3, 1–6; p = .049; r = −.07) and total everyday problems (3, 0–6 vs. 4, 1–8; p = .03; r = −.08) compared to control‐group‐mothers. Mothers without MFS reported significantly less overall distress compared to mothers with MFS, both of a child with MFS (1, 0–4 vs. 3.5, 2–5; p = .039; r = −.17). No significant differences were found between the father‐groups, nor between the group of healthy parents of an affected child living together with an affected partner compared to control‐group‐parents. No differences in percentages of clinical distress were reported between mothers and control‐group‐mothers (33 vs. 42%); fathers and control‐group‐fathers (28 vs. 32%); nor between the other groups. Distress was not associated with the children's MFS characteristics. Concluding, parents of a child with MFS did not show more clinical distress compared to parents of healthy children. However, clinical distress was reported in approximately one‐third and may increase in case of acute medical complications. We advise monitoring distress in parents of a child with MFS to provide targeted support.
This thesis focuses on the effectiveness of a family-centered approach (in Dutch “DMOprotocol”, further referred to as the family-centered approach), designed for monitoring and enhancing children’s social-emotional development in Preventive Child Healthcare (PCH). The effectiveness study took place at a Dutch PCH organization (Icare JGZ). In a quasi-experimental design, regions in which the family-centered approach had already been implemented (northern and southeastern part of Drenthe) were compared to regions in which care-as-usual had been maintained (northern part of Overijssel). The aim was to assess the added value of the family-centered approach from different perspectives. Therefore several research questions were answered in analyses that arereported in different chapters of this thesis.
MULTIFILE
Maintaining the child-robot relationship after a significant break, such as a holiday, is an important step for developing sustainable social robots for education. We ran a four-session user study (n = 113 children) that included a nine-month break between the third and fourth session. During the study, participants practiced math with the help of a social robot math tutor. We found that social personalization is an effective strategy to better sustain the child-robot relationship than the absence of social personalization. To become reacquainted after the long break, the robot summarizes a few pieces of information it had stored about the child. This gives children a feeling of being remembered, which is a key contributor to the effectiveness of social personalization. Enabling the robot to refer to information previously shared by the child is another key contributor to social personalization. Conditional for its effectiveness, however, is that children notice these memory references. Finally, although we found that children's interest in the tutoring content is related to relationship formation, personalizing the topics did not lead to more interest in the content. It seems likely that not all of the memory information that was used to personalize the content was up-to-date or socially relevant.
MULTIFILE
The project’s aim is to foster resilient learning environments, lessen early school leaving, and give European children (ages 4 -6) a good start in their education while providing and advancing technical skills in working with technology that will serve them well in life. For this purpose, the partnership has developed age appropriate ICT animation tools and games - as well as pedagogical framework specific to the transition phase from kindergarten to school.
The growing use of digital media has led to a society with plenty of new opportunities for knowledge exchange, communication and entertainment, but also less desirable effects like fake news or cybercrime. Several studies, however, have shown that children are less digital literate than expected. Digital literacy has consequently become a key part within the new national educational policy plans titled Curriculum.nu and the Dutch research and policy agendas. This research project is focused on the role the game sector can play in the development of digital literacy skills of children. In concrete, we want to understand the value of the use of digital literacy related educational games in the context of primary education. Taking into consideration that the childhood process of learning takes place through playing, several studies claim that the introduction of the use of technology at a young age should be done through play. Digital games seem a good fit but are themselves also part of digital media we want young people to be literate about. Furthermore, it needs to be taken into account that digital literacy of teachers can be limited as well. The interactive, structured nature of digital games offers potential here as they are less dependent on the support and guidance of an adult, but at the same time this puts even more emphasis on sensible game design to ensure the desired outcome. The question is, then, if and how digital games are best designed to foster the development of digital literacy skills. By harnessing the potential of educational games, a consortium of knowledge and practice partners aim to show how creating theoretical and practical insights about digital literacy and game design can aid the serious games industry to contribute to the societal challenges concerning contemporary literacy demands.
De robot assistent is een nieuwe, veelbelovende technologie om docenten te ondersteunen en leerprestaties te verbeteren. Echter, een moreel kader voor een aanvaardbare inzet van zulke robots mist nog.Doel Het doel van dit project is, het creëren van een richtlijn, in samenwerking met stakeholders, voor het toepassen van robots in het basisonderwijs op een moreel verantwoorde manier. Resultaten Het hoofddoel van dit project is het creëren van een richtlijn voor het moreel verantwoord toepassen van sociale robots in het Nederlandse basisonderwijs. Deze richtlijn kan worden gebruikt door alle belangrijke belanghebbenden, zoals leraren, robotbedrijven en schoolbesturen, bij het nemen van beslissingen over het ontwerpen, bouwen en toepassen van sociale robots. Looptijd 01 november 2017 - 01 november 2021 Aanpak Dit project maakt gebruik van de Value Sensitive Design Methodology. Ten eerste voeren we een grootschalig systematisch literatuuronderzoek uit om de relevante morele waarden te identificeren. Daarna houden we focusgroepsessies met belanghebbenden om deze waarden verder te conceptualiseren. Op basis van de focusgroepsessies zullen we een enquête ontwikkelen om kwantitatieve gegevens over de stakeholderperspectieven te verkrijgen. Deze onderzoeken vormen de basis voor de richtlijnen. Extra informatie Stel je voor: een robot die de leerkracht helpt in de klas. Interview met Matthijs Smakman voor De Nationale Wetenschapsagenda (NWA) Relevantie Bijdrage aan de wetenschap Meerdere studies benadrukken de dringende behoefte aan ethische reflectie en richtlijnen voor robotleraren en theoretisch integratie van de tot dusver bekende, gefragmenteerde resultaten. Dit promotieonderzoek beoogt dit te doen door het ontwikkelen van een nieuwe moraaltheorie over de ethische opvattingen die verbonden zijn aan de implementatie van robotleraren, en test de theoretische aannames empirisch. De resultaten zullen worden verspreid op wetenschappelijke conferenties, debatten en in tijdschriftpublicaties. Bijdrage aan de samenleving De angst en implicaties van intelligente robots die banen overnemen, maakt deel uit van een internationaal debat (Brynjolfsson & McAfree, 2016) en zal een grote impact hebben op de taken van docenten. Robotleraren zijn een perfecte kandidaat om te helpen leraren in hun toenemende werkdruk. Er moet echter voorzichtig worden omgegaan met het introduceren van robotleraren in het klas. Dit doctoraatsonderzoek erkent de morele overwegingen en zorgt voor de nodige theoretische basis om een richtlijn te ontwikkelen voor de implementatie van robotleraren op een moreel gepaste manier. De resultaten wordt via websites, videoclips en maatschappelijke debatten aan het publiek getoond. Co-financiering Dit onderzoek is gefinancierd door NWO, Promotiebeurs voor Leraren, projectnumer: 023.00.066 Aanvullende documenten en doorverwijzingen Publicaties Smakman, M.H.J.; Konijn, E.A.; Vogt, P.; Pankowska, P. Attitudes towards Social Robots in Education: Enthusiast, Practical, Troubled, Sceptic, and Mindfully Positive. Robotics 2021, 10, 24. https://doi.org/10.3390/robotics10010024 Smakman, M., Berket, J., Konijn, E. A. (2020, October). The Impact of Social Robots in Education: Moral Considerations of Dutch Educational Policymakers. In 2020 29th IEEE International Conference on Robot and Human Interactive Communication (RO-MAN) (pp. 647-652). IEEE. Van Ewijk, G., Smakman, M., & Konijn, E. A. (2020, June). Teacher's perspectives on social robots in education: an exploratory case study. In Proceedings of the Interaction Design and Children Conference (pp. 273-280). Konijn, E.A., Smakman, M. & van den Berghe, R. (2020). Use of Robots in Education. In: van den Bulck, J., Sharrer, E., Ewoldsen, D. & Mares, M-L. (Eds). The International Encyclopedia of Media Psychology. Wiley Publisher Smakman, M., Jansen, B., Leunen, J., & Konijn, E. (2020) Acceptable Social Robots in Education: A Value Sensitive Parent Perspective. In INTED2020 Proceedings (pp 7946-7953). Smakman M., Konijn E.A. (2020) Robot Tutors: Welcome or Ethically Questionable?. In: Merdan M., Lepuschitz W., Koppensteiner G., Balogh R., Obdržálek D. (eds) Robotics in Education. RiE 2019. Advances in Intelligent Systems and Computing, vol 1023. Springer, Cham Goudzwaard, M., Smakman, M., & Konijn, E. A. (2019). Robots are Good for Profit: A Business Perspective on Robots in Education. 2019 Joint IEEE 9th International Conference on Development and Learning and Epigenetic Robotics (ICDL- EpiRob), 54–60. https://doi.org/10.1109/DEVLRN.2019.8850726 Video Stel je voor: een robot die de leerkracht helpt in de klas
