Background: Survivors of lymphoma experience multiple challenges after treatment. However, a lack of knowledge of in-depth experiences of lymphoma survivors in early aftercare persists. Objective: To gain an in-depth understanding of the experiences of lymphoma survivors in early aftercare who have received an aftercare consultation based on evidence-based guideline recommendations, with an advanced practice nurse. Methods: This study used a narrative design. We recruited lymphoma survivors after a best-practice aftercare consultation with an advanced practice nurse. A total of 22 lymphoma survivors and 9 partners participated. Data were collected through narrative interviews and analyzed according to thematic narrative analysis. Results: Six themes emerged: living and dealing with health consequences, coping with work and financial challenges, having a positive outlook and dealing with uncertainty, deriving strength from and experiencing tensions in relationships, getting through tough times in life, and receiving support from healthcare professionals. Conclusions: The stories of lymphoma survivors in early aftercare revealed their experiences of how they coped with a range of challenges in their personal lives. Choosing an aftercare trajectory based on an aftercare consultation that encourages patients to think about their issues, goals, and possible aftercare options may be useful for their transition from treatment to survivorship. Implications for practice: Survivors’ social support and self-management capabilities are important aspects to be addressed in cancer care. An aftercare consultation involving shared goal setting and care planning may help nurses provide personalized aftercare.
Background: Survivors of lymphoma experience multiple challenges after treatment. However, a lack of knowledge of in-depth experiences of lymphoma survivors in early aftercare persists. Objective: To gain an in-depth understanding of the experiences of lymphoma survivors in early aftercare who have received an aftercare consultation based on evidence-based guideline recommendations, with an advanced practice nurse. Methods: This study used a narrative design. We recruited lymphoma survivors after a best-practice aftercare consultationwith an advanced practice nurse. A total of 22 lymphoma survivors and 9 partners participated. Data were collected through narrative interviews and analyzed according to thematic narrative analysis. Results: Six themes emerged: living and dealing with health consequences, coping with work and financial challenges, having a positive outlook and dealing with uncertainty, deriving strength from and experiencing tensions in relationships, getting through tough times in life, and receiving support from healthcare professionals. Conclusions: The stories of lymphoma survivors in early aftercare revealed their experiences of how they coped with a range of challenges in their personal lives. Choosing an aftercare trajectory based on an aftercare consultation that encourages patients to think about their issues, goals, and possible aftercare options may be useful for their transition from treatment to survivorship. Implications for practice: Survivors’ social support and self-management capabilities are important aspects to be addressed in cancer care. An aftercare consultation involving shared goal setting and care planning may help nurses provide personalized aftercare.
Narratives are being increasingly used in nursing and action research. In this participatory action research study, nurse leaders of an acute care of the older person unit collectively, critically and creatively reflected on lived experiences in order to explore the concept of person-centred leadership within their own practice. This paper describes a critical and creative reflective inquiry (CCRI) structure and processes, as well as participant evaluations. CCRI has a threephased structure: descriptive, reflective, critical/emancipatory. Reflectivity moves from 'consciousness' to 'critical consciousness' as participants critique and gain insight into their being within context. In the descriptive phase one participant shares a narrative, supported by group members applying the principles of narrative interviewing. As the narrator distances self from the narrative the reflective phase opens, where individuals creatively express their interpretation of the narrative shared. Collective and critical reflection begins as group members dialogue interpretations. As mutual understandings emerge, these are further contested and theorised in the critical/emancipatory phase. Both perspective and practice transformations were expressed within the CCRI space and observed outside it. The CCRI method created a communicative space for leaders to critically reflect, feel supported and develop knowledge and skills that they could immediately apply to daily leadership practice. Skilled facilitation was found to be essential for enabling learning and efficacy and the use of creative expression enriched the inquiry, offering new and unexpected insights. In conclusion, CCRI offers action researchers and participants a new method to explore (new) concepts relevant, and intended, to improve practice.
The Dutch main water systems face pressing environmental, economic and societal challenges due to climatic changes and increased human pressure. There is a growing awareness that nature-based solutions (NBS) provide cost-effective solutions that simultaneously provide environmental, social and economic benefits and help building resilience. In spite of being carefully designed and tested, many projects tend to fail along the way or never get implemented in the first place, wasting resources and undermining trust and confidence of practitioners in NBS. Why do so many projects lose momentum even after a proof of concept is delivered? Usually, failure can be attributed to a combination of eroding political will, societal opposition and economic uncertainties. While ecological and geological processes are often well understood, there is almost no understanding around societal and economic processes related to NBS. Therefore, there is an urgent need to carefully evaluate the societal, economic, and ecological impacts and to identify design principles fostering societal support and economic viability of NBS. We address these critical knowledge gaps in this research proposal, using the largest river restoration project of the Netherlands, the Border Meuse (Grensmaas), as a Living Lab. With a transdisciplinary consortium, stakeholders have a key role a recipient and provider of information, where the broader public is involved through citizen science. Our research is scientifically innovative by using mixed methods, combining novel qualitative methods (e.g. continuous participatory narrative inquiry) and quantitative methods (e.g. economic choice experiments to elicit tradeoffs and risk preferences, agent-based modeling). The ultimate aim is to create an integral learning environment (workbench) as a decision support tool for NBS. The workbench gathers data, prepares and verifies data sets, to help stakeholders (companies, government agencies, NGOs) to quantify impacts and visualize tradeoffs of decisions regarding NBS.
Onderzoekende vaardigheden (OZV) van mbo-studenten in gezondheidszorg- opleidingen zijn essentieel voor het omgaan met problemen, veranderingen en innovaties in het (toekomstige) beroep. Maar hoe kunnen we hun OZV precies opvatten?Doel Met dit PhD-onderzoek willen we: OZV van mbo-studenten conceptualiseren vanuit de onderzoeksliteratuur en de beroepspraktijk. Interventies (het denken en doen) van mbo-school- en praktijkopleiders beschrijven als zij tijdens interacties met studenten OZV van studenten willen bevorderen. Resultaten Verwachte resultaten: Wetenschappelijk: vier artikelen, presentaties op conferenties en een proefschrift Praktijkgericht: publicaties, workshops en presentaties voor betrokkenen uit het mbo Gerealiseerde resultaten: Onderzoeksplan ‘Understanding vocational healthcare students’ skills of research and inquiry‘ Posterpresentatie ‘Understanding vocational healthcare students’ skills of research and inquiry’ tijdens Onderwijs Research Dagen (online) in Utrecht, juli 2021 Round Table presentatie ‘Understanding vocational healthcare students’ skills of research and inquiry’ tijdens EAPRIL (European Association for Practitioner Research on Improving Learning) Conference (online), november 2021 Looptijd 15 november 2021 - 14 november 2026 Aanpak We beginnen met een scoping review naar OZV, gevolgd door een interviewstudie onder mbo-professionals en -opleiders. Met een multiple case study en een vignette studie brengen we interventies van mbo-opleiders om OZV bij studenten te stimuleren in beeld. De promovenda is Erica Wijnands-Pot (mboRijnland). De promotor vanuit de OU is prof. dr. Elly de Bruijn (ook lector Beroepsonderwijs), en de co-promotor vanuit het lectoraat Beroepsonderwijs is dr. Annoesjka Boersma. Cofinanciering Erica heeft voor haar onderzoeksvoorstel de NWO Promotiebeurs voor leraren ontvangen.
Onderzoekende vaardigheden (OZV) van mbo-studenten in gezondheidszorg- opleidingen zijn essentieel voor het omgaan met problemen, veranderingen en innovaties in het (toekomstige) beroep. Maar hoe kunnen we hun OZV precies opvatten?
